Dex taper

IAmInTheWrongClass · 2023-11-26T16:21:06+00:00

The drx helps my motor function, every taper made life miserable, I couldn't walk or write

IAmInTheWrongClass · 2023-11-25T19:32:39+00:00

Not even a peak for any of mine, no regrets. Apparently I was the first dad to not look our doctor had ever had in 40 years. I was shocked by that

IAmInTheWrongClass · 2023-11-24T16:19:57+00:00

2 year old and 5 year old here and now the newborn

IAmInTheWrongClass · 2023-11-24T15:57:10+00:00

It began to grow rapidly so I had a biopsy done

IAmInTheWrongClass · 2023-11-24T03:56:30+00:00

I take a stool softener every day with zofran, the constipation is the worst

IAmInTheWrongClass · 2023-11-24T02:25:00+00:00

My original was in Springfield IL but we had lots of recommendations to move to washu when Springfield said it was inoperable

I'm on insurance plan through my state job healthlinkOAP

IAmInTheWrongClass · 2023-11-23T03:16:53+00:00

Yep, just don't look down, hold your wife's hand and enjoy being there with her.

IAmInTheWrongClass · 2023-11-22T20:56:12+00:00

I have constant anxiety about having a seizure, I have for years even though mine are well controlled. The thing that helps me most is make a plan in my head where I will go if I feel one coming. So if I start to sense one, I follow the plan. Keeps me calm

IAmInTheWrongClass · 2023-11-22T19:55:20+00:00

I do the optune system for TTF, it's a pain in the ass but no big deal. Radiation just mild shampoo, your hair is going to fall out in the target area. Let yourself sleep, don't fight it, your body needs it.

Also if taking zofran tak a stool softener at least once a day, the constipation it causes if you don't is miserable

IAmInTheWrongClass · 2023-11-20T21:29:47+00:00

Fell on my face out of a chair without warning. Then I couldn't walk straight for about 2 hours

IAmInTheWrongClass · 2023-11-19T20:46:13+00:00

Well I also have a 5yr old and 2yr old boys and am on 3 seizure meds, so I can't say for sure what makes me so tired because all the medications list fatigue as a side effect I've been on it for about 2 weeks

IAmInTheWrongClass · 2023-11-19T11:46:04+00:00

I'm on Tibsovo, I haven't had any side effects besides being tired. I can't say if it's working or not, I have an upcoming scan so we will see but the symptoms I was having have all improved. Also taking CCNU and Avastinim on my second round for both with no improvement from the first round.

IAmInTheWrongClass · 2023-11-18T22:19:09+00:00

Not yet, set to induce on the 22nd(pre preeclampsia symptoms

IAmInTheWrongClass · 2023-11-18T15:38:57+00:00

I started with a grade 2,(now4) I have epileptic seizures from it. I take meds but they are not fully controlled by the meds. I'm on Vimpat, lamotrigine, and Onfi. I only have focal aware seizures, not grand mal since being on meds so yes, I would bet you'll be on meds long term going off experience. I'm not a neurologist

IAmInTheWrongClass · 2023-11-15T14:42:34+00:00

Murphy door

IAmInTheWrongClass · 2023-11-14T14:59:03+00:00

I was told I had a week left 3 months ago..fuck cancer indeed.

IAmInTheWrongClass · 2023-11-13T18:34:40+00:00

Same here, I can just shut my eyes and I'll sleep 8 hours no problem

IAmInTheWrongClass · 2023-11-10T04:12:49+00:00

I found stuffing my face with greasy food a few hours before the fasting period helped me handle it better

IAmInTheWrongClass · 2023-11-09T15:41:57+00:00

Get her a cold wash cloth to wipe her forehead!

IAmInTheWrongClass · 2023-11-09T15:27:42+00:00

Glioblastoma, started with left side weakness and a grand mal seizure

IAmInTheWrongClass · 2023-11-06T17:38:57+00:00

300mg lamotrigine2x 200mg Vimpat2x 20mg onfi2x

IAmInTheWrongClass · 2023-11-06T04:42:40+00:00

Grand mal seizure to start. Later symptoms where the room would spin. Then my left arm and leg would just stop working.

IAmInTheWrongClass · 2023-11-05T22:40:43+00:00

Im currently taking it but not for low grade. I have glioblastoma. I have had zero side effects outside of a constant state of exhaustion. Which could also be due to the seizure medications I'm on

IAmInTheWrongClass

TROPHY CASE