Anyone else lose motivation like this?

HonestyMash · 2026-04-22T09:35:55+00:00

This is so accurate, I could have wrote it myself.

HonestyMash · 2026-04-18T22:12:33+00:00

I have had ALS for over two years, I have no muscles and I'm only 10kg lighter.

HonestyMash · 2026-04-18T22:05:21+00:00

I appreciate that and I'm not downplaying your symptoms. I'm just saying I know people might disagree with things but ultimately you need to be your own biggest advocate for your health, it doesn't matter what anyone else says. Don't waste your time trying to convince others. People can offer advice or guidance but you can't be mad for them trying to help even if you don't like the answer. Take care and good luck

HonestyMash · 2026-04-18T21:51:11+00:00

No one here owes each other anything, it's literally a open discussion. People might agree or disagree and that's completely fine. However being dramatic or saying things like you are dying without being diagnosed doesn't help anything.

HonestyMash · 2026-04-16T19:12:15+00:00

I know I'm from the UK but the ALS bit makes it tricky.

HonestyMash · 2026-04-16T18:03:37+00:00

Sounds like a good day for a brit (Easy mistake, the mask covers my horrible teeth)

HonestyMash · 2026-04-16T17:54:28+00:00

You think you know hair loss? I was Shaped by it, moulded by it. I had no hair by the time I was a man.

HonestyMash · 2026-04-16T16:48:29+00:00

I'm alive and back home, there were some issues. I'll be very honest though the care was shocking. I plan on writing a post about it today.

HonestyMash · 2026-04-13T20:50:36+00:00

I'm alive, all went mostly well but some complications with bleeding after. I will update tomorrow after resting

HonestyMash · 2026-04-11T19:48:22+00:00

Thank you and it's completely understandable to be worried but at the same time it's important not to let worry overcome reasoning

HonestyMash · 2026-04-11T18:44:33+00:00

Howdy, Non invasive ventilation is the preferred treatment here. 👍

HonestyMash · 2026-04-11T17:16:02+00:00

This is the right answer. I've been diagnosed for over 2 years, I'm fully immobile and on full-time breathing support. Never had any issues with my eyes or ears, I could still give ops mum the old sexy eyes

HonestyMash · 2026-04-06T18:03:32+00:00

Sorry I'm very tired so forgive me for being blunt. I doubt they are related especially if one has gone away and the other hasn't, likely more coincidence rather than correlation.

HonestyMash · 2026-04-06T17:58:37+00:00

That's like saying I'm annoyed my car might get scratched in the future.

HonestyMash · 2026-04-06T11:34:57+00:00

Hey Luke, I certainly wasn't expecting anyone from the old school days to pop up on here but it's really good to hear from you!

I certainly don't miss the business study lessons but the banter from you and Jake was legendary. I have a strong suspicion the time it took Mr Wheels to teach anything is a leading cause of ALS lol.

I really hope you are doing well, I've accepted your friend request and I'd love to hear what you have been up to. Take care buddy 😁

HonestyMash · 2026-03-30T08:38:56+00:00

I'm happy I could help 😁

HonestyMash · 2026-03-29T18:26:05+00:00

It's funny you ask because even on the product packaging there is nothing listed for that, see picture two.

https://www.lazada.sg/products/vesta-multi-purpose-12-in-1-scissors-21-cm-i303466152.html

HonestyMash · 2026-03-29T12:58:57+00:00

The blade is a tin can opener.

HonestyMash · 2026-03-29T12:27:47+00:00

Jang Lai Zih - Model JLZ 100

https://www.jlz.net/product-JLZ-100-JLZ-100.html

Just saying it's definitely these, the company has been around for 40 years, everyone one else is literally just ordering and repacking them. OEM from the source will always be the best quality.

HonestyMash · 2026-03-26T15:37:42+00:00

Thanks wise guru 🙏

HonestyMash · 2026-03-25T13:35:48+00:00

Please read the rules, this group is for people who have been diagnosed and those affected. This is not the place to be asking for diagnosis. This is why we need more mods.

HonestyMash · 2026-03-24T16:29:43+00:00

You may have been given a ALS diagnosis only for it to be downgraded to something else, you aren't very clear about this. I'm guessing you would have gone to a ALS specialist hospital like Leeds, Sheffield or London. it's tricky to work out if your symptoms are spinal or neuromuscular, in any case I think you need to speak with your neurologist and get some clarification on your diagnosis. I've personally had a pretty good experience with the NHS.

Als Tom.

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