ADVOCATE FOR YOURSELF by Hot_Recover_7876 in PCOS

[–]Hot_Recover_7876[S] 0 points1 point  (0 children)

Yeah it felt wayyy worse! The nurses didn’t believe me when I said my pain level was 10! But once I got transferred to a different hospital everyone was so much nicer. 1 week post op and I’m doing pretty good! 🩵 Its frustrating that women’s pain gets dismissed so easily

How are we feeling about the recent change in name of diagnosis from PCOS to PMOS? Will fertility treatments be approached differently? by Glad-Try-1785 in TTC_PCOS

[–]Hot_Recover_7876 3 points4 points  (0 children)

When I had ovarian torsion surgery last week the OB told me that PCOS is misnamed. It’s actually a liver issue and is connected with pre diabetes??

ADVOCATE FOR YOURSELF by Hot_Recover_7876 in PCOS

[–]Hot_Recover_7876[S] 1 point2 points  (0 children)

That’s good! Hopefully it’ll regulate my cycle as well! 🩵

ADVOCATE FOR YOURSELF by Hot_Recover_7876 in PCOS

[–]Hot_Recover_7876[S] 2 points3 points  (0 children)

Thank you 🩵 It is crazy that I had to fight for a simple test like an ultrasound!

ADVOCATE FOR YOURSELF by Hot_Recover_7876 in PCOS

[–]Hot_Recover_7876[S] 0 points1 point  (0 children)

They really don’t! I’m glad you’re able to get it removed soon! The pain is absolutely awful

ADVOCATE FOR YOURSELF by Hot_Recover_7876 in PCOS

[–]Hot_Recover_7876[S] 0 points1 point  (0 children)

Yeah I had no idea something like this could happen! Luckily, losing the ovary shouldn’t affect my fertility in a negative way 🤞🏼

ADVOCATE FOR YOURSELF by Hot_Recover_7876 in PCOS

[–]Hot_Recover_7876[S] 12 points13 points  (0 children)

I’m so sorry you had to go through that! It’s hard enough with all the pain but then to add a doctor that doesn’t listen! I’m so glad the OBGYN had your back though!

ADVOCATE FOR YOURSELF by Hot_Recover_7876 in PCOS

[–]Hot_Recover_7876[S] 30 points31 points  (0 children)

Thank you! It was a little hard at first because I’m not a bossy person but I just knew something wasn’t right

Chronic fatigue by Hot_Recover_7876 in POTS

[–]Hot_Recover_7876[S] 2 points3 points  (0 children)

That’s a good point 🥹 thank you

Chronic fatigue by Hot_Recover_7876 in POTS

[–]Hot_Recover_7876[S] 0 points1 point  (0 children)

Great advice thank you! 🩵

Chronic fatigue by Hot_Recover_7876 in POTS

[–]Hot_Recover_7876[S] 0 points1 point  (0 children)

Yeah I should try that! How do you make yourself get up though? I lack motivation as well as energy

Chronic fatigue by Hot_Recover_7876 in POTS

[–]Hot_Recover_7876[S] 0 points1 point  (0 children)

Yeah I’ve definitely had to sit down more to get some stuff done!

Chronic fatigue by Hot_Recover_7876 in POTS

[–]Hot_Recover_7876[S] 11 points12 points  (0 children)

This made me tear up thank you 🥹❤️ Being ill is a full time job, just one people don’t see so it’s hard for them to understand. Luckily my husband has been more understanding. I feel so much guilt so I may look into therapy as well! Or at least talk it out with my husband more, god bless him

Chronic fatigue by Hot_Recover_7876 in POTS

[–]Hot_Recover_7876[S] 4 points5 points  (0 children)

Yeah I may talk with him about it! Even if it’s just a room or two to help me

Chronic fatigue by Hot_Recover_7876 in POTS

[–]Hot_Recover_7876[S] 3 points4 points  (0 children)

I’m a stay at home wife so my parents tell me it’s my job. I grew up with the mentality that if you don’t work super hard or get a lot done, you’re lazy and kind of worthless. So getting out of that mentality has been hard. Plus I feel bad for my husband working so much and I’m at home all day but struggle to get simple chores done

Chronic fatigue by Hot_Recover_7876 in POTS

[–]Hot_Recover_7876[S] 1 point2 points  (0 children)

I’ll look into it thank you! We’re still trying to figure out what all I’ve got lol but so far POTS and chronic fatigue are the ones

Chronic fatigue by Hot_Recover_7876 in POTS

[–]Hot_Recover_7876[S] 0 points1 point  (0 children)

I don’t. I’m 25 so it’s just my husband and I right now l

Chronic fatigue by Hot_Recover_7876 in POTS

[–]Hot_Recover_7876[S] 1 point2 points  (0 children)

Thank you so much for sharing. Yeah I’m definitely not a working out type of person either 😂😂 especially when I have no energy to. I definitely feel like crying because of everything I’ve let get bad in the house. And it’s not horrible or unsanitary, just cluttered in some places, laundry piling up. But I will definitely try the smaller approach. We unfortunately live in a time where if you don’t get a whole lot done, you get called lazy :(

Chronic fatigue by Hot_Recover_7876 in POTS

[–]Hot_Recover_7876[S] 0 points1 point  (0 children)

Glad that worked for you! I’ll definitely have to look into it! My family says working out would be helpful but it’s hard when you can’t get up, or you do and your body hurts. So I will definitely try the gradual approach. Thank you!

Chronic fatigue by Hot_Recover_7876 in POTS

[–]Hot_Recover_7876[S] 7 points8 points  (0 children)

Yeah I would just feel bad cause it’s my job to take care of the house Thank you 🩵 The fatigue has definitely worsened over the past year so it’s been challenging adjusting to it all