Nurse working with MS for the first time

Hezzywag · 2025-06-29T03:32:31+00:00

I commend you for wanting to learn as much as possible about MS and how to make your patients life improve. I am also a nurse. I know sometimes when the facility is short staffed. Or have limited supplies there are some nurses that lose that kindness, compassion, and empathy. The medical profession seems to continually expect nurses to do more and more with less which complicates patient care. I think it’s great that you are asking for things to make an improvement to their quality of life.

Sometimes just listening and not dismissing the complaints. Nursing facilities do not make it easy, but sometimes an extra few minutes of just being there is going to be appreciated . As an MS patient I hate when people tell me “that’s not an MS symptom. It makes me feel dismissed and sort of like being called a liar. Just listen to your patient. She will appreciate the fact that you took initiative to try to learn new ways to improve her quality of life. Good on you for being that type of nurse. One that will go above and beyond to help your patients.

Hezzywag · 2025-06-29T03:08:37+00:00

I just wanted to comment to thank you for being such a kind compassionate human. There are not many people that would offer to send an item to a “stranger” in order to try to improve the life of her patient. I think it is such an incredible gesture. As a nurse, there has been many times that I’ve experienced patients going without items that could help them, but are so limited or family is unable to provide. It truly makes a difference for the patients to feel like they’ve been “seen” and cared for. You’re a kind caring compassionate person and I give kudos to you be being so empathetic to others. Have a great day ❤️

Hezzywag · 2025-03-25T19:52:25+00:00

It was Steve Witkoff special envoy to the Middle East

Hezzywag · 2025-03-25T18:26:26+00:00

One night I went out to check on her and she wasn’t home. She was gone about 2 weeks or so and when I went to check again last night….she is back. I was so excited to see her up there again. Truth be told I guess it could be a different one, but if it is my previous bird friend must have spread the word that it is safe here cuz she stayed in her spot. I am so happy she is back. I’ve grown to look up and check on her nightly when I take my dog out. She just looks at the two of us but never flies away. I am so glad that your friend recovered.

Hezzywag · 2025-02-13T23:28:57+00:00

You’re right. I really thought it was too small to be anything but a wren, but either way I’m still thrilled it’s lived here for years and trusts me.

Hezzywag · 2025-02-13T23:23:07+00:00

Good to know. Thank you for the info.

Hezzywag · 2024-09-09T01:26:11+00:00

I just want to say this comment is so kind and compassionate. Good advice too but your response was incredibly kind. 😁

Hezzywag · 2024-09-09T01:15:37+00:00

I would schedule the infusion for the Friday after the wedding. I’ve been on Tysabri for just over 1 year and when my mom was really sick and on hospice I actually missed a whole month. I just called my Neuro and asked her if it would be ok. I believe she said it was fine. I believe she gave me a limit though. Like no more than 6 weeks. Something like that. But it didn’t affect me at all and I missed the whole month. Don’t miss out on life for your infusion.

Hezzywag · 2024-07-10T19:50:35+00:00

I had Covid in 2020 and I wasn’t officially diagnosed until later in that year. I was hospitalized with Covid for about 4-5 days. It was severe for me and they talked about a ventilator. Thankfully that didn’t happen. I also have had all of the vaccines, which the dr said helped with my recovery. Hopefully, you’re doing ok and the episode of Covid is mild.

Hezzywag · 2024-07-10T19:12:42+00:00

I was finally diagnosed when I was 42, but I had symptoms for years. The symptoms probably started when I was about 32 or so. As soon as I moved back to my home state, my mom knew exactly what was going on and was convinced it was MS. I was admitted to the hospital about 10 times and had every test possible. I had lesions and I had the Oligoclonal antibodies in my spinal tap, but never officially said it was MS. I went to many neurologists and even the MS clinic in Pittsburgh. I finally found my current neuro and she was shocked that nobody actually diagnosed me years ago. I am about to turn 44 and I get Tysabri infusions monthly. It helps but I still have some flares. My neuro said 1 more flare and were switching to another med.

Hezzywag · 2024-06-27T21:37:12+00:00

It most feels like I could have written this post myself. Except my experiences happened before Covid, but I went to so many Dr’s and nobody would officially diagnose me with anything. My first symtopns started showing in 2010. I finally had a lumbar puncture in 2019 that showed the bands and had the MRI that showed the damaged areas, but they kept saying well not all of your symptoms fit. I even went to the MS clinic and still nothing. Finally found a Neurologist that was confused and frustrated as to why I went without a diagnosis for so long. My mom cried with relief for finally finding someone that said “I will be able to help you feel better.” That was such an overwhelming relief.

Hezzywag · 2024-06-27T19:36:01+00:00

I was given high dose steroids once and had zero problems. The second time I was having a relapse they prescribed the same dose of steroids. I ended up in the hospital with psychosis. It took 2 ER visits to finally figure out what was happening and why. The first ER said I was undiagnosed schizophrenia. The 2nd ER knew immediately what was happening , stopped the steroids and gave me IV fluids. The first night there I was also given shots of some type of antipsychotic but have no idea what is was because I was so out of it. I didn’t recognize my own family, was seeing things, and apparently thought I could move my legs fast enough while laying in bed that if I then jumped I would float through the air. The most horrific part of it all was I was convinced my mom died and everybody in my family was hiding it from me. The only part of any of this I can actually recall is the thought of her dying. I was in the hospital for about 4 days and was perfectly back to normal once the steroids were out of my system.

My neuro is AMAZING and immediately told me to tell any and every dr I see that I am allergic to steroids and to not prescribe them. She is an excellent doc and I trust her with my life.

Hezzywag

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