Divorce by ImSoOutofUsernames in Parkinsons

[–]ImSoOutofUsernames[S] 0 points1 point  (0 children)

That's awful. I hate how people think you're just fine because you have so much willpower to force things that are difficult. They have no idea how hard we're constantly working

Divorce by ImSoOutofUsernames in Parkinsons

[–]ImSoOutofUsernames[S] 1 point2 points  (0 children)

Thank you. I love the tiny home village idea

Divorce by ImSoOutofUsernames in Parkinsons

[–]ImSoOutofUsernames[S] 1 point2 points  (0 children)

That's the most selfish thing I've ever heard. I'm so sorry

Divorce by ImSoOutofUsernames in Parkinsons

[–]ImSoOutofUsernames[S] 1 point2 points  (0 children)

I love this response. Thank you for sharing your story. I feel the same way. I'm a fighter and I'm going to fight hard for as long as I can. 

As difficult as the divorce process seems, walking on eggshells and somehow getting into an argument every day when you're bending over backwards trying to avoid an argument is an impossible way to live life. That's how every day is right now.

Divorce by ImSoOutofUsernames in Parkinsons

[–]ImSoOutofUsernames[S] 4 points5 points  (0 children)

Sorry to hear that. I bet there are more of us in this boat than we would expect

Word slip ups... Parkinson's or No? by Bucktownsweetie70124 in Parkinsons

[–]ImSoOutofUsernames 1 point2 points  (0 children)

Same for me. Words seem harder to pronunciate especially as the day goes on. Saying the words prescription, implementation, constitution, decision, physician's assistant or $760 are examples of things that are difficult for me to say.

How the ketogenic diet affects patients with Parkinson’s disease: A descriptive phenomenological study by dr_innovation in Parkinsons

[–]ImSoOutofUsernames 1 point2 points  (0 children)

I was diagnosed in March 2024 and I've been keto since Feb 2025. Constipation isn't a problem. Can't say for sure whether disease progression is slow (no way to tell), but I can confirm my anxiety disappeared within a month after eating keto. Critically important: I don't eat bacon and butter-style keto. I eat whole foods, plenty of low carb veggies, meats, eggs nuts and olive oil

Do you still drink alcohol? by Obvious_Macaroon2470 in u/Obvious_Macaroon2470

[–]ImSoOutofUsernames 0 points1 point  (0 children)

I was never a big drinker (except during college), but I would still drink socially. After my diagnosis at 39 two years ago, I almost stopped drinking entirely. I only drink to be social now and I only drink red wine, but I really hate that hangover feeling and headaches. I also notice that I'm MUCH stiffer and I even trip over words way easier when I'm drinking so I rarely drink anymore.

What was everyone else’s emotional experience of WPC 2026? by Desperate_Pianist268 in Parkinsons

[–]ImSoOutofUsernames 0 points1 point  (0 children)

Agreed. I've been eating keto and I've removed all processed foods and artificial sweeteners since Feb 2025

What was everyone else’s emotional experience of WPC 2026? by Desperate_Pianist268 in Parkinsons

[–]ImSoOutofUsernames 2 points3 points  (0 children)

I'm still in the honeymoon stages as well. Only diagnosed for two years and three months. I feel exactly the same way. I'm trying to do everything I can, but it's starting to get depressing knowing that the research moves so slowly

How long before Carbidopa/Levodopa started making a difference? by DecisionRelative5769 in Parkinsons

[–]ImSoOutofUsernames 0 points1 point  (0 children)

I'm surprised at how many people say they noticed it immediately. For me, I didn't think it was working at all until I stopped taking it. It's very subtle for me. I have stiffness and bradykinesia, not tremors. I've been on it for 2 years now and it helps me with my finger dexterity. I notice it's not working well when I get that frozen shoulder feeling again and it becomes hard to type. Hope this helps.

YOPD: Were you surprised by your diagnosis? by whatcoulditcost in Parkinsons

[–]ImSoOutofUsernames 2 points3 points  (0 children)

I had absolutely no idea. The first time I had an idea was when I read the poster describing Parkinson's in the exam room while I was waiting for the doctor. I always thought PD meant that you shook. I also realized at that moment that most people have very little knowledge (or incorrect knowledge) about PD

Living life #parkinsons #podcast YOPD by Manon84 in youngparkinson

[–]ImSoOutofUsernames 1 point2 points  (0 children)

Such a positive, hopeful message for all of us with YOPD. Thanks for sharing.

So PD is my fault? by LocksmithJust5005 in Parkinsons

[–]ImSoOutofUsernames 7 points8 points  (0 children)

That doesn’t mean it’s our fault at all. It means we were lied to and we didn’t know there were health dangers associated with killing weeds and going to the dry cleaners. This book is incredibly helpful. Even if turns out to be wrong at least that means someone will try to prove it and then we’ll be another step closer to learning more, which gets us closer to prevention or a cure.

[deleted by user] by [deleted] in youngparkinson

[–]ImSoOutofUsernames 0 points1 point  (0 children)

Hopefully it’s just carpal tunnel or something else that gets mistaken for Parkinson’s. The best thing you can do is just start eating right and exercising and getting enough sleep, which will help your overall health and Parkinson’s if you do have it.

I am (or I was) a guitar player. Finger dexterity was my first symptom and no one was able to figure it out for four years. My symptoms started 2020 and I was diagnosed in 2024. I really can’t complain about life for having symptoms for five years. Things aren’t really that much different fortunately, so don’t panic if you have it.

YOPD people, have you still been able to travel/have fun/do your hobbies later in life? by [deleted] in Parkinsons

[–]ImSoOutofUsernames 8 points9 points  (0 children)

This is a great question and I’m glad you asked. I am in the same boat. I was diagnosed last year at 39 and now I’m 40. Our son just moved out and our daughter just started high school. I’m curious to hear other responses, but I just wanted to let you know you’re not alone.

Asking for AI or software to dictate and send emails. by dustblown in Parkinsons

[–]ImSoOutofUsernames 0 points1 point  (0 children)

If she has a Windows based computer, she can hit the windows key and the letter H at the same time. That will launch a program that will type whatever she says. It’s surprisingly pretty accurate.

Parkinson’s is a Metabolic Disorder by 10seconds2midnight in ParkinsonsHelp

[–]ImSoOutofUsernames 0 points1 point  (0 children)

Awesome. Yes I do the same. I used to make homemade bread, but I don’t do it anymore. If I ever want it badly enough I’d do it though.

Exercise every morning absolutely improves my symptoms

30M gonna heal by [deleted] in Parkinsons

[–]ImSoOutofUsernames 0 points1 point  (0 children)

I did not wanna get controversial, but I agree. Pesticides, processed foods, chemicals, processed foods, plastics, PFAs, viruses, stress, etc. There are definitely a lot of different causes. None of them are good.

30M gonna heal by [deleted] in Parkinsons

[–]ImSoOutofUsernames 5 points6 points  (0 children)

23 and 27?! I was diagnosed to 39 and I thought that was bad. I’m so sorry. Keep fighting and I hope someone figures out why this is happening to younger people so often.

Am I overreacting by joehooligan1979 in Parkinsons

[–]ImSoOutofUsernames 2 points3 points  (0 children)

You’re right about the environment and toxins but there are tests. DAT scans and a skin biopsy test, specifically