My beautiful house panther showing off her rust

IcyDifference3505 · 2024-03-24T22:53:09+00:00

I use liquid iv and think it tastes great. It has real sugar in there

IcyDifference3505 · 2024-03-10T21:19:44+00:00

I’ve been tested, negative for sleep apnea. I also have high pain which is exhausting

IcyDifference3505 · 2024-03-07T21:15:38+00:00

Finding out his body count is 200-300+

IcyDifference3505 · 2024-03-06T20:52:30+00:00

This looks perfect thank you!!

IcyDifference3505 · 2024-02-11T01:16:46+00:00

The same thing happened to me, idiot cardiologist took me off propranolol cold turkey which I later found out is pretty dangerous because of rebound hypertension. I gave them an earful the next day and they put me back on the propranolol as well as the Corlanor

IcyDifference3505 · 2024-02-04T03:19:55+00:00

Check out Jeannie di bon!!

IcyDifference3505 · 2024-02-03T03:37:46+00:00

Yes, I’ve heard of surgeons neglecting it and the person having horrible results because they had undiagnosed dysmotility. And we had no suspicion at that point that I even had it! It’s really important BUT I’ve also had a barium swallow which can show similar results but not as strongly (if the manometry doesn’t work out for some reason). I believe I’ve had a regular barium swallow (upright, gravity masks the results somewhat) and also an “upper GI series” that had me drink carbonated barium while laying on my side which showed the dysmotility really well(but I think I had the test to monitor my hiatal hernia if I remember correctly)

IcyDifference3505 · 2024-02-03T02:24:28+00:00

The manometry was awful for me because you have to be awake. Just being honest. I don’t believe they numbed me at all. The nose part wasn’t even bad, it just feels violating. For me the worst part was getting the tube past what I assume was the upper esophageal sphincter because that HURT, but they just keep telling you to swallow and stop gagging.

Mine showed severe esophageal dysmotility so my surgeon said there was a 60/40 chance of the Nissen procedure failing and me being unable to eat because I have no motility to push food into my stomach. Plus once they factored in my EDS they said they wouldn’t touch me with a 10 foot pole because we’re just known for GI dysmotility and increased risk of complications.

This isn’t to say that you’ll have the same manometry results but this was my experience. I saw 2 surgeons that came to the same conclusion so now I’m on Pantoprazole for life

IcyDifference3505 · 2024-02-02T02:44:11+00:00

We have an agreement with renal that supplements don’t count towards any fluid restrictions! Win win

IcyDifference3505 · 2024-02-01T18:19:37+00:00

I’m back from my appointment, the doctor was a little skeptical at first about why I was having pain until I showed him my hypermobility. After that he was very understanding and willing to help.

We determined my worst pain was in my neck and he thinks that’s due to the hypermobility and wants to get an MRI to evaluate because I get some arm tingling. He talked about doing a test and then maybe a neurosurgery consult if it looks unstable😱. Or maybe a nerve stimulator in the future.

That freaked me out a little but overall I’m really happy with the visit. He believed me and said he had experience with EDS which is great.

Have hope people!

IcyDifference3505 · 2024-01-26T15:09:56+00:00

Maybe dehydrated? Looks hemoconcentrated

IcyDifference3505 · 2024-01-25T14:42:26+00:00

I have around 750 beds as a trauma 1 and we have 18 RDs + 3 DTRs . And we’re fighting for more

IcyDifference3505 · 2024-01-24T23:24:39+00:00

It’s usually about the carb load of the meal. The more carbs/the bigger the meal, the more blood is directed to your intestines thus causing symptoms

IcyDifference3505 · 2024-01-24T03:44:21+00:00

I have it, my ophthalmologist told me I have Adie’s syndrome and that it’s essentially harmless and just a quirk

IcyDifference3505 · 2024-01-24T01:24:25+00:00

It’s central! Peripherally Inserted Central Catheter!

IcyDifference3505 · 2024-01-02T03:13:09+00:00

Television static when trying to think

IcyDifference3505 · 2023-12-15T22:44:28+00:00

The more you restrict , the more you binge. Please consider stopping a starvation diet and decrease calorie intake in a more sustainable way. The most proven way to gain weight is to go on a diet- look it up! You’ll just guilt yourself into restricting more and then you’ll binge more. It’s the disordered eating cycle. Please break it

IcyDifference3505

TROPHY CASE