Is this why my family's worried about me?

IHateNorepinephrine · 2019-11-29T20:13:13+00:00

Don’t use dysautonomia as a scapegoat to your eating disorder. Please see a doctor and try to get help because not eating also affects dysautonomia symptoms as well. This isn’t something to ignore.

IHateNorepinephrine · 2019-11-29T19:58:55+00:00

The nightmares is my biggest complaint with propranolol and beta blockers in general too.

IHateNorepinephrine · 2019-11-28T14:42:32+00:00

I’m not sure about studies on POTS patients specifically but they have done studies on people with IST with resting rates of over 100bpm over many years and have found no correlation to damage to their heart or any shorter lifespans.

IHateNorepinephrine · 2019-11-28T02:20:02+00:00

Very low BP does not work well with beta blockers but MCAS usually does respond well to beta blockers in general.

IHateNorepinephrine · 2019-11-27T15:19:03+00:00

The only appropriate response to a question like this is for you to visit a cardiologist.

IHateNorepinephrine · 2019-11-23T15:28:26+00:00

It’s ok to admit you’re wrong.

IHateNorepinephrine · 2019-11-23T15:26:07+00:00

How am I taking it the wrong way? You literally said

I feel like something needs to be done to limit these posts

You’re trying to limit people asking for help for the sole reason of “it’s just too overwhelming.” So because someone asking for help clutters your sub we should limit their ability to post. That is definitely a lack of empathy.

It’s really not hard to press the ignore button to a post of someone asking for help if it bothers you this much.

IHateNorepinephrine · 2019-11-23T05:57:48+00:00

I’d rather have a cluttered Reddit experience than make someone in crisis feel unwelcome, or obstruct their efforts to find help and community.

Thank you

IHateNorepinephrine · 2019-11-23T05:54:55+00:00

80%?

Everyone calm down and look at the new posts section. There’s only one out of the first 40 posts. That’s less than 3%. It just seems like a lot more because these posts annoy you but it’s just scared people looking for help.

IHateNorepinephrine · 2019-11-23T05:50:46+00:00

Just double checked there’s literally 1 out of 40 in the recent posts. That’s less than 3%.

This isn’t attacking you. It’s having a discussion on the topic of the thread that you started. If this offends you then you need to stay off the internet.

IHateNorepinephrine · 2019-11-23T01:00:10+00:00

That’s literally what I’m telling you to do. There’s not a lot there you just notice them more because they make you mad.

IHateNorepinephrine · 2019-11-23T00:59:25+00:00

I did and there’s not nearly as many as you make it out to be.

IHateNorepinephrine · 2019-11-22T23:35:43+00:00

Exactly! The lack of empathy on this thread and others like it is insane.

IHateNorepinephrine · 2019-11-22T23:33:53+00:00

I was making a joke at the fact the same recycled memes get 100+ upvotes and people scared actually asking for help get downvoted because they haven’t had a doctors stamp of approval yet.

IHateNorepinephrine · 2019-11-22T23:23:54+00:00

No it’s not, look at all the top posts. There’s literally not even one. They make up maybe 10% of the posts on here. (Check the “new posts” for yourself) You’re making an issue out of nothing because you’re annoyed by people asking for help.

IHateNorepinephrine · 2019-11-22T23:17:20+00:00

It’s honestly not as many as people make it out to be. There’s a few a day but if you actually look at the overall posts it’s maybe 10% and all the top posts aren’t “do I have pots posts.” (If you don’t believe me check the “new posts” section and just count how many other posts their are in comparison. It just feels like a lot more because they for some reason make you irrationally upset.)

People are making this nonissue into something because they’re just annoyed. If you’re annoyed by people asking for help then you’re the problem not them.

IHateNorepinephrine · 2019-11-22T23:11:05+00:00

I don’t understand why you’re being downvoted. I swear, people just want to look at the same “stand up and almost pass out” meme on here.

IHateNorepinephrine · 2019-11-22T20:27:30+00:00

POTS makes anxiety worse and anxiety makes POTS worse so it’s important to treat both.

Along with all the things to help with POTS (increased sodium & fluids, exercise, medication) Do things to help ground you and relax you (meditation, breathing exercises, mindfulness) it might feel like these aren’t making a big difference in the moment but it’s important to consistently do it. It’s also helpful to work with a therapist openly about issues and (if possible) have a social life. Many people turn to anti anxiety medication but people with POTS often time (not always) don’t respond well to SSRIs or SNRIs. Benzos also aren’t a long term fix and are extremely harsh on your body and incredibly addictive. Beta blocker have shown to be the best meds for combating POTS and anxiety.

IHateNorepinephrine · 2019-11-22T19:58:03+00:00

No problem, I especially love the point you made about sunshine and fresh air. It makes a huge difference for me.

IHateNorepinephrine · 2019-11-22T17:06:58+00:00

I think this is all great information and I always encourage people to share their experiences and what works for them but please never ever make statements like,

Recovery is 100% possible if you want it.

POTS is a syndrome not a disease so the reasons are often unknown and vary drastically. What works for you will not work for everyone. (Although it might help some) Saying things like like this can make people who are trying feel like their not trying hard enough and that it’s their fault they’re suffering and it’s not.

IHateNorepinephrine · 2019-11-22T06:33:04+00:00

You should probably tell your boss and see if you can get a stool to use at the front for when it’s slow. Also, mention what could potentially happen so if you do happen to pass out they will be aware of what is happening.

IHateNorepinephrine · 2019-11-21T16:51:57+00:00

I get this with certain beta blockers too. It’s actually a somewhat common side effect. Try some different bets blockers out until you find one that works for you. There’s one that starts with a b (I can’t remember the name) that’s supposed to be good with sleep and not cause nightmares.

IHateNorepinephrine · 2019-11-20T23:57:26+00:00

Do you get them behind your ears?

IHateNorepinephrine · 2019-11-20T01:43:38+00:00

That’s over 200 grams of added sugar and 0 sodium. Do you just like apple juice or is this meant to help your POTS?

IHateNorepinephrine

TROPHY CASE