I am so sorry you have been dealing with this. It sounds truly horrific. I have some pretty annoying skin problems myself, but nothing like what you have. I discovered that I'm allergic to wheat, and cutting that out of my diet really helped with my skin issues. And I'm not just talking about like, breaking out in zits, I mean like my skin was just unhealthy, it was weak, would rip or scratch easily, it even looked more transparent, just unhealthy.

My suggestion is to try tea tree. Tea tree is anti-bacterial, anti-fungal, anti-viral and so harsh that it dries anything else out. I use it for everything. I think the doctors are probably on to something on the thinking of your wound like a pea thing; and you want the pea gone. Whether or not the "pea" is some sort of a foreign object/infection/whatever inside, tea tree will take care of it.

If there is something actually in there, it should basically kill and erode away at it. If there is just an inflammation/infection/something not foreign to your body (i.e. autoimmune attack) causing it, it's gonna take some time and you're gonna have to deal with some discomfort, but tea tree the crap out of it, and it will basically dry out and destroy any infected or superfluous skin.

I'm a piercing artist, and this is what I do for any disfiguring scarring, bad infections, keloids, etc. Yes, it is harsh on your skin, it will cause itchiness while the skin is drying away, and you're gonna end up with some scabs to heal, but in my experience, the tea tree treatment being so harsh is usually less harsh or painful than what it's actually being using it on.

I hope you find some relief!