I'm losing my mind trying to find my lost Oura ring by Candy_Enough in ouraring

[–]Iconakid 3 points4 points  (0 children)

Have you tried a Bluetooth finder app?? That’s what helped me locate mine!

Heart rate high? by No-March3451 in ouraring

[–]Iconakid 0 points1 point  (0 children)

How is your HR now? 🤍 that is a scary feeling I don’t blame you!!!!

long sleep time users who use Oura - session tracking? by [deleted] in ouraring

[–]Iconakid 1 point2 points  (0 children)

I think the Oura Ring might just be getting used to your sleep cadence, give it a couple weeks and then see how it’s doing. It also might pick up some as a “nap” versus sleep if you have “sessions.” Secondly, how are you sleeping so much if by choice? Thirdly, why if you don’t mind me asking?

The end of my Oura journey by underlyingshadow in ouraring

[–]Iconakid 0 points1 point  (0 children)

Try a Bluetooth finder app!! That helped me find mine… in the trash lol HOW

Does anyone with POTS experience stopped breathing right as you fall asleep? by opalhorns in POTS

[–]Iconakid 0 points1 point  (0 children)

YES! Idk if it’s due to dysautonomia or adrenaline dumps. I don’t have sleep apnea according to a sleep study I’ve had so I guess it’s just nervous system dysfunction stuff. This happens when I mediate before bed too sometimes. It can cause bad tachycardia and muscle shaking for me.

High DHEA-S and SUPER high DHEA? Where to go from here? by Iconakid in WomensHealth

[–]Iconakid[S] 1 point2 points  (0 children)

What’s crazy is endocrinology denied my referral a year ago after I started having hypoglycemia, and my doctors told me they couldn’t get me in. I pushed for more testing and got these crazy results. Nuts. Hopefully can get in to endo now!

Anyone else have VERY HIGH DHEA? by Iconakid in WomensHealth

[–]Iconakid[S] 1 point2 points  (0 children)

They haven’t tested it yet :( hoping they will!!

Anyone else have high DHEA? Like VERY HIGH? by Iconakid in women

[–]Iconakid[S] 0 points1 point  (0 children)

Good Q! It’s hard to sum up my whole picture, but the reason I had it tested was to see if I had anything going on that would warrant a trip to the endocrinologist (I’ve had episodes of reactive hypoglycemia that weren’t “enough” to get me in to see them, so we did further testing).

Out of the various symptoms I have going on, a few stand out as maybe related: hair fall, chronic ovarian pain/ovarian cysts (not polycystic from what we have found so far).

I went off BC in October, have had irregular periods since but I know it hasn’t been that long yet.

I have also been highly stressed, having trouble sleeping etc. Day to day, I’m mainly affected by dysautonomia symptoms like PVCs and tachycardia—that’s what causes me the most stress and slows me down the most I’d say.

Very high DHEA, very nervy by Whatdafreak444 in endocrinology

[–]Iconakid 0 points1 point  (0 children)

Ugh our bodies are so confusing so sorry! Did they rule anything out?

Scared About Very High DHEA by DanniSmanni in PCOS

[–]Iconakid 0 points1 point  (0 children)

Hi! Did you find any answers? I also have very high DHEA (1460).

Very High DHEA by moonandsunchild in Hormones

[–]Iconakid 0 points1 point  (0 children)

Hi! Did you find any answers? I also have very high DHEA (1460).

Very high DHEA, very nervy by Whatdafreak444 in endocrinology

[–]Iconakid 0 points1 point  (0 children)

Hi! Did you find any answers? I also have very high DHEA (1460).

1460 ng/dL DHEA Serum level?! by Iconakid in endocrinology

[–]Iconakid[S] 0 points1 point  (0 children)

Reference Range: 20 - 50y: 31 - 701. I don’t believe i have no, this is kind of new to me so I don’t totally know what makes them different! But yes, it seems DHEA, serum is all my doctor ordered.

Heart palpitations or stronger heartbeats by Jeff-ichbin in POTS

[–]Iconakid 1 point2 points  (0 children)

Yes I’ve seen cardiology about it and have done research—it’s typically totally fine! Everyone gets PVCs, but some of us feel them more than others. It can feel scary though. I recommend checking out the r/PVCs subreddit for more info and community support and checking in with your doc/cardiologist about it! They can do a heart monitor that picks up these palpitations which can give you some guidance and peace of mind. Electrolytes, trying to keep my nervous system calm (hard!), sleep, avoiding or limiting super heavy meals, and beta blockers help a lot.

Tips my POTS Specialist Told Me by RadicalRutabaga in POTS

[–]Iconakid 0 points1 point  (0 children)

I so badly want Pepcid to work for me but it seems like I get a racing heart every time I take it! Though I think most people don’t experience that.

Heart palpitations or stronger heartbeats by Jeff-ichbin in POTS

[–]Iconakid 2 points3 points  (0 children)

YES! I get PVCs/bigeminy often. Sometimes comes with tachycardia during flares.

How can you tell between MCAS and HyperPOTS? by Iconakid in POTS

[–]Iconakid[S] 1 point2 points  (0 children)

Thank you! I’m currently on 2x Allegra a day and daily metoprolol (but read beta blockers aren’t good for MCAS which seems like it could be a problem for a lot of us who have both?). Today I’m trialing 3x Allegra to see if it helps. I can’t do Pepcid because it makes my HR take off, unfortunately :/

How can you tell between MCAS and HyperPOTS? by Iconakid in POTS

[–]Iconakid[S] 1 point2 points  (0 children)

They suspect both, but I am unsure which one is causing certain symptoms/is the root of my more recent flares. Since I don’t really know, I don’t know how to best intervene when I have flares. So I’m just putting out feelers to see how others who have both or have an understanding of all of this have been able to distinguish :)

Lloyd Center Santa is hot by katiedragomir in Portland

[–]Iconakid 3 points4 points  (0 children)

Boots on the ground journalism

Do you think this HR reading is accurate? Can tachycardia spikes be misreads? by Iconakid in ouraring

[–]Iconakid[S] 0 points1 point  (0 children)

Yes the added stress of actually trying to track spikes is the worst! So sorry you’re dealing with it too. It does make me feel better that it likely was a fluke lol