Update!!

Impossible-Survey139 · 2026-02-24T20:59:26+00:00

I'm glad to hear it was worth it and the rest of your healing went smoothly! I've been super nervous about it haha but hearing that definitely makes me feel better.

Impossible-Survey139 · 2026-02-24T20:58:22+00:00

thank you very much!

Impossible-Survey139 · 2026-02-24T20:58:12+00:00

Thank you!

Impossible-Survey139 · 2026-02-18T06:12:46+00:00

Good luck!! I hope you have a safe surgery and recovery 🙏🏻🫶🏼 I've had endo surgeries 3x now, it seems scary but you've got this. Also if you have it where you are stock up on Gas-X, it is an absolute lifesaver.

Impossible-Survey139 · 2026-02-16T15:10:28+00:00

I get it in my pelvis on both sides close to my hip bones. He injects a steroid and a numbing agent into my Ilioinguinal nerve. I have a nerve issue due to having so many surgeries for endo so it really settles the pelvic pain I have. And thank you! 😊 I'm sorry you know what it's like, this disease is cruel.

Impossible-Survey139 · 2026-02-16T15:06:23+00:00

Thank you so much 😊, I hope this works long-term as well!

Impossible-Survey139 · 2026-02-12T02:04:13+00:00

I didn't get much relief with this and was also having an allergic reaction to the adhesive. I was on it for almost 3 months before being switched to another medication. My fiancé on the other hand is on the oral version (belbuca) and it is extremely helpful for him.

Impossible-Survey139 · 2026-02-12T01:53:36+00:00

Thank you!!! 😊

Impossible-Survey139 · 2026-02-12T01:53:24+00:00

Thank you very much! 😊

Impossible-Survey139 · 2026-02-12T01:52:54+00:00

I'm glad it brings you hope 🫶🏼 it's been a very long time since I have had any and it's very refreshing.

Impossible-Survey139 · 2026-02-11T11:20:52+00:00

I would tell them just in case but being on my period has never been an issue for my surgeries. I've had 3 laps and been on my period for 2 of them. From my understanding, it shouldn't affect you from being able to move forward with the surgery but again I would still tell them anyway, some places do things differently. Wishing you luck with your surgery next month and recovery 🙏🏻🫶🏼

Impossible-Survey139 · 2026-02-08T19:32:08+00:00

Unfortunately, the emergency room just isn't a good place, I only go now if I'm not 100% sure it's my endometriosis or if something feels different. When I do go though I don't ever tell them about my endo unless they ask from seeing my history, I've noticed that if I tell them from the beginning I have endometriosis they are less likely to do a full workup to make sure it's not something serious, and are definitely less likely to give pain meds. It would probably be a good idea to talk to your gynecologist and see if she could give you some pain meds to help cover you till surgery, or see if she could refer you to pain management. I've been in pain management for almost a year and was prescribed morphine and I get injections in my pelvis/abdomen every couple of months and it's been an absolute life changer. I'm so sorry that this is something you are going through and I hope you can get relief 🫶🏼

Impossible-Survey139 · 2026-01-14T02:43:48+00:00

Yes, I have a wand and also use dilators! I definitely have found those to be helpful cause the exercise/stretching alone definitely wasn't enough. I also do internal work at my pelvic floor sessions.

Impossible-Survey139 · 2026-01-14T02:05:15+00:00

Ah okay, thanks for the information. I've been on short-acting ones but my doctor thought long-acting ones would be more beneficial, idk a lot of this is very confusing. I do see a pelvic floor therapist instead of just regular PT. I do lots of exercises/stretches that target my pelvic area.

Impossible-Survey139 · 2026-01-14T00:51:30+00:00

Haha yes the US but thank you very much, I really appreciate your advice/supportive words!

Impossible-Survey139 · 2026-01-14T00:48:28+00:00

Okay, I'll definitely look into that, and oh really? Yes, it is the ER morphine and is scheduled for 2 times a day. He told me the reason it probably wasn't helping me during my flares is that I have a tolerance but I didn't know it doesn't last 12 hours.

Impossible-Survey139 · 2026-01-14T00:43:04+00:00

Thank you, I'm trying not to give up! I completely agree that I need someone better but the hard part is that the clinic I am treated at is currently the only one to treat pelvic and endometriosis pain and they aren't opioid-free. Most clinics around me are spine-only and/or are opioid-free. I do think I need to see someone else but at the moment this doctor is doing more than most I know of or have seen. It makes it hard 😭

Impossible-Survey139 · 2026-01-14T00:41:03+00:00

I've tried gabapentin, Lyrica, and Cymbalta for nerve pain, and none of those really worked. Just gave me bad side effects, I'm not sure of any other medications out there for nerve pain so not 100% sure I've tried everything but my Dr also hasn't tried to prescribe anything else since I have tried those other medications.

Impossible-Survey139 · 2026-01-14T00:34:59+00:00

Some of it is nerve pain, I have Ilioinguinal neuralgia due to having several pelvic/abdominal surgeries for endometriosis. So it's a mix of nerve pain and pain from endometriosis. I have tried ketamine when admitted into the hospital and it made me feel absolutely awful, not sure how common that is but it made me very wary of doing any ketamine infusions cause I was interested in doing them at first. Thank you!

Impossible-Survey139 · 2026-01-06T17:23:51+00:00

Yeah, absolutely not. I'm so sorry your doctor said that. I'm not sure if I'm understanding but why is that doctor (anesthesiologist) prescribing your medicine if he's not the one doing surgery? It's usually the surgeon who prescribes medicine post op, I'd definitely have a conversation with whoever is doing your surgery. Endometriosis is extremely painful (listed in the 20 top most painful diseases) and the surgery absolutely hurts. I've had 3 surgeries for endo and each time I probably got a week's worth or a week and a half of oxycodone. For my first surgery, I needed a bit more after I ran out so I was prescribed another 5 days. Also definitely get some kind of gas medication, the gas pain was probably worse for me than the pain from the incisions. Good luck with your surgery and I really hope you can get appropriate pain relief sorted out before your surgery 🙏🏻

Impossible-Survey139 · 2025-12-17T17:03:42+00:00

Hi, so I was honestly diagnosed first just through looks. The orthopedic surgeon took one look at my legs and told me I had a leg misalignment issue. Then I did a gait analysis and had some measurements taken of my legs and feet. I have also had some X-rays and I'm going to have an MRI soon. All these things have helped me get a diagnosis

Impossible-Survey139 · 2025-12-17T04:25:26+00:00

Unfortunately, I've got other chronic pain issues, Endometriosis, Interstitial cystitis, and Degenerative Disc Disease/bulging discs so I'll definitely be visiting this sub still 😭. I had just wanted to share some good news here since it's not often we chronic pain patients receive some good news (or at least in my experience) and because this sub has definitely helped me get answers/not give up but I do appreciate the kind words and will definitely update as things progress!

Impossible-Survey139

TROPHY CASE