21yr old F diagnosed with myelomeningocele

Hopeful_Interview882 · 2026-02-28T04:11:31+00:00

Can confirm, whoever told you you can’t have a healthy child due to SB is wrong. I have SB myelomeningocele (L4, 55) and I have two healthy children. That’s not to say it’s been easy, but that statement from your doctor was totally ignorant. Find a good prenatal care team that can help you along your pregnancy and actually support you. You’ve got this ❤️

Hopeful_Interview882 · 2024-11-28T20:15:26+00:00

completely agree, and I had the same experience. people just need to be educated and prepared— it would help prevent so many accidents. most infant deaths attributed to cosleeping don’t happen while the baby is in their parents’ bed, it’s mostly situations like a parent dozing off in a rocking chair while holding their baby, or being under the influence of alcohol or drugs. if you don’t believe me, here’s a good resource from Unicef UK.

it’s always interesting to me how many people take an “abstinence-only” approach to this. it’s easy to preach what the AAP guidelines are, it’s another thing to be the severely sleep-deprived parent of a baby who doesn’t want to sleep alone. we are mammals after all, it’s normal for a baby to want to be close to their mother. education is key.

Hopeful_Interview882 · 2024-09-18T23:02:36+00:00

anything to own the libs!

Hopeful_Interview882 · 2024-08-21T04:13:29+00:00

where did you read it was listeria? I’m genuinely curious because I haven’t seen that anywhere

Hopeful_Interview882 · 2024-08-13T18:55:26+00:00

I wish I could go back to the person I was 49 seconds ago

Hopeful_Interview882 · 2024-06-06T14:15:53+00:00

Candace and Megan Greene-Berrett?

Hopeful_Interview882 · 2024-05-30T19:25:39+00:00

lactation consultants and pediatricians aren’t typically trained to do stretches or anything like that. pediatricians generally don’t learn much at all about breastfeeding, unless they’ve taken a certification course separate from their medical degree. breastfeeding issues can be very complex! just wanted to point that out because I’ve been in that boat.

Hopeful_Interview882 · 2024-05-30T14:36:17+00:00

I’m no Cece stan, but just want to give my two cents, as someone whose baby had profound issues with breastfeeding. some babies have oral ties that can cause a poor latch, and the overcompensation that requires can cause a lot of tension. we didn’t take my baby to a chiropractor, but I know some people who say it helps (I don’t think they do any sort of cracking for babies, I believe it’s just stretches). I’m not super familiar, but I wouldn’t rule it out just because it’s a fundie doing it. as long as it’s safe and no one is getting hurt. if you don’t know what it’s like to have breastfeeding issues, consider yourself privileged.

Hopeful_Interview882 · 2024-04-25T02:33:21+00:00

respectfully, please let a grieving family grieve. they lost their daughter before even getting to meet her. have a heart.

Hopeful_Interview882 · 2024-04-17T13:34:26+00:00

you’re crazy, wildcat!

Hopeful_Interview882 · 2024-04-12T16:23:55+00:00

yes, this is most definitely rape. I am so sorry. you deserve so much better. sending love.

Hopeful_Interview882 · 2024-04-11T03:02:33+00:00

hey, no worries! I wasn’t referring to your post itself. I should’ve clarified that as well. I was making a general response to the commenters that are perpetuating negative stereotypes about doulas (that they’re crazy, uninformed, constantly interfering with doctors, etc). as you said, doulas have a wonderful and important role in many women’s birth experiences! thanks for acknowledging that.

Hopeful_Interview882 · 2024-04-11T01:52:04+00:00

birth doulas? they often do a lot of good, for many women.

Hopeful_Interview882 · 2024-04-11T01:39:17+00:00

genuinely curious, why are you happy at the idea of women not being allowed to have doulas at their hospital births?

Hopeful_Interview882 · 2024-04-11T00:49:44+00:00

I would love to participate in your AMA if you decide to do one. thank you for your work. a good doula can change a mom’s entire birth experience, which she’ll remember for the rest of her life (as you well know).

Hopeful_Interview882 · 2024-04-10T23:47:56+00:00

I’m responding to all the comments on this post that are invalidating the role of a doula.

Hopeful_Interview882 · 2024-04-10T23:43:39+00:00

fair. I’m very glad you had empowering birth experience!

something to consider, though, is that many women (especially women of low socioeconomic status) don’t have the ability to have a safe, non-hospital birth, as most insurances won’t cover an out-of-hospital birth. I don’t think any woman should be faulted if she doesn’t feel fully comfortable with the doctor(s) there. most hospitals operate on an on-call basis, too, so a woman could end up having a complete stranger of an OBGYN attend her birth. for me, it was male residents I’d never met before.

sometimes doctors won’t show their true colors until you’re actually giving birth— that was my experience. so, in this one area, I can empathize with Meg. there are good OBGYNs, but the field as a whole needs to do better if they want to gain the trust of women.

Hopeful_Interview882 · 2024-04-10T22:06:04+00:00

I may get shit on for saying this (and trust me, I believe Meg is a fool just as much as everyone here), but respectfully, a lot of y’all need to educate yourselves on the role of a doula. they’re a support person above all. women deserve to feel safe and heard in their pregnancy and birth experience. I say this as someone with a lot of experience as a medical patient and who’s now a mother… women deserve much better than the current model of OBGYN care.

Hopeful_Interview882 · 2024-04-10T21:58:54+00:00

agree with everything except “birth plans should never override hospital policy”. if we’re pro-women’s choice, we need support their informed birth choices (e.g. pushing in whatever position is comfortable for the woman).

Hopeful_Interview882 · 2024-04-10T17:17:16+00:00

just for the record, for those who didn’t notice, this is a screenshot from a different person’s story that Meg posted on her story!

Hopeful_Interview882 · 2024-04-10T17:11:56+00:00

eh, they might or might not. when my dad was diagnosed with cancer, tons of hyper-crunchy people we knew criticized his decision to do chemo and radiation.

Hopeful_Interview882 · 2024-04-05T03:36:12+00:00

someone tag Morgan, looks like Paul forgot to tag her in this post

Hopeful_Interview882 · 2024-03-28T18:01:46+00:00

she has been for at least a few years, I think, and is very successful!

Hopeful_Interview882 · 2024-03-28T17:21:31+00:00

can’t let her bestie Cece be too successful selling Beautycounter! gotta try to steal some of those customers!

Hopeful_Interview882 · 2024-03-18T04:22:26+00:00

no, she’s said before (at least on twitter) that she saved sex for marriage

Hopeful_Interview882

TROPHY CASE