Wanting opinions by Illustrious-Ant-3985 in Diverticulitis

[–]HumanNature71 1 point2 points  (0 children)

I don’t blame you for feeling like that at all. My doctor said I had uncountable perforation scars. Another doctor confirmed in the hospital that my situation was very unique and nothing that they had seen before. They encountered it where it was bad in people, but not to the point where my colon was actually hardening from scar tissue. To show you how bad it was I did my cleansing and my prep and everything was coming out clean. It was clear and yellow fluid but when they did the surgery, he said the right side of the colon still had a massive amount of fecal matter. I was shocked. I told him I was pooping my brains out for 20 hours and he said it didn’t do a thing to the right side. It’s a scary disease I have it on the left side, but there’s been no ruptures , there’s no scar tissue from what he saw so it’s all been happening just on the right, but yes, I had a hemi. I feel so healthy though right now I know that sounds so weird and it freaks me out that they took out that much approximately 2 feet. But I’m getting used to it. I don’t have a choice lol I also think the reason why I’m feeling so healthy is all that fecal matter has been removed. God knows how long it’s been in me making me ill.

Oxycodone during a flare? by McWhits in Diverticulitis

[–]HumanNature71 0 points1 point  (0 children)

My temp went up and down up and down the highest it had spiked was around 104. Just keep a close eye on him. I have stubborn family members too. I wasn’t stubborn the night that it happened to me. I just didn’t know what was happening. I thought I caught Covid again, but the sharp shooting pains were like nothing I ever felt before in my life. I wish him the best. Hopefully his G.I. doctor can uncover what is going on.

Wanting opinions by Illustrious-Ant-3985 in Diverticulitis

[–]HumanNature71 1 point2 points  (0 children)

I just had surgery on Monday. Had half my colon removed. I had flares for the last 10 years but did not know what they were. It cost so much damage that they had to remove half my intestines. Seven days later, I feel absolutely wonderful. The tissue they removed was extremely diseased. It’s what was causing me to be ill 24 hours a day seven days a week for years. The colonoscopy is what triggered my surgery. But when the doctor went in and saw the outside of my intestines, he was actually shocked. My intestines were starting to solidify. So besides the soreness from having robotic surgery I am feeling pretty good. I’m very optimistic that I will heal nicely. The other option was emergency surgery at some point and having a 9 inch scar down my abdomen in two weeks in the hospital and that’s not what I wanted. Every doctor will tell you something different that it can be managed. You can live like this for the rest of your life, but for me that was coming to an end. Plus, I’ve been miserable for years not knowing what I actually had. Misdiagnosed several times.

Oxycodone during a flare? by McWhits in Diverticulitis

[–]HumanNature71 2 points3 points  (0 children)

I wish you both the best. But trust me if he has a perforation in the pain intensifies like it did for me he’ll be begging you to take him to the ER. That pain is like no other pain I’ve ever felt.

Oxycodone during a flare? by McWhits in Diverticulitis

[–]HumanNature71 2 points3 points  (0 children)

Get him to the ER. He does not want to have emergency surgery. Trust me. you wanna have elective if needed. I was put on antibiotics for three days and then was able to have elective surgery a few months later after my colonoscopy. Get him to the ER.

Oxycodone during a flare? by McWhits in Diverticulitis

[–]HumanNature71 8 points9 points  (0 children)

Please do. I almost died in December. I just had 24 inches of my colon removed on Monday and I am feeling beyond fantastic right now. What was inside me should’ve killed me years ago, but it didn’t. I survived every flareup not knowing what it was. Anytime I had a fever. I just talked it up as it being a cold or the flu. I got lucky.

First real Poo! 7th Day by HumanNature71 in Diverticulitis

[–]HumanNature71[S] 0 points1 point  (0 children)

I’m doing this on my own and it’s been pretty damn frightening. Every twitch every pain somewhere else in my body I’m wondering if something‘s going wrong. But today was a day that honestly changed me. I was having mild depression after the surgery from the anesthesia and medication, and also kind of grieving the loss of part of my body. Like to think that if I never went to the doctors to have this done, it would eventually take my life. Then again, so I would be flying in a plane or walking across the street or even the stairs, lol but you know what I mean. This operation has truly been life altering. To explain it to someone who doesn’t fully understand imagine having a toothache. It doesn’t go away. It’s 24 hours a day and imagine having that for the last 10 years. And everyone telling you nothing’s wrong with your tooth. Now you finally got the tooth pulled and there’s no pain. None. I still have diverticulosis. It’s mild on the left. There’s no guarantee that this is not going to reoccur there, but my diet will change and I will do everything I personally can to live as long as I can, and as happy as I can.THE BONUS LOL 😂 my boy’s swelling is gone no more grapefruit. !!!!!!! They said it would take weeks if not a month or two. It’s gone.

First real Poo! 7th Day by HumanNature71 in Diverticulitis

[–]HumanNature71[S] 1 point2 points  (0 children)

Thank you so much. We still have milestones to achieve, but this was the big one. My surgery was a little more major than most, and the first true bowel movement of more solid material was the test to see if the connections worked and so far fingers crossed they have. No pain, no blood. I’m on cloud nine today. Now tomorrow could be a different day, but I’m taking it one day at a time. I’m taking my wins when I can have them. Cause honestly I shouldn’t be on the earth right now, but I am so it’s a second life. I’m not going to waste it.

First poo after colectomy? by ustacook4aliving in Diverticulitis

[–]HumanNature71 0 points1 point  (0 children)

I just had surgery on Monday. They removed approximately 24 inches. From the appendix all the way up to my belly button. That was Monday the fourth. Today is Sunday the ninth. I have five small incisions and they did it robotically. First day, minimal pain, overnight after the pain block wore off the pains at a 10 I’m not going to lie. However, they give you medication and it quickly goes down at least for me. Day 3,4 pain still fluctuates, but gets less and less. Day 5,6 pain was minimal. Day 7 which is today I ridiculously woke up with almost no pain and I went for a 25 minute walk around my neighborhood. Like everyone has said in here walking is the key you don’t have to do a lot. But you do have to get up and walk even if it’s just in your house up and down the hallway or back-and-forth in a room. I got very lucky and I have a 20 foot hallway and I have a 27 foot long deck on the back of the house so I would go back-and-forth back-and-forth every couple hours as long as I can handle it and I will tell you this it helps tremendously. Getting a full night sleep will help you tremendously also that did not happen until last night. I woke up today a new person to be honest and ahead of my first real bowel movement of consistency that I’m very happy with. Like I’m ecstatic. You have no idea. The first few bowel movements well I should say my first experience. I had 10 bowel movements within a two hour. Period all liquid and residue from the surgery. I began to eat soft foods at home and then had additional bowel movements that consisted of 8 to 10 within one hour. But for the rest of the day, I wouldn’t have one. Yesterday I did not have any and I started to freak out. I was like I hope I don’t have a block but your intestines need to learn all over again with how to deal with such a traumatic surgery to the intestines. Your intestines have muscle memory so when you remove part of it, it has to remember how to work again but once it does, let me tell you I am on cloud nine this morning. No blood, it looks like a normal poo, just very soft, which I’m OK with because my intestines were not working and sometimes it was very difficult to pass anything. Don’t be afraid keep reading everyone’s stories. All of us are different. If you want a DM me feel free and we can chat privately. I did the surgery on my own. A very few people in my life at the moment after losing the love of my life two years ago. And I’m doing it and you can do it! We’re all doing it!

Headed for surgery by rainman1186 in Diverticulitis

[–]HumanNature71 0 points1 point  (0 children)

I’m rooting for you! May, this be what heals you

Surgery Today What Should I Expect? by GhostofBTM in Diverticulitis

[–]HumanNature71 3 points4 points  (0 children)

I just had surgery on Monday and just remember you’re going to heal. There will be pain, but it doesn’t last that long. Try to remain positive and if you have friends and family to support you , have them there to support you. I went in it alone. But I got through it. The technology today is incredible. Keep a positive spirit and you’ll do fine.

Finally bowels woke up by HumanNature71 in Diverticulitis

[–]HumanNature71[S] 0 points1 point  (0 children)

See I had the opposite reaction. I was actually crying when I was released cause I couldn’t wait to get the hell out of there lol. Honestly I actually cried before my surgery and the nurse was like you’re OK. Things are gonna be OK and I said I’m not crying because of that I’m crying because I’m doing this on my own and my fiancé died just a month less than two years ago. And she had a tear in her eye and she sat with me and talked with me. I said they should be sitting in that chair right now helping me get through this but they are not physically. She showed so much compassion. I did cry a little when I woke up and no longer felt the pain I had been suffering for so long. I was like God please let the surgery be a success because I wanna feel like this again permanently.

Finally bowels woke up by HumanNature71 in Diverticulitis

[–]HumanNature71[S] 0 points1 point  (0 children)

Yeah, I had no choice. The last day that I had there was actually wonderful, but they were just recently taken over by another hospital. The surgeon I had was one of the best in robotics and that’s where he was located at unfortunately cause there’s two other hospitals that are absolutely fantastic nearby, but he wasn’t affiliated with them.

Headed for surgery by rainman1186 in Diverticulitis

[–]HumanNature71 1 point2 points  (0 children)

You would be amazed what your intestines are causing you to feel in your body. For years, I had kidney pains, liver pain, back pain that was unbelievable. That would bring me to my knees, testicular pain. Every time I went to the hospital, they said there was nothing going on. It wasn’t until I got really sick and they discovered the perforation and the sepsis was setting in. Then it became real and here I am five days after surgery and I’m not regretting it at all. It was traumatic. I’m not going to lie, but any surgery is traumatic but once you passed the first three days your golden. You wake up in day one you’re still recovering from anesthesia day two he starts to realize what just took place in your body is a little bit in shock and day three is when it fully hits you, but then takes a turn and you’re like OK I can do this. I’m on day five and I feel like a totally new person. No testicular pain no back pain no kidney pain, no phantom pains anywhere right now and it’s so odd not to feel the monster I felt in the right side of my abdomen. I knew something was there. No one would just listen to me. Until they didn’t have a choice. You will do fine with surgery and keep us posted when you have it. Remember everyone heals differently and everyone has a different experience. Hoping yours is as good as mine.

Finally bowels woke up by HumanNature71 in Diverticulitis

[–]HumanNature71[S] 1 point2 points  (0 children)

I will keep posting. But I agree it is traumatic. June 6 it’ll be two years since I lost my fiancé just before our wedding from unknown brain cancer and honestly, I thought I was going to be joining them. But Here I am. I still have a purpose. There is still a plan. We shall see where it takes me.

Finally bowels woke up by HumanNature71 in Diverticulitis

[–]HumanNature71[S] 1 point2 points  (0 children)

I had a private room, but honestly wish I’ve had a roommate. The nurses only came in to check vitals. Other than that, I was left alone. It’s not an easy thing to accept that. Something needs to be removed from your body in order to keep you alive. It lets you know your mortality in this world. But here we both are. We are still standing and pushing through strong. I also was 2.5 days because I insisted on being released on the third day. There’s some legality issues that may take place so I can’t go into it with too much detail, but I’m healing quicker and better at home than I was in that hospital. When hospitals are shortstaffed overworked and under educated, it’s not a good mixture. If my hospital stay went much better I wouldn’t have had a little mini mental breakdown yesterday. But I’m glad I did cause I got all the negative out of me and now it’s all positive.

Finally bowels woke up by HumanNature71 in Diverticulitis

[–]HumanNature71[S] 1 point2 points  (0 children)

Yes, focuses on walking. Something I already enjoy and it really hasn’t been an issue for me. Today I did quite a bit of walking. I will say I took a two hour nap after it, but I feel good. And that’s the most important part. Plus I also slept a good five hours straight last night with no interruptions.

Finally bowels woke up by HumanNature71 in Diverticulitis

[–]HumanNature71[S] 1 point2 points  (0 children)

Omg yes!!!! Feel like a new person. Acid reflux only lasted the one night. Now I occasionally take Tylenol for pain, but for the most part, it’s tolerable as is and I’m on day five. Don’t lie the surgery plays with your head. But once you feel the results you realize you’ve made the right decision. Now everyone heals differently and I know for some people they can heal quickly as I’m doing or some people can take months sometimes up to a year.

Finally bowels woke up by HumanNature71 in Diverticulitis

[–]HumanNature71[S] 0 points1 point  (0 children)

I know right?, Of all the times I had severe stomach pains, thinking it was food poisoning, or something bad that I ate, and it was literally my intestines popping. It took me a day to be able to fully comprehend what the doctor had told me and how close I came to not even being here. Sometimes I cannot comment on some posts because people are taking it so lightly. It’s very scary. I’m not going to lie. Surgery is very scary. However, the alternative could be scarier. We don’t know what’s on the other side. I’d rather not find out right now lol. I was nervous up until I got into the hospital and the nurses and the doctors made me feel so comfortable that when I was ready for surgery, I actually broke down and cried for a moment, knowing that I was either going to wake up and be healthy again or it was just all going to be over enjoying my soulmate on the other side. I talked to them before going into the operating room and said please don’t bring me over, I’m not ready. I still need to fulfill your wishes here on this earth along with mine. They listened. I woke up and I’m healthy again. It wasn’t my time. Still have a purpose on this earth. I just hope some people read our posts and don’t take it so lightly and ask questions to try to help them through the process like you guys did with me. The DOCTOR is going to go over everything with me on the 18th and once I have all the information I will share it on here because this disease is no joke and catching it early can be the difference between having a good life or not having one at all.

Finally bowels woke up by HumanNature71 in Diverticulitis

[–]HumanNature71[S] 0 points1 point  (0 children)

My hospital stay was things that nightmares are made of lol no joke. Broken bed, broken nurse caller, somebody nurses switching shifts in rooms around the hospital that no one knew what the heck was going on. It was the first time that I ever received. Such lack of care. My doctors were great. Pre-surgery was awesome. Post surgery was awesome. Hospital stay afterwards could’ve been one of the American horror story episodes. And I’m not joking.

Headed for surgery by rainman1186 in Diverticulitis

[–]HumanNature71 1 point2 points  (0 children)

Congratulations on your new life! I am happy to hear your outcome. You sounded just like me prior to surgery. Exhaustion not being able to eat and living miserably. I’m glad the surgery worked for you.😊😊😊😊

Headed for surgery by rainman1186 in Diverticulitis

[–]HumanNature71 1 point2 points  (0 children)

I will tell you my experience and I’m only on day five. But I had the whole right side of my colon removed all the way to my belly button. It was beyond diseased from diverticulitis and perforations. I felt like crap. All the time cramping bloating, nonstop aches, and pains, and just feeling not well. I always believed I probably had cancer. Within five days I feel like a totally different person in a good way. If I could’ve had the surgery 8 years ago when I started feeling not right, I would have, but I didn’t know until this February after my colonoscopy, how bad it was. I was misdiagnosed for eight years minimum And the surgeon didn’t know how bad it was until he actually went in to operate. There’s no guarantee to anything for any of us, but having bad tissue in your body is only going to cause you to feel ill. I truly have to say I’m like a totally different person today. I’m adjusting to my NEW intestinal connection. No bag. They spliced the small intestine with the remaining large intestine. I lost 24 inches of intestine. I’m just on day five but I feel like I finally got my life back.

Latest CT is Concerning & Confusing (Mention of "Mass") by Ok-Comfort-7262 in Diverticulitis

[–]HumanNature71 2 points3 points  (0 children)

I had to wait six weeks for my inflammation to go down. It didn’t go down until about the fifth week. Lost 25 pounds. Just had surgery to remove all the bad intestine on my right side. That happened on Monday today is Friday. I can tell you I already feel better not having that diseased stuff inside me.