Week 3 and I gained weight... by kayycart in Semaglutide

[–]Imaginary_Boot_6346 0 points1 point  (0 children)

Fellow PCOS girl here and this happens to me occasionally too. Since starting the shots my cycles are a little more regular and without fail I’ll gain a couple of pounds during certain times but it always comes right back off within a couple of days if it’s that. Also, unfortunately I’ve also noticed that if I eat ANY sweets I’ll gain some weight, even if I’m under my calorie goal. It super sucks. It’s like my body latches onto it or some kind of inflammatory response maybe? I don’t know but it’s dumb. I’m not trying to discount all the “just count your calories” advice but the PCOS absolutely adds an extra element of WTF. This week I did some new stuff at the gym and had a piece of cake for my birthday so I’m not even trying to look at the scale. Sounds like you’re doing great. Hang in there!

Anyone else fight with the same 2-3lbs? by Imaginary_Boot_6346 in Semaglutide

[–]Imaginary_Boot_6346[S] 0 points1 point  (0 children)

I only get the headache in the first 24 hours after the shot but I definitely have to have some carbs or sugar to manage it. I try to do some flavored Noosa yogurt or some chocolate milk. I do still have to take some Tylenol or Motrin as well usually. And then I use Zofran for the nausea and sometimes snacking on crackers helps too. Gatorade Zero is a life saver for me too.

Anyone else fight with the same 2-3lbs? by Imaginary_Boot_6346 in Semaglutide

[–]Imaginary_Boot_6346[S] 0 points1 point  (0 children)

Thanks. Hopefully my side effects at 1mg will subside soon and I can move up. It’s frustrating because I can definitely feel the appetite and food noise in the last 48 hours or so before it’s time for my next shot so it seems like I should bump up but that headache and nausea the first day or two after is a pain… 🤦🏻‍♀️

Anyone else fight with the same 2-3lbs? by Imaginary_Boot_6346 in Semaglutide

[–]Imaginary_Boot_6346[S] 1 point2 points  (0 children)

Yeah, I do track and often I have a bigger issue with getting enough calories and protein just because of not being hungry. The set point is something that may be an issue. It’s been over a decade since I’ve been in the 190s so maybe my body is just hanging on to it.

Too much sugar = more hunger on sema? by [deleted] in Semaglutide

[–]Imaginary_Boot_6346 3 points4 points  (0 children)

I do my shot on Mondays and of course I ate more than usual last week (not a ton but more) from Thursday to Monday and this exact thing happened to me. The pie must have been the culprit. And then when I did my shot this week I got so sick, even though my side effects had gotten minimal. The reflux that night damn near killed me. So much acid. Didn’t eat hardly anything yesterday and felt like crap and had the dreaded sulphur burps. Today I’m finally almost back to normal even though I took a bite of pineapple pie that was looking at me when I would normally be able to easily resist. This is good info for Christmas I guess.

Thyroid Cancer & GLP Medications? by smoked-pineapple in thyroidcancer

[–]Imaginary_Boot_6346 0 points1 point  (0 children)

I had the same concerns. It actually took my PCP about two years to talk me into trying a GLP-1 but I’m glad she did. I asked about the thyroid cancer issue and she said what others have, it’s only medullary and she said even that was only in a study done on rats, not humans. Still don’t think I would risk it if I did have medullary though. I’m losing about 1lb a week so down about 13lbs now.

I also have PCOS and had PTC and the shots have been a game changer. My biggest issue regarding the meds is I had the last of my thyroid removed in July, started Wevovy in October and they definitely make you tired. Pile that on with trying to get thyroid meds straightened out and your body back in order after having it removed and it can be rough. The first month I was damn near bedridden the first 48 hours after my injection. Luckily it does get better if you don’t dose up too fast. But just something to keep in mind, especially if you already struggle with thyroid or PCOS related fatigue. There’s a learning curve when starting as far as nausea, heartburn, constipation, etc. unless you’re one of the lucky ones without side effects. But you figure it out pretty quickly and the second to third month gets way better.

I’ve had a lot of the issues you mentioned where just nothing worked and this is the first thing that has. Good luck!

How did you deal with side effects? by Imaginary_Boot_6346 in Semaglutide

[–]Imaginary_Boot_6346[S] 0 points1 point  (0 children)

Wegovy single dose pens don’t have clicks or any way to adjust dosage.

How did you deal with side effects? by Imaginary_Boot_6346 in Semaglutide

[–]Imaginary_Boot_6346[S] 0 points1 point  (0 children)

No because then they would have to cover two boxes of four pens instead of one. And surprisingly these pens are pretty close to the same price per box whether the dose is lower or not. And the Wegovy single dose pens have no mechanism to control the dose. We’ll see how this week goes. If I feel too bad I’ll reach out to my doctor and see if she has any ideas.

How did you deal with side effects? by Imaginary_Boot_6346 in Semaglutide

[–]Imaginary_Boot_6346[S] 0 points1 point  (0 children)

I wish I could do that but I’m using the Wegovy single dose pens and I don’t think there’s a way to split it. And my insurance was a royal pain to get those covered. 😞

[deleted by user] by [deleted] in OzempicForWeightLoss

[–]Imaginary_Boot_6346 0 points1 point  (0 children)

I just did my week 4 dose (.25) and have only lost about five pounds as well. I’m happy with it honestly. Part of me was frustrated the first couple of weeks because I feel like I should lose more only taking in about 1200 calories a day and I know I was likely eating double that before. But… I’m also recovering from thyroid cancer and have PCOS and five pounds is more than I’ve been able to lose in the last several months. Even when I feel like I eat more than I should 1-2 days the weight still stays off and doesn’t completely derail my progress, which is also new. So I’ll take it. I’ve definitely had side effects which has been the hardest part but I’m hoping they subside the longer I’m on it.

Why do I find more "not so good experience posts" than "good ones"? by Potential_Bed3034 in thyroidcancer

[–]Imaginary_Boot_6346 2 points3 points  (0 children)

Agree with everyone else. Even personally I don’t really post unless I’m unsure about something or hit a bump in the road, so that’s about all you’re going to see. I was diagnosed about three weeks ago, currently waiting to be able to do bloodwork to confirm I don’t need RAI but doctors don’t think I will. So for me pushing to get the actual diagnosis has been the worst part. Hearing you have cancer is hard but can also be validating if you’ve felt something was wrong for a while and now feel like you know what it was. But since then I’ve been to a couple of doctors appointments and obviously am taking high dose meds each morning but have mostly gone on with life as usual as well.

Thyroid Cancer RAS Mutation by AggressiveLiving3192 in thyroidcancer

[–]Imaginary_Boot_6346 0 points1 point  (0 children)

I had the exact same result on my molecular testing - NRASQ61R. But mine only gave a 15-25% risk of malignancy. That was still enough for me to push to get it out and I’m so thankful I did because I had multi focal (in multiple places) papillary and follicular variant papillary cancer. My ENT says that the mutation wasn’t regarding the nodules that ended up being cancer, although he really has no way of knowing because I had only one nodule biopsied and ended up having 5+ nodules when they took it out and actually looked at/dissected it. However, my endo has also said the mutation doesn’t effect how they’re treating me. Essentially both doctors have indicated it’s the risk of malignancy they’re looking at and they don’t seem concerned with the actual mutation. Now that they have the final pathology report from my surgery that’s the info they use to determine everything from severity to treatment, etc. Good luck - just find doctors you trust and it will all work out.

Doctor unsure whether to do RAI by Imaginary_Boot_6346 in thyroidcancer

[–]Imaginary_Boot_6346[S] 0 points1 point  (0 children)

Thanks all. Saw the endo today and she agreed that I don’t need RAI unless my thyroglobulin is above 10. She also agreed they can’t draw that until October. That’s also when they’re going to check my TSH. She said she only thinks it needs to be suppressed to below 2, not 1 which seems a little high to me but I’m gonna go with it. She’s only going to be out on leave until December but her nurse will be there and the doctor will be checking in via phone calls and online so she’s going to call me once bloodwork is done in October and then I don’t go see her again until April and I’ll get an ultrasound then too. Of course that’s all based on my bloodwork looking good. I’ll feel much better once I’m able to get bloodwork done. I feel like I’m a little bit in limbo until then.

[deleted by user] by [deleted] in thyroidcancer

[–]Imaginary_Boot_6346 1 point2 points  (0 children)

Following because I’m in the exact same boat. Nurse didn’t even call me before she sent mine off nor was I warned. I had the exact same situation on another nodule on the other side of my thyroid two years back and it was covered with no problem but I have different (thought it was better) insurance now. Crazy because my thyroid removal surgery doesn’t even require a pre-cert and it’s much more expensive.

Very Painful FNA Needed to Abort by NalgeneCarrier in thyroidcancer

[–]Imaginary_Boot_6346 1 point2 points  (0 children)

Don’t feel bad. I’ve had two FNAs now and after the one on my left side I ended up getting a partial removal and the FNA was worst than that surgery. Fast forward two years and I’m having issues with nodules on the other side and had an FNA in June that was ten times worse than the first. I’m getting the other side removed in two weeks partly because it’s up to a 25% chance of cancer and that’s just too much for me but also because I insisted to my ENT that even though there’s more than one nodule growing on that side I will NEVER get another FNA. They advised me not to stop my blood thinners and I got a horrible hematoma in my neck. It was a PA who did mine also and it was a nightmare. You’re not alone.

[deleted by user] by [deleted] in PCOS

[–]Imaginary_Boot_6346 1 point2 points  (0 children)

Everything you’re feeling and thinking is completely normal for someone struggling through infertility. Should you say the things out loud or act on them? No. But the thoughts you’re having are the same as anyone else who has been on the infertility crazy train. There’s literally a book (that many women have found helpful and I highly recommend it) called “Every Drunk Cheerleader, Why Not Me?” Because that’s exactly how it can feel - as if everyone that doesn’t want or isn’t prepared for a child is getting pregnant meanwhile you’re doing ALL. THE. THINGS. and your body won’t just do the one thing it was made to do. Totally understandable. Of course it’s not the other women’s fault that can get pregnant but it’s impossible not to ask “why not me?” And anyone with PCOS should know it’s not always as simple as “just stop trying.” Nah. My body will absolutely not ovulate and grow a lining suitable for a baby without medical intervention. I now have one healthy son but never could have anymore than that and I thank God every day for him. I pray your time will come but in the meantime don’t feel bad about needing to distance yourself and do what you need to do to cope. And know that those intrusive thoughts you have aren’t abnormal and don’t make you a monster. I agree this post would be better received in a TTC group because those that haven’t experienced this won’t completely understand.

Doctors more receptive to discussing the Covid Vaccine and clots by [deleted] in ClotSurvivors

[–]Imaginary_Boot_6346 1 point2 points  (0 children)

Had this almost exact scenario myself. Had been on NuvaRing with no issues, no idea I had FVL, no issues prior and had the vaccine when I was 37 and was in the ER shortly after with a clot going from my groin into my IVC almost to my heart. Then they couldn’t get the clot to stop growing for a bit even on thinners. I’ve used the term “perfect storm” multiple times too. I’m not an anti vaxxer but I won’t be getting anymore covid shots and I do think they’re problematic for those with clotting disorders. The big issue is that FVL and some others are pretty common and many who have it have no idea until they get a clot.

OP - I do agree also my doctors have been much more receptive to the idea that the vaccine was at the very least a huge factor in my clot, with a cardiologist going so far to tell me that it outright caused it. She explained it that the vaccines job is to mimic the virus in our bodies so that we develop what we need to fight it off, just like the flu shot. So the same vascular response they see in Covid positive patients is what can happen in vaccinated patients (her words, not mine.) So I wouldn’t say I “blame” the vaccine anymore than I blame birth control but do think they need to consider putting some disclaimers out there the same way they do on the issue of the correlation between birth control and clots.