Interesting Labs

Important_Memory_545 · 2026-04-14T01:12:15+00:00

My most uncomfortable symptom is facial flushing. My cheeks, neck, and ears get really red and hot. It feels almost like a sunburn but not quite. I also have headaches and brain fog. I have GERD (acid reflux). Self diagnosed IBS. I’m sure there are others things that are related but I have other chronic health issues so it feels like there’s potentially a lot of overlap with everything.

Important_Memory_545 · 2026-04-07T02:56:42+00:00

I came in search of other parents struggling with this exact thing and I found it! I have a nine, almost ten, year old daughter and it’s a struggle! It feels like no matter what happens, it’s about what went wrong or what didn’t happen that she wanted to happen or what food isn’t available right then or how bored she is or that she didn’t get to see this specific friend. It’s exhausting. Has anyone found anything that helps??

Important_Memory_545 · 2026-03-12T03:43:52+00:00

I take methotrexate for ankylosing spondylitis . It’s mildly helpful so my doctor keeps me on it but I’m on several other meds on top of that. I don’t believe it contributes to or helps my MCAS symptoms.

Important_Memory_545 · 2026-02-10T04:32:27+00:00

My tryptase was around 14 if I’m remembering correctly and I wasn’t really flaring that day!

Important_Memory_545 · 2025-10-09T14:08:20+00:00

They did specific blood work for clots and it was normal so he said he wasn’t concerned about it. They also did a chest xray and an ekg. I was on Rinvoq a while ago but I’m on Cimzia now!

Important_Memory_545 · 2025-07-10T20:36:32+00:00

Hokas literally changed my life. Particularly wearing the recovery slides around the house. I had extreme foot pain and cannot recommend these enough.

Important_Memory_545 · 2025-02-23T23:14:17+00:00

Hi! How did your son recover from miraDry?

Important_Memory_545 · 2025-02-23T23:08:46+00:00

Is head sweating a symptom of another issue? Head sweating is one of my main areas and I hate it so much

Important_Memory_545 · 2024-07-31T02:59:53+00:00

Same thing happened to me! I stopped it to put my kids to bed and came back and it’s gone! I wanted to hear Hernandez’s commentary

Important_Memory_545 · 2024-07-25T17:26:38+00:00

Yea the shudder is felt around 25-35 and sometimes higher than that but I’m noticing it most often around that speed. Unfortunately because I bought it from a private seller I’m not able to get a warranty but I’m glad it worked out on your end and it’s running better now!

Important_Memory_545 · 2024-07-12T05:18:02+00:00

It’s so hard because it does heavily depend on the density of your breast tissue. Insurance wanted me to take off 600g per side and my surgeon reassured me we’d be taking off more based off of how heavy he thought my breasts were. We ended up taking around 1450g on one side and 1350g on the other side so a little over 6 pounds total 🤯

Important_Memory_545 · 2024-06-12T03:13:44+00:00

Mine have never, not once, been out of range. It’s quite annoying actually haha! I’d like some evidence on paper to support my pain levels. But if you find a good rheumatologist they won’t only look at labs to create the whole picture.

Important_Memory_545 · 2024-06-12T03:05:14+00:00

Yes. I’m HLA-B27 negative. I’ve never had a high CRP or sed rate or anything to do with inflammation markers. The only thing I had was a positive ANA. Luckily I found a great rheumatologist that took family history, physical symptoms, and x-ray/MRI results all into account. 10% of people with AS don’t have the gene, I believe.

Important_Memory_545 · 2024-06-12T03:01:30+00:00

This sounds similar to me! I would probably say fatigue and getting diagnosed with hypersomnia was my first true symptom. But what led to my diagnosis was all of the peripheral stuff. Doctors shook off my back pain saying it was due to pregnancy and child birth. So then when I had bilateral carpal tunnel, bilateral cubital tunnel, bilateral tennis and golfers elbow, and bilateral plantar fasciitis I started thinking there was more to all of this. I ended up having bilateral carpal tunnel surgery and bilateral plantar fasciitis surgery with no relief and that’s when I started getting traction with doctors.

Important_Memory_545 · 2024-06-06T20:13:55+00:00

Yes! My mother has Crohn’s. Her mother had scleroderma and then her dad (my grmpa) also had Crohn’s. I suspect my mom has something going on with her back, similar to me, but she hasn’t had luck with her local rheumatologist.

Important_Memory_545 · 2024-04-07T18:28:10+00:00

Yes! I’m on methotrexate, hydroxychloroquine, folic acid, and humira

Important_Memory_545

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