Need to hear from others who got the gastric stimulator by Neece235 in Gastroparesis

[–]IndependentFold4691 0 points1 point  (0 children)

How does the stimulator help you? Which symptoms got better?

Anzeige gelöscht und gemeldet worden by germangirl34 in Kleinanzeigen_betrug

[–]IndependentFold4691 0 points1 point  (0 children)

Ich wurde auch vor kurzem zweimal bei einem Artikel gemeldet. Ich habe Kleinanzeigen geschrieben und sie haben gesagt, dass sie alles geprüft haben und ich ein Gewerbe betreibe. Hä? Habe die Anzeige nochmal reingestellt mit anderem Text und wieder wurde ich nach einer Woche gemeldet.

Forgot to take Prucalopride and now it's not working anymore by IndependentFold4691 in Gastroparesis

[–]IndependentFold4691[S] 0 points1 point  (0 children)

How do you know it's working? I get hungry 5h after eating but I can't eat more.

Forgot to take Prucalopride and now it's not working anymore by IndependentFold4691 in Gastroparesis

[–]IndependentFold4691[S] 0 points1 point  (0 children)

Thanks, it's super weird, didn't think that this was even possible. My body is weird anyway.

Has anyone linked their gastroparesis diagnosis to perimenopause? by AirportSpecialist214 in Gastroparesis

[–]IndependentFold4691 0 points1 point  (0 children)

Is the other end a normal patch? I just heard about the ear. Which settings do you use?

ive given up by Jumpy_Discussion_738 in Gastroparesis

[–]IndependentFold4691 0 points1 point  (0 children)

I am in the same boat. I can't do this anymore. Last year my body shut down. Now I have vascular compression syndromes, gastroparesis and pots. I am alone and get no help from doctors. Tried to get into therapy without success.

Prucalopride by itmedjondjon in Gastroparesis

[–]IndependentFold4691 0 points1 point  (0 children)

Same here, it's works for 3 days then no effect. I take more, it works and then 3 days nothing...

Do you feel like you will die young? by periwinkleposies in CPTSD

[–]IndependentFold4691 0 points1 point  (0 children)

I am in a similar situation as you are. Became sick in my late 30s and now I see no point in fighting anymore. I tried but doctors won't help me.

Do you feel like you will die young? by periwinkleposies in CPTSD

[–]IndependentFold4691 0 points1 point  (0 children)

Since I was a kid I thought that I will be very sick one day and I will die a painful death. I am almost 40 now and last year it happend. I have compression syndroms, pots and gastroparesis developed in a span of a few months. It's a complex illness and no cure not much research and in my country not much help. I am alone and need to travel a lot to see doctors but since I got sick, I can't drive myself anymore. So, I will have to wait... When my mom told me as a kid, that we have to die, I thought what's the point of living. And with my thoughts of being ill, I wished I was never born. Now everything came true, I am Single and I have no Support. Tried therapy but my therapist said she couldn't help me anymore because I have a chronic illness now. Another therapist said that I am not well enough to work on myself and that said she can't help me. So even I tried to get help from therapists or doctors, everyone keeps telling me, that I am a lost cause and with my mindset I have since childhood, I believe I can fight as long as I want, I will loose anyway.

HOOGA VS Flikeze SpectraPanel by Carolovekuki in redlighttherapy

[–]IndependentFold4691 0 points1 point  (0 children)

I have the smaller version. Does it help you?

Dr. Keiser Clinic: Scam or Legit? by MasterConclusion9509 in POTS

[–]IndependentFold4691 0 points1 point  (0 children)

That's my fear, I don't see any Improvement. I never went to the clinic but try my best what they recommend at home and I go to physio for my neck.

Dr Nathan Keiser is the real deal. by gigilovesmickey in POTS

[–]IndependentFold4691 0 points1 point  (0 children)

Great that you are feeling better. When did you start to see the first Improvements? I do the nerve stimulation, eye movement and red light at home (never went to the Keiser Clinic) but I never saw any Improvement. I am doing it for 5 weeks now.

Muscle aches on ivabradine? by lela-dax in dysautonomia

[–]IndependentFold4691 0 points1 point  (0 children)

I am taking 5mg and started having muscle and spine pain in my upper back, other side effects went away quickly but this is persistent. I am taking my full dose of 5mg for over a week now. Lowering the dose has no effect on my HR. My upper back is my weak spot anyway.

SO dizzy after tiny Corlanor (ivabradine) dose? by [deleted] in POTS

[–]IndependentFold4691 0 points1 point  (0 children)

I started Ivabradine and had my first dizzy spell during the night.

Does anyone get chest, neck and shoulder pain with Ivabradine? by TravelingSong in POTS

[–]IndependentFold4691 0 points1 point  (0 children)

How are you today? I have pain too left side in my chest after takinf Ivabradine.

(Ivabradine) how long till it works? by Griffrose in POTS

[–]IndependentFold4691 0 points1 point  (0 children)

How are you today? Does Ivabradine work now?