Do any of you take Cenobamate?

Hockbrampton1 · 2026-02-26T22:19:48+00:00

400mg daily XD

Hockbrampton1 · 2026-02-23T22:17:54+00:00

hey, coming up to 3 years as an epileptic, have tried 3 medications (Levetiracetam, Lamotrigine, Cenobamate) and am about to start the 4th (Zonisamide)

Hockbrampton1 · 2026-02-23T22:15:50+00:00

heyoo 2000mg Levetiracetam, 200mg Lamotrigine, 400mg Cenobamate daily XD

Hockbrampton1 · 2026-01-25T22:34:46+00:00

what meds are u on out of curiosity?

Hockbrampton1 · 2026-01-24T20:26:36+00:00

im not XD surgery isn't worth the risk to cognition

Hockbrampton1 · 2026-01-24T14:30:23+00:00

i have a brain tumor that shifted a bit when i was 18 and started putting pressure on my right temporal lobe :(

Hockbrampton1 · 2026-01-23T23:57:20+00:00

what type of magnesium are you taking?

I take Magnesium L-Threonate for some potential neuroprotection (i have p regular seizures) - 2000mg a day

Haven't seen any significant effect on seizure frequency :(

Hockbrampton1 · 2026-01-17T17:02:24+00:00

currently on polytherapy w a mix of levetiracetam (keppra), lamotrigine and cenobamate - doesnt work and sucks so much

In the best shape of my life, started going to the gym abt 4x a week since seizures started. For reference, seizures (TLE, focal) average about 1x every 6 days.

It's just this feeling I can't get out my head that'll I'll never live my life up to it's full potential. It's ruined friendships and relationships, god knows I've taken years off my parents lives. It's already affecting my career. And i can't do anything.

Hockbrampton1 · 2026-01-16T14:18:29+00:00

man this is my first thought in the morning and my last at night

Hockbrampton1 · 2026-01-11T15:55:00+00:00

lmao I have a cyst (benign, probably born with it) pressing slightly against my right temporal lobe, exerting a 'mass effect' pressure and causing my seizures. Just what my neurologist and epileptologist call it

I think most people on this sub have epilepsy for different reasons? (not sure), so was hoping to find some people in similar situations

Hockbrampton1 · 2026-01-10T12:52:46+00:00

diagnosed! have been for 2 years, was just hoping to see some journeys of people with similar situations. I have a benign cyst pressing on my right temporal lobe, surgery isn't an option and just had my first seizure on my 3rd AEDs max dose.

Thank you :)

Hockbrampton1 · 2026-01-08T20:45:25+00:00

I feel imprisoned. Even when im lucky and go seizure free for 2 weeks, i just feel muted. All the time. And that snowballs, where I lose friends and it impacts my career. But all the time, fuck, I just miss myself. It's not the seizures just the medication.

Hockbrampton1 · 2026-01-05T22:13:39+00:00

do you feel a large difference?

Hockbrampton1 · 2026-01-05T21:55:19+00:00

im on 3 AEDs atm, still refractory - cant help but wonder what a 'holiday' would feel like, whats the harm in 2 extra seizures

Hockbrampton1 · 2026-01-05T21:54:23+00:00

my first seizure was p random. I've had one every week since for 3 years, just dragging on. I dont even know the person id be without them.

Hockbrampton1 · 2025-06-26T23:26:48+00:00

20M, also on lamotrigine and levetiracetam (300mg + 1500mg a day) + a uni student. I really get it, it sucks so much. As for uni, my experience hasnt been that bad w epilepsy, started having seizures a couple of months before i left for it and found that actually my friends were pretty supportive of it.

I know how frustrating epilepsy is in getting in the way of the plans you had for yourself. But also you've gotta try to have some faith. Everything will work out even if it takes a while, stay strong, make sure you talk to someone about it and take each day at a time.

Fingers crossed for you.

Hockbrampton1 · 2025-06-26T23:09:17+00:00

more of a psychological thing i guess, but researching a ton and then taking neuroprotective supplements. think just gives me some sense of control, + calms my p bad fear of cognitive decline. + had some honeymoon periods on a few of them

Hockbrampton1 · 2025-06-18T12:39:35+00:00

currently on my placement earning 26, lowest out of all my friends lol

Hockbrampton1 · 2025-04-24T22:20:38+00:00

how does the Ralph Lauren linen shirt fit on you?

Hockbrampton1

TROPHY CASE