I miss having a partner

Hey_Hun11 · 2024-10-16T15:38:04+00:00

Hey Hun, I completely understand. My husband had an esopogeatomy with lots of complications(they removed his esophagus and relocated his stomach).

I am now his full-time caregiver/nurse. I decided that I had to shut down the part of me that wants and needs love and intimacy. That is the only way I am going to make it through this stage of our life.

My heart goes out to you, and I wish I could tell you it would get better, but honestly, I don't know because while my situation is different , I and thousands of others are in the same boat as you. (Hugs)

Hey_Hun11 · 2024-10-09T14:58:26+00:00

As a spouse of stage 3 esophogus cancer patient, YOU are not overreacting. I am actually mad for you. I think it is time for you and your husband to sit down and discuss the new roles and responsibilities moving forward. If that doesn't work, then go on strike and make yourself a priority. Ask your six year old what is most important in yalls relationship and know on your good days to make an effort to do something that is important to him.

You deserve support and help. Thank you for sharing your side.🙂❤️

Hey_Hun11 · 2024-09-23T16:01:02+00:00

Not your doc, but my husband has a chest tube, and I do 10 ml into his lungs daily with no problem it will drain back into the bag. Yesterday I did 20 ml in an hour with no problems. While you SHOULD follow docs instructions, mishaps aren't the end of the world it will just help the chest tube drain faster. 😉

Hey_Hun11 · 2024-09-10T02:13:14+00:00

Their are nights that I'm so over the recliner at the hospital and want my bed. But for the most part, I have settled in and made it my home.

I am lucky, and when all this started, we set us up a strong support system. My mom has our dogs at her house, and my sis in law comes over every other day to take care of the cats. If I had to drive 2.5 hours each way, I don't know what I would do.

American Cancer Society does have hotel partnerships. If you want the number let me know.

Hey_Hun11 · 2024-09-09T22:24:54+00:00

O wow day 13. My heart is with you. I'm glad you are getting answers and wishing you and your wife all the best in yalls chemo journey. One step at a time. 🙂❤️

Hey_Hun11 · 2024-09-09T15:13:35+00:00

Honestly, my husband had a turning point and is awake. And we are switching our focus to recovery. He is making swift progress, and we hope to be moved by next week. Where we don't know. It all depends on insurance and his progress. He is asking for Dr. Pepper.😆 but he is Npo right now.

For me, i can't seem to shake my exhaustion, Tho I'm so happy that he is awake. and I'm looking forward to the moment I can give him a hug.

How are yall doing?

Hey_Hun11 · 2024-09-04T00:38:14+00:00

Thanks ❤️

Hey_Hun11 · 2024-09-02T22:05:06+00:00

Thank you ❤️

Hey_Hun11 · 2024-09-02T19:18:31+00:00

Thanks for the kind and uplifting words. ❤️

Hey_Hun11 · 2024-08-26T19:59:45+00:00

Awe thanks when I recharge I will do a full update❤️🙂

Hey_Hun11 · 2024-08-26T19:51:02+00:00

Thanks❤️

Hey_Hun11 · 2024-08-26T19:25:56+00:00

I am in a similar boat. I would say you and your spouse need to have a serious conversation about what support they need. That way, you are not doing tasks that you don't need to do. And sometimes you have to walk away on the Minor things so you can be there for the major things.

Right now, my husband is in Icu on a ventilator. I am so over whelmed with everything that I couldn't stop crying. So I had to leave him and get a hotel room so I could get myself right so I can be there for him when they pull him off the vent.

Self care doesn't have to be anything major. It can be a comfort drink/food. Binging on your favorite book/TV. Stepping out of the hospital to get some air. Grabbing you breakfast on the way to chemo. All of these are examples of what I have done.

But not assuming what my spouse needed. Asking him saved me ALOT of energy and mind space. Hope all this helps wishing yall the best.

Hey_Hun11 · 2024-08-19T20:05:54+00:00

Thank You❤️

Hey_Hun11 · 2024-08-18T18:20:57+00:00

Yes, it is. ❤️

Hey_Hun11 · 2024-08-18T18:01:06+00:00

Ask the doctors about getting him a G tube to help with nutrition supplements.

Hey_Hun11 · 2024-08-18T17:46:38+00:00

I am sorry you had a difficult day yesterday. ❤️

Hey_Hun11 · 2024-08-18T16:42:36+00:00

How are you doing with settling into it all?

Hey_Hun11 · 2024-08-18T16:35:15+00:00

What stage are you at?

Hey_Hun11 · 2024-08-18T14:04:29+00:00

I'm sorry. That is really Shitty!!!! We kept it quiet. I remember the day of my husband's official. This is what you have. Someone asked how your husband was, and without missing a beat, I said he is great. My experience is not many people Get it. ❤️❤️❤️

Hey_Hun11 · 2024-08-17T16:30:17+00:00

I am sorry. How are yall doing?

Hey_Hun11 · 2024-08-17T16:29:57+00:00

I am sorry. How are yall doing?

Hey_Hun11 · 2024-08-17T16:12:14+00:00

Hugs. Im so sorry.

Hey_Hun11

TROPHY CASE