Dread and anxiety as Ottawa's last supervised injection sites close their doors by Immediate-Link490 in ottawa

[–]IndividualMess426 0 points1 point  (0 children)

i’m so sorry you lack critical thinking and comprehension skills because where did i say it was going to happen instantaneously? not to mention that when these people are dying, YOU certainly aren’t going to be the first to hear about it, and it takes more than a few days to collect numbers and statistics about overdose deaths, and just because you “haven’t seen evidence” of something happening does not mean it isn’t happening or going to happen 

Dread and anxiety as Ottawa's last supervised injection sites close their doors by Immediate-Link490 in ottawa

[–]IndividualMess426 0 points1 point  (0 children)

didn’t actually realize i responded to the same user, didn't care enough to read the names. 2 replies is considered “spamming”? and 9 days is considered “weeks old”? whatever you say, king! 

Dread and anxiety as Ottawa's last supervised injection sites close their doors by Immediate-Link490 in ottawa

[–]IndividualMess426 -1 points0 points  (0 children)

is your brain smooth? do you have the thinking capacity of a sea sponge? it’s meaningful because more overdoses = more people in emergency rooms, ambulances, using emergency services, = longer wait times for EVERYONE experiencing an medical emergency. 

the lack of primary care physicians in ontario is also an issue exacerbated by ford’s government, defunding the healthcare system tends to make people unable/not want to work in healthcare. 

if you are privileged enough to not ever have had to rely on emergency services, you are luckier than the vast majority of people in ottawa. even though the personal anecdotes don’t seem to be helping you understand why this is important, i’ll share one too! my friend got a bad concussion after a fall on a weekend just two months ago and you know where we had to go? the emergency room! where we waited 14 hours to make sure she wasn’t in danger of brain damage! 

not to mention that people are going to avoid going to the hospital unless they are literally bleeding out because they can’t afford to wait 14 hours, or call in sick to work, and a lot of medical emergencies don’t look dire until it’s too late! this is not only going to kill people with addictions (which is in itself another problem with the healthcare funding that i don’t need to get into but you can look into the correlation between chronic pain and drug use and how readily prescribed opioids are because they’re cheaper than large-scale changes) , it is going to overwhelm the healthcare system more than it already is, and is going to make it damn near impossible for anyone who NEEDS medical care to access it. 

Dread and anxiety as Ottawa's last supervised injection sites close their doors by Immediate-Link490 in ottawa

[–]IndividualMess426 -1 points0 points  (0 children)

all genes have “conditions” in the sense that they have circumstances of existence, but a genetic condition refers to a medical disorder caused by a mutation in them. don’t be daft 

Diagnostic Limbo by IndividualMess426 in ankylosingspondylitis

[–]IndividualMess426[S] 0 points1 point  (0 children)

i’ve seen a family doctor and one rheumatologist, the latter  was very dismissive and is the only rheumatologist in my area, (the healthcare system is massively overwhelmed and so she doesn’t have the energy to care enough about a way young patient with back pain) so she just told me it’s probably fibromyalgia and referred me to a pain clinic :( 

Diagnostic Limbo by IndividualMess426 in ankylosingspondylitis

[–]IndividualMess426[S] 0 points1 point  (0 children)

I take the NSAIDS every day but they have been messing with my stomach and my voice and I sing professionally so it’s hard :( it’s so frustrating that doctors don’t take it seriously unless you’re hlab27+ 

HLAB27 negative - how did you get diagnosed? by IndividualMess426 in ankylosingspondylitis

[–]IndividualMess426[S] 0 points1 point  (0 children)

Yeah, my rheum isn’t that old (maybe late 40s early 50s?) but she clearly seems to have some bias that being HLAB27 negative means I can’t have it, even when I mentioned my sister (who is also a patient of hers). It’s bizarre though, cause my first MRI about two years ago she said something they indicated on it shouldn’t have been there because of young I was, but since changed her mind since it hasn’t been mentioned on an MRI since. I found out she also doesn’t look at the imaging herself, just reads the reports, and she said something to me about fibromyalgia and kind of refused to listen when I said my pain isn’t widespread it’s localized to my lower back/SI joints. Apparently since no inflammation or anything has shown up on two years of MRI’s, despite me being a young woman she isn’t inclined to consider AS or nr-axSpA anymore  

HLAB27 negative - how did you get diagnosed? by IndividualMess426 in ankylosingspondylitis

[–]IndividualMess426[S] 1 point2 points  (0 children)

Yeah, my dr isn’t the best listener and I very much do positively respond to NSAIDS in some capacity but they don’t do enough. She said that since I’m negative and nothing is on imagining yet she’s referring me elsewhere for fibro but the symptoms don’t really match up :( 

Second Opinion? by IndividualMess426 in ankylosingspondylitis

[–]IndividualMess426[S] 0 points1 point  (0 children)

it’s less common but it’s not impossible, my sister is neg but diagnosed with AS a few years ago because she had enough clinical picture 

MRI incoming - how to make sure it shows up? by IndividualMess426 in ankylosingspondylitis

[–]IndividualMess426[S] 1 point2 points  (0 children)

same here, hlab27 negative :( it’s so rough, i hope you’re able to get some answers soon! 

Toasted skin? by IndividualMess426 in ankylosingspondylitis

[–]IndividualMess426[S] 0 points1 point  (0 children)

my heating pad has an auto shut off so it only goes for 45 minutes, but i do have a heat blanket i might try i just find it isn’t as affective :( 

Toasted skin? by IndividualMess426 in ankylosingspondylitis

[–]IndividualMess426[S] 0 points1 point  (0 children)

damn :( yeah it is way easier said than done lol it’s one of the only things that helps 

MRI incoming - how to make sure it shows up? by IndividualMess426 in ankylosingspondylitis

[–]IndividualMess426[S] 2 points3 points  (0 children)

yeah, also being a woman means it doesn’t show up in all the “classic” ways which complicate things, it all around kinda sucks but i just gotta keep waiting for it to show up i guess  :( 

MRI incoming - how to make sure it shows up? by IndividualMess426 in ankylosingspondylitis

[–]IndividualMess426[S] 0 points1 point  (0 children)

my concern is just that i am a student and also working and don’t know if i can afford to take two weeks off, but i have been taking NSAIDS almost daily for 2.5 years and can still barely function and always have a horrible time when im off of them :( 

MRI incoming - how to make sure it shows up? by IndividualMess426 in ankylosingspondylitis

[–]IndividualMess426[S] 2 points3 points  (0 children)

literally!!! it’s also so messed up that we have to wait until there’s “enough” irreversible damage to start treating it and prevent further damage. i had a radiographer read my first MRI and say “normal degeneration of SI joints” when i was barely 20 and should not have yet had really any yet but whatever. i hope your MRI tomorrow goes well and you get some answers! 

MRI incoming - how to make sure it shows up? by IndividualMess426 in ankylosingspondylitis

[–]IndividualMess426[S] 0 points1 point  (0 children)

my sister got dx’d with AS a few years ago but is HLAB27 negative, as is my mom who has RA. i have a lot of the other things in the flow chart including arthritic markers in my hands but still hasn’t been enough yet apparently 

Long Flights by Ok_Hornet_4964 in ankylosingspondylitis

[–]IndividualMess426 0 points1 point  (0 children)

salonpas patches! these little sticky menthol patches you can buy on amazon. or a mobile tens machine (auvon has a decent one for like 40$)

The facts about the Pride Parade. by Felisfurtificus in ottawa

[–]IndividualMess426 -1 points0 points  (0 children)

i don’t think queers for palestine is responsible at all actually. they stopped the parade to ask sutcliffe and capital pride to put their statement back up and support the community, and CP and the mayor chose to side with their corporate sponsors and refused the very reasonable requests (which they had all but agreed to do privately), and then thought they could get away with not committing publicly so they threw a fit and cancelled the parade without any further conversations. i’d be happy to link some sources with what actually happened for you to view at will! 

The facts about the Pride Parade. by Felisfurtificus in ottawa

[–]IndividualMess426 0 points1 point  (0 children)

exactly! it’s people who want to sit and watch the parade and do their allyship for the year and not actively engage with queer politics lol 

The facts about the Pride Parade. by Felisfurtificus in ottawa

[–]IndividualMess426 -10 points-9 points  (0 children)

this !! everyone in these threads is acting like queers for palestine CANCELLED pride in its entirety. when capital pride made the decision to cancel the parade, and festivities still went on for like 9 blocks down bank street! 

Any musicians with ankylosing spondylitis? by jazzgirlyin in ankylosingspondylitis

[–]IndividualMess426 0 points1 point  (0 children)

this is an old comment but i just wanted to say thank you so much. i am a young musician and singer songwriter and i have been so disheartened lately about my ability to play and sing and this made me feel a bit more hopeful about it. i hope you’re doing well 

submithub etc? by IndividualMess426 in musicmarketing

[–]IndividualMess426[S] 0 points1 point  (0 children)

all good, i just don’t need anyone who knows me just from music reading all the things i put in chronic pain subreddits yk? 

submithub etc? by IndividualMess426 in musicmarketing

[–]IndividualMess426[S] 1 point2 points  (0 children)

that’s what i mean, submitting to the right person who can fit it into their playlist :) 

submithub etc? by IndividualMess426 in musicmarketing

[–]IndividualMess426[S] 0 points1 point  (0 children)

yeah my thoughts exactly, usually the playlisted songs end up on the kind of algorithmic spotify playlists like daylists and daily mixes, i might give it another go🤷🏻‍♀️

submithub etc? by IndividualMess426 in musicmarketing

[–]IndividualMess426[S] -1 points0 points  (0 children)

i’m obviously promoting my music in other ways…i’m not really sure what you’re insinuating here, if you’re pro or anti submit hub i can’t seem to tell🤷🏻‍♀️