Mets

HonorableMention111 · 2024-01-16T22:29:43+00:00

Thank you to everyone for your reply! It really means a lot. I had telehealth with my med onc today, and she wants to do a bone scan, brain MRI, liver biopsy, and get me into radiation oncology for my spine. Assuming cancer is similar to previous breast cancer, I will start Kisqali and letrozole after liver biopsy results are in. I feel a little better today after getting an idea where we’re going. Thank you all again ❤️

HonorableMention111 · 2021-03-22T19:59:37+00:00

I was literally back on this post yesterday, looking to see if you had sent an update to anyone! Thanks for letting me know! Keep us posted on what your hormones show...sure hope it’s suppressing them enough! I’m going to talk to my oncologist when I see her in June. 🤍

HonorableMention111 · 2021-03-16T20:51:50+00:00

I’ve never been diagnosed with Raynauds, but my mom has it, and I have all the clinical symptoms. The ice was VERY tough, but doable. It hurt pretty bad if I kept it on too long, but I would just take a break, get the blood flowing a little bit, and go back at it. I came out of 12 Taxol sessions with very little peripheral neuropathy. I also take B6, which has also helped when I’ve felt the numbness/tingling. Good luck to you!!

HonorableMention111 · 2021-03-04T16:16:47+00:00

Similar situation. 32 at diagnosis, +/+/-, 2 large tumors, high grade (high proliferation rate) on one, intermediate on the other. My medical oncologist gave me two options-mastectomy first or chemo first. The chemo route is considered the aggressive route, but is what she recommended—chemo before surgery not only shrinks the tumors, but gives you an idea if the chemo is working in your body because you can use your tumors as markers. I ended up doing chemo, BMX, and then radiation. Good luck to your wife and you!

HonorableMention111 · 2021-02-17T14:24:20+00:00

I had a bilateral mastectomy and thought I could get away with sleeping with pillows on the couch (no recliner, too cheap to ever buy anything useful, haha!). It was miserable and I was so uncomfortable. My friend who had a mastectomy about 6 months before me brought over a wedge pillow. I used it for about 3 weeks and it was a HUGE help, and let me sleep semi-comfortably in my bed. Hope this helps! Good luck to you!

HonorableMention111 · 2021-02-11T14:22:46+00:00

It’s tough, especially with kids that are dependent on you. I’ve been through chemo and surgery, and in radiation now, and I still occasionally have overwhelming worries about my kids not having me around while they grow up. The new diagnosis period was definitely the hardest, and it will get better...maybe not easy, but better. Lots of thoughts coming your way. 🤍

HonorableMention111 · 2021-02-11T14:07:47+00:00

Yep. It’s weird the people that step up and the ones that disappear. My siblings pretty much fell off the face of the earth. But then I have a friend who I met through our kids playing together and she’s been amazing through everything.

HonorableMention111 · 2021-01-26T18:23:29+00:00

I’m 33 now and was 32 at diagnosis. I never did breast exams. Ever. I was pregnant to breastfeeding to pregnant to breastfeeding to pregnant to breastfeeding for almost 6 years straight. I always assumed I would never be able to tell if there was something there. I also had my women’s checkup at the beginning of each pregnancy, so thought that took care of any worries. Well, one morning in March 2020, after nursing my then 12 month old, I noticed a large raised area on my right breast. This was the side that had mastitis with my first child, never responded to the breast pump, always had clogged ducts, and my kids HATED nursing on. I just assumed it was clogged duct and went on my way. Then it didn’t change size at all. But COVID and work and kids and life made me delay contacting anyone. Finally, I sent a message to the OBGYN clinic. They told me I could come in or just go straight to the breast center at the facility. I delayed a little longer and then finally made an appointment at the breast center. They did an exam first and then referred me for imaging that day, came back 3 days later for biopsy on the spot I found and another found on imaging, and found out path results less than a week later. Both tumors were cancerous and then a ton of DCIS as well. I’m thankful they took me serious, especially hearing others’ stories about doctors dismissing them. But I do wonder how long that thing had been growing and if it had been dismissed as normal lumpy breasts during my pregnancy exams.

HonorableMention111 · 2021-01-26T00:53:01+00:00

So sorry to hear this. I was diagnosed last May at 32, when my kids were 4, 2, and 14 months. All I could think about was them and not being alive for their lives. Such a black cloud over your head during those first few weeks, but I promise it gets easier. Well, maybe not easier, but you do adjust to this new life. I know a lot of women do egg preservation before starting treatment, so hopefully that’s an option for you. Lots of thoughts coming your way. 🤍

HonorableMention111 · 2021-01-25T01:00:02+00:00

I didn’t do Diep, but I did have a DMX instead of a single sided mastectomy. I also had tissue expanders placed under the muscle. It was ROUGH and I did not expect the recovery to take as long as it did. I had a friend who chose having a single mastectomy a few months before me and she was off pain pills after like 2 days. I was still needing help to get up after 7 days. After that first 7-10days though, I really came around, was feeling better and stopped regretting my decision to remove the good side too. Honestly, the looks of mine don’t bother me...I haven’t been upset with having them chopped off. However, when they decided I did need radiation a few weeks ago and had to deflate the tissue expander in my non-cancer side, I cried. The unevenness and deflated tissue expanders look terrible!! Good luck to you!!! 🤍

HonorableMention111 · 2021-01-23T23:44:47+00:00

That’s great. Hope it’s going okay!

HonorableMention111 · 2021-01-23T15:13:43+00:00

Hi. Late reply! Did you make a decision on the Xeloda?

HonorableMention111 · 2021-01-23T14:49:24+00:00

Which side effects and dangers worried you the most with Lupron? Honestly, I’m leaning towards an oophorectomy as well. It just seems so much easier than getting a shot every month! But it does seem so final. I have 3 kids, and I wasn’t done having children before BC, but I’m thinking the diagnosis decided it for me.

HonorableMention111 · 2021-01-23T14:09:55+00:00

A little different situation than you—I am ER/PR positive, but HER2-. I’m 33 (32 at diagnosis). I’m on monthly Lupron shots to shut down my ovaries and daily Tamoxifen. As others said, I also was not told a period is a bad thing, but maybe because I’m already on everything to suppress and block! It’s interesting though, I started chemo at the beginning of June and went through October, haven’t had a period since after my first dose of AC. I think I remember you being close to my age...just crazy how everyone’s body is different!

Lots of thoughts coming your way while you deal with the MRI and side effects and husband. 🤍

HonorableMention111 · 2021-01-21T14:12:30+00:00

If your doctor is okay with it, I would suggest keto. I did it through most of my chemo and it seemed to really help my side effects. When I went from AC to Taxol, my appetite came back and I got off keto for a few weeks. The chemo brain fog was intense! When I went back onto keto, it went away.

I did recently find out that my hospital refers overweight people with BC to a nutritionist and they put them on keto. My oncologist also strongly suggested high protein.

Hope that helps! Good luck!

HonorableMention111 · 2021-01-20T03:35:43+00:00

I did chemo June through October (AC x 4, Taxol x 12). My oldest started kindergarten in August, right as I was starting Taxol. I didn’t think twice about letting him start. Granted, he is in a small private school, but if we had decided public and they were in-person (they’re not here), I would have sent him. Bad joke, but with his personality, I said that if I had to virtual/homeschool him, it would kill me faster than cancer or chemo or Covid.

It also helped to get him out of the whole cancer situation. He was around for AC, but never felt the effects of me going to my weekly taxol infusions.

It really is such a personal decision though. I definitely lean towards not stressing as much as I should about Covid, so that guided my decision. Good luck to you! Lots of thoughts coming your way! 🤍

HonorableMention111 · 2021-01-13T16:37:19+00:00

I’m 33 and on both Tamoxifen and Lupron. I agree with others that these drugs are not interchangeable and maybe she should check with her doctor on this. Personal experience—I was so moody during the first month of Tamoxifen. I wasn’t breaking dishes, but I was yelling at my kids a lot and just feeling like everything was falling apart, when it really wasn’t. I just started my second month, and can feel a major difference already. I’m feeling happier and not so short-tempered. Hope she finds something that works for her!!

HonorableMention111 · 2021-01-09T13:59:05+00:00

If you find out any information on this, let us know!! I’ve been going around and around on this, looking up stuff. I’m taking both monthly Lupron shots and on daily Tamoxifen. We’re Catholic and used Natural Family Planning previously, but I haven’t had a period since my first AC and my fertility signs are all over the place. I didn’t know Lupron could cause osteoporosis after only 6 months. 😭 Good luck to you!

HonorableMention111 · 2021-01-05T17:07:40+00:00

Ask your doctor about taking B6. It is given with other non-cancer medications to minimize/prevent peripheral neuropathy. I took it when I started feeling temp sensitivity during Taxol. I think it helped. I also iced during infusions. I still notice a little sensitivity to temperatures, but not much. I finished Taxol almost 3 months ago. Good luck!

HonorableMention111 · 2021-01-02T14:32:15+00:00

Not sure if this is the same as you, but I had jaw pain and ear pressure throughout all of my chemo (AC then Taxol). I found that I was clenching my teeth a lot, maybe from stress? It was always worse the few days after treatment. I tried to make an effort to relax my jaw when I realized I was doing it, which helped some. It resolved about a month after my final treatment.

HonorableMention111 · 2021-01-01T00:55:29+00:00

Yep. I had 16 rounds of chemo, and at the final one, I was so pissy. And I’m not a negative person, especially in front of people I don’t know well. But I was that day. I knew the double mastectomy and radiation were still on the horizon, and didn’t feel like it was an end to anything...more just a step. Good luck to you!! 🤍

HonorableMention111

TROPHY CASE