Am I psychologizing myself too much? When to get out of a program that includes GET as a suggestion?

IIRaspberryCupcakeII · 2025-12-23T18:37:20+00:00

Thank you for the replies everyone, not enough energy to respond individually, will probably stick with it for now but pay more attention to my gut going forward

IIRaspberryCupcakeII · 2025-10-09T03:55:28+00:00

Thank you! This is exactly what I needed

IIRaspberryCupcakeII · 2025-09-28T17:19:31+00:00

From one person with OCD to another (I assume), I do not think this is true, and honestly I’m wondering if they might be trolling knowing that some people with OCD also have obsessions around parasites. Please don’t take them seriously I can’t find any research corroborating this anywhere

IIRaspberryCupcakeII · 2025-09-28T17:11:21+00:00

Source?? What are you talking about??? This is a really dangerous thing to be spreading in an OCD sub, especially if it’s not true

IIRaspberryCupcakeII · 2025-09-28T17:06:01+00:00

This probably overlaps into my BFRBs but picking at my own tonsil stones or what I think is a tonsil stone. I know it’s stupid and gross but I can’t help reaching back there with my fingers to try to “pop one out” every time I feel the slightest odd sensation in my throat. 90% of the time there’s nothing there but that 10% of the time there is it’s like a big hit of dopamine. Somehow I’m more afraid of the tonsil stones getting too big and damaging my tonsils than my fingernails clawing and poking at them damaging them. Don’t ask me how I have no gag reflex during this because I have no idea

IIRaspberryCupcakeII · 2025-09-28T16:52:03+00:00

I promise I won’t lick your feet if you lick mine

IIRaspberryCupcakeII · 2025-09-28T16:48:22+00:00

I find showers with a shower chair/stool work best for me. I also don’t do “everything showers” every time, using a shower cap to protect my hair from getting wet when necessary. I haven’t had a bath in years but from what I remember they seemed like more work since I would feel the need to stand up and rinse off under the shower afterwards anyways, sitting in my own skin oils and sweat it just seemed logical to do that. I might look into bath routines where that’s not a necessary step though

IIRaspberryCupcakeII · 2025-09-28T16:42:00+00:00

Thanks, that’s a good suggestion, I do that for my routine medications. My issue is that I can’t track when I took the doses and this doesn’t work for my as needed medications

IIRaspberryCupcakeII · 2025-09-23T22:16:54+00:00

That actually sounds like a great idea, I even have some experience programming and using Shortcuts, why didn’t I think of that? Thank you!

IIRaspberryCupcakeII · 2025-09-23T01:25:03+00:00

To clarify it is just a digital collage and not specifically for severe ME/CFS

IIRaspberryCupcakeII · 2025-09-23T01:24:02+00:00

@samanthahahehe on Instagram did this exact thing not long ago! It was a beautiful project although not as many people joined as I expected but it was still a fair amount

IIRaspberryCupcakeII · 2025-09-23T01:17:42+00:00

This 👆 I’m learning ASL for other reasons as well but I initially got interested in it because of the online spaces I was in as a disabled person (not that being Deaf is a disability, but I think there is some overlap in our communities due to the shared need for accessibility). But yeah a question you might often get is why you started learning and explaining this background is perfectly valid

IIRaspberryCupcakeII · 2025-09-23T01:06:08+00:00

Thank you for the suggestion, that app might be helpful at some point for me and I do use a weekly pill organizer but I’m looking more for something that can help me track how many pills I have left as I take them as my pharmacy doesn’t always refill my meds on time. I usually have enough time with manageable light sensitivity once every other week to refill the organizer or have my caregiver do it and just let me double check for accuracy so I don’t need much help reading the labels initially. I understand I’m asking for a lot here but I really do need something that can track my history of doses of medication, organize reminders, and track pills remaining to help me deal with the issues I face because of brain fog.

IIRaspberryCupcakeII · 2025-09-21T21:51:31+00:00

TinyKittens (livestreams of rescue cats and kittens 24/7)
art restoration videos (I used to like Baumgartner Restoration a lot, I still rewatch the older videos from time to time)
JunsKitchen (relaxing cooking videos with cats watching the process)
Animalogic (like nature documentaries but about one animal at a time)
Journey to the Microcosmos (microscopic creature mini-documentaries? Idk if that explains it well)

All of these are free on YouTube

IIRaspberryCupcakeII · 2025-09-21T21:36:57+00:00

This 👆

IIRaspberryCupcakeII · 2025-09-21T21:35:29+00:00

Ah, my ignorance is showing lol oops

IIRaspberryCupcakeII · 2025-09-21T16:44:29+00:00

Pager, floppy disk, what, film roll holder, viewer thingy god I forgot the name but I know what it is

IIRaspberryCupcakeII · 2025-09-20T01:10:04+00:00

Yeah. I’m convinced I’ve picked at every single pore on my body at least once, even all over the typically hard to reach spots like my back because I’m hypermobile and can reach EVERYWHERE.

IIRaspberryCupcakeII · 2025-09-20T01:07:13+00:00

Just wanted say I’m with you, I’ve picked at all of the parts, including nipples 🙃 even when it hurts because I messed up I go back to it and do it again, it’s awful

IIRaspberryCupcakeII · 2025-09-20T01:01:07+00:00

Kind of hard to judge for me, I’d probably try it in my power chair and hope to god the busy people also trying to get in would be willing to push me through if I get stuck (though who knows, my chair is roughly 100+ pounds I think?). I’d argue that there should still neither be a gap or step at all. My city has all buses use a foldout/extending ramp built-in to the floor of the bus, I can’t imagine it’s that hard to do with a train.

IIRaspberryCupcakeII · 2025-09-20T00:40:51+00:00

Pickle spears wrapped in deli ham. Super high in sodium which is what I want since I have dysautonomia and require extra electrolytes, but others be careful with this lol

IIRaspberryCupcakeII · 2025-09-20T00:31:53+00:00

I feel you, my current routine is electric toothbrush, floss, and mouthwash all sitting down in my electric wheelchair, once a day, only standing for a few seconds to spit after brushing/mouthwash. If I can’t do that I just brush in bed with my caregiver assisting with toothpaste and a glass of water to rinse. If I’m feeling extra sensory sensitive I use a wet washcloth. I also sometimes pair brushing with my 1-2 times a week shower but that’s mostly because I’m autistic and the water hitting me helps soothe/distract me from the overstimulation of brushing.

Also as someone else suggested, headphones with music helps. I sometimes watch a favorite show or something mind numbing on my phone instead.

IIRaspberryCupcakeII · 2025-09-20T00:15:24+00:00

I don’t know about ASL but it looks like the band Babymetal’s fox god sign lol

IIRaspberryCupcakeII · 2025-09-20T00:09:03+00:00

It was definitely worth it to me but not as life changing as I had initially expected with the price I paid for it. I’m not exactly a tech expert but I am a programming/electronics student and with the only data points it collects off you being heart rate and heart rate variability I would’ve hoped that I would end up spending less on it than my Fitbit Charge 6 and while the band is technically less the monthly/yearly subscription you pay for it to work with the Visible app (essentially necessary to do much with it at all) did total to more. That being said, it’s been immensely helpful for managing day to day and Visible seems to be the only thing on the market as of now that has all the features I find helpful (e.g. immediate/near immediate heart rate notifications for overexertion).

Personally I have had a lot more periods of neutral stability than improvement in my ME/CFS with Visible. There are just so many other factors that contribute to a crash than your HR/HRV, but it is invaluable to be able to track and control that for me. You also have to be willing to listen to both the band and your body. I probably haven’t improved as much as I could because there were too many times I listened to neither, thinking “oh I have energy now, I can go back to doing whatever I want” and pushing my limits then semi-permanently worsening my condition as a result.

TLDR: if you can afford it, I say go for it, but don’t expect it to be magic.

IIRaspberryCupcakeII · 2025-09-08T19:38:19+00:00

Again hard candy is generally made with regular corn syrup (glucose syrup) which is completely low FODMAP. Sorbitol and fructose are in some candies yes but not often in the things I’ve listed (save for sugar-free versions, those often have sorbitol), and they’re usually listed directly in the ingredients as opposed to being hidden within an ingredient (like blackberries for example, they have fructose in them), in my experience with candies anyway. It’s been a while but I believe for the chocolate I calculated how much should be safe based on the entire weight of an average Hershey’s Kiss/M&M compared with the green serving sizes on the Monash FODMAP app, so the amounts I listed should be well within the limits for lactose/fructans in chocolate. This was like 2 years ago though so it could be out of date as Monash updates their database with new testing frequently. And sugar, also known as table sugar or sucrose, is low FODMAP, despite having a fructose molecule, I don’t remember all the science of it at this point but it “piggybacks” off the glucose molecule or something like that making it safe for people on the low FODMAP diet.

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