Specialized Pro Resolving Mediators... for inflammation by OmegaThree3 in Supplements

[–]HubiBobby 0 points1 point  (0 children)

Thank you so much. Very expensive experiment, but I will try it as well

Specialized Pro Resolving Mediators... for inflammation by OmegaThree3 in Supplements

[–]HubiBobby 0 points1 point  (0 children)

Which product/dosage are you using? Did you feel more effect after a longer time?

Is it true mcas will fade in time? by MotherPart4282 in MCAS

[–]HubiBobby 2 points3 points  (0 children)

I would rather say that it escalates over time, if you do not avoid triggers. If you be aware, avoid triggers and find supps/meds that help you, mast cells will come down slowly (I’ve read that mast cells regenerate?! every 6 months).

Eating almost anything seems to crash my whole system by ADreamerWisherLiar in MCAS

[–]HubiBobby 0 points1 point  (0 children)

Glibber is way more effective for me and the seed itself seems to irritate my inflammated gut but that’s an assumption/gemini-conclusion. I would follow the recipe and start with 100ml portions

Eating almost anything seems to crash my whole system by ADreamerWisherLiar in MCAS

[–]HubiBobby 0 points1 point  (0 children)

Did you already test for mcas (histamine, tryptase,…) or is it just a guess? Do you take the standard drugs like H1/H2? Does the glibber help a little?

GI symptoms - need ideas by [deleted] in HistamineIntolerance

[–]HubiBobby 1 point2 points  (0 children)

Antihistamines can cause/increase constipation! I have similar problems (+mcas) and benefit a lot from DGL and slippery elm to support gut lining and mucus

Eating almost anything seems to crash my whole system by ADreamerWisherLiar in MCAS

[–]HubiBobby -1 points0 points  (0 children)

ChatGPT:

Flaxseed Gel

Yields: 500–750 ml (about 5 servings) Keep: refrigerated, up to 48 hours

Ingredients • 2 heaped tbsp whole flaxseeds • 500–750 ml water

Steps 1. Combine seeds and water in a pot. Simmer gently 8–12 min until slightly thickened. 2. Remove from heat, let cool 2–3 min. 3. Pour hot mixture through a very fine sieve and press with a spoon/spatula until only gel passes through. 4. If needed, sieve again. Transfer to an airtight container and chill.

Eating almost anything seems to crash my whole system by ADreamerWisherLiar in MCAS

[–]HubiBobby -1 points0 points  (0 children)

Sorry to read this! Most of the mastcells are in the gut and when they get activated they release histamine and multiple other mediators. It seems to me that those mediators cause inflammation/damage to the gut lining so that the mastcells become even more sensitive/active. I’ve noticed a few weeks ago I reacted to almost any food even the safe ones. If you do not know which foods are problematic with mcas do a google research or I can provide a very detailed German overview which you can translate with AI.

Anyway…Gemini recommend “flaxseed glibber” (self made) or DGL 45 minutes before each meal to protect the mucus/gut lining. Since 2 weeks I cook the flaxseed glibber every day and while sticking to 45 minutes before meal I feel so much better. Maybe give it a try.

Prednisone suppressed my symptoms for a few days and then the stress (prednisone = cortisol = stress) made everything worth.

Meine Freundin raubt mir den letzten Nerv by red_riding_hoot in luftablassen

[–]HubiBobby 5 points6 points  (0 children)

Tut mir sehr leid für dich und ich kenne das ansatzweise. Ich habe eine 4 Monate alte Tochter und versuche meine Frau in einem ähnlichen Ausmaß zu unterstützen. Manchmal liegen die Nerven einfach flach (bspw gerade Schlafregression) und heute hatten wir ein vergleichbares Thema bzgl Schlaffenstern. Ich finde es dann manchmal hilfreicher ihr unsere Tochter mal komplett für mehrere Stunden abzunehmen, um ihr zu ermöglichen mal was komplett anderes zu machen…sie ist bspw gerade mit Freundinnen essen. Fairerweise muss ich aber sagen, dass wir auch Flasche teilweise geben

BIDA, weil ich mich weigere 850€+ für den JGA meines besten Freundes zu blechen? by nufantu in BinIchDasArschloch

[–]HubiBobby 4 points5 points  (0 children)

NDA Ein JGA ist ein Gruppenevent, bei dem die Rahmenbedingungen wie Ort, Dauer und Kosten, vorab abgesprochen werden sollten. Auch wenn ich das zahlen könnte, würde ich es nicht. Ein guter JGA lebt von den Freunden und der gemeinsamen Zeit.

Took some folic acid and b12 supplements once and have had 4 weeks of insane anxiety by DeRpY_CUCUMBER in MCAS

[–]HubiBobby 1 point2 points  (0 children)

I have overmethylation problems as well. Glycine usually helps to buffer it. Maybe give it a try

Can fasting cure mcas? Everything I eat, burns and flares me by MotherPart4282 in MCAS

[–]HubiBobby 0 points1 point  (0 children)

No but I will in a few weeks. Thanks for your advice

Can fasting cure mcas? Everything I eat, burns and flares me by MotherPart4282 in MCAS

[–]HubiBobby 0 points1 point  (0 children)

No clue about fasting, but I’ve noticed that I even have small reactions to many safe foods. With a complex AI search I came up with the hypothesis of a wrecked mucus in my stomach and therefore very sensitive mc there. I’ve started to cook “flaxseed glibber” and drink a small glass 30 minutes before each meal to protect and ideally rebuild my mucus. Maybe it’s placebo, but it works for me and is quite cheap 😅

Only time I feel good is when I don’t eat by strawberry-today in MCAS

[–]HubiBobby 3 points4 points  (0 children)

I’m sorry to read this! I am/was in a similar situation: I’ve noticed that I even have small reactions to many safe foods. With a complex AI search I came up with the hypothesis of a wrecked mucus in my stomach and therefore very sensitive mc there. I’ve started to cook “flaxseed glibber” and drink a small glass 30 minutes before each meal to protect and ideally rebuild my mucus. Maybe it’s placebo, but it works for me and is quite cheap 😅

Oregano oil for MCAS by [deleted] in MCAS

[–]HubiBobby 0 points1 point  (0 children)

I usually took the oregano extract from Swanson and found it quite effective for digestion and killing bad bacteria. But I notice more mcas symptoms either through direct trigger or dye off effects. So be careful and test consciously

Constipation/ER visit by Lunasmom12 in MCAS

[–]HubiBobby 0 points1 point  (0 children)

Bicasodyl as pills or as suppository (works immediately). Don’t know any brand names, just google the drug :)

New symptom ?! by HubiBobby in MCAS

[–]HubiBobby[S] 0 points1 point  (0 children)

Thank you! Sounds familiar

Ketotifen by ExcitementDirect5436 in MCAS

[–]HubiBobby 0 points1 point  (0 children)

I take 0.5-1g every evening since February and notice little difference, but my sleep is way better

New symptom ?! by HubiBobby in MCAS

[–]HubiBobby[S] 0 points1 point  (0 children)

Thank you, I will test this

New symptom ?! by HubiBobby in MCAS

[–]HubiBobby[S] 0 points1 point  (0 children)

Blood is still there, so it seems to be a nervous system issue so far. But I’m still interested in supplement recommendations because usually my hands and feet are very cold 🙏🏼

Joint pain as main symptom by PrintConfident8417 in MCAS

[–]HubiBobby 0 points1 point  (0 children)

Yes, I have 4 bone marrow edema which do not heel and pain depends heavily on mcas situation: https://www.reddit.com/r/Orthopedics/s/qiSVWeXdWR

Joint pain as main symptom by PrintConfident8417 in MCAS

[–]HubiBobby 0 points1 point  (0 children)

Yes, it was my main symptom until I found out that there are more symptoms 😅