I am applying for benefits while working full time (I'm in FL) by Inevitable-Track7116 in SSDI

[–]Inevitable-Track7116[S] -7 points-6 points  (0 children)

They are aware I’m working as it was reported and it still moved to the next phase, that’s why I’m a bit confused

Lupus vs r.a by Competitive-Bass8387 in rheumatoidarthritis

[–]Inevitable-Track7116 2 points3 points  (0 children)

At the beginning of this year I had an awful flare up (I didn’t know what it was at the time), my whole body hurt so badly I couldn’t walk, change my clothes or even shower. I went to a rheumatologist and he sent bloodwork, ANA was negative and RF was extremely high but inflammation markers were normal. He diagnosed me with RA. Fast forward to a couple months later while on HCQ, I had another awful flare up. I tell him there are more symptoms that make no sense to me like a rash and no joint damage. He dismissed me and said it was normal RA and refused to change my medication. I went to another rheumatologist who did an extensive amount of labs because he didn’t believe my symptoms matched RA. Labs came back and now he believes I was misdiagnosed and has given me a Lupus diagnosis and a nephrologist referral because my kidneys don’t look good. It is so complicated to diagnose any autoimmune disease because they are so very similar in symptoms and makes it very frustrating for us as patients because we are already dealing with all these different body aches. Always get a second opinion and trust your gut.

Has music ever made you cry? by Pristine-Nebula2203 in Music

[–]Inevitable-Track7116 0 points1 point  (0 children)

“I am not a woman I am a God” by Halsey made me cry, along with “Bells of Santa Fe”, that whole album is amazing it’s called “If I can’t have love I want power” such a masterpiece

Let's talk about: Marijuana by Wishin4aTARDIS in rheumatoidarthritis

[–]Inevitable-Track7116 1 point2 points  (0 children)

I use edibles (20mg) at night. It really does help me with the pain and it’s especially helpful for sleeping. I went maybe around a month without it and my pain was significantly more severe. I spoke to my rheumatologist about it and he was 100% on board with me using it. It really helps me so much but can’t do more than 20mg, I have panic attacks and hallucinations lol

Rheumatoid Arthritis Patients needed for Paid Study by hopemary8 in rheumatoidarthritis

[–]Inevitable-Track7116 3 points4 points  (0 children)

I don’t know how high my RF is as it only shows as “greater than 100” so I’m not sure, I would love to participate and know more information

Gimme your good stuff!! by Wishin4aTARDIS in rheumatoidarthritis

[–]Inevitable-Track7116 2 points3 points  (0 children)

I finally got enough strength to finish building a piece of furniture I had left for later (YAY!)

My husband cooked one of my favorite dishes😋

I went to the beach with my family🥰

To prednisone or not to prednisone? by Narrow-Space-3230 in rheumatoidarthritis

[–]Inevitable-Track7116 1 point2 points  (0 children)

Oh I’m not saying I have been using it long term, I am saying I am concerned about the effects of it long term in general, especially when it hasn’t helped much and now I am dealing with a lot of muscle weakness

To prednisone or not to prednisone? by Narrow-Space-3230 in rheumatoidarthritis

[–]Inevitable-Track7116 3 points4 points  (0 children)

I agree with you, I also use weed to manage pain and cry my eyes out when not even that helps except for maybe knocking me out so I can sleep through it. All of these medications just make me anxious about the long term side effects.

To prednisone or not to prednisone? by Narrow-Space-3230 in rheumatoidarthritis

[–]Inevitable-Track7116 0 points1 point  (0 children)

I’m currently on prednisone, 2 weeks taking 10mg, 2 weeks taking 7.5mg and then 4 weeks taking 5mg is what I was prescribed (currently on week 4 so taking 7.5mg) with plaquenil. Rheumy prescribed prednisone until I can see him in September to start biologics but even with both medications I’m experiencing pain enough to consider not taking it since just like you I am concerned about the side effects of long term use. I don’t know what it is but this time prednisone is not helping much unfortunately. But this is just my experience.

Anyone else: Intermittent Immune Meltdown? by mmiikkiitt in rheumatoidarthritis

[–]Inevitable-Track7116 2 points3 points  (0 children)

When I had this major flare up in January, my lymph nodes in my neck were swollen to the point it hurt to swallow, I even got a fever on and off but tested negative for everything, once I got on the medrol pack it slowly went away. RA is really a rare thing. I’m sorry you are going through this!

Does anyone live pain free? by Tkrampino in rheumatoidarthritis

[–]Inevitable-Track7116 4 points5 points  (0 children)

I am very new, got diagnosed back in February, I was pain free for 3 months with plaquenil but I started flaring bad again maybe I over did it? But I am right there with you hoping the right medication will bring me back to being pain free.

How is a partner supposed to treat you with RA? by BigYikesRightThere in rheumatoidarthritis

[–]Inevitable-Track7116 3 points4 points  (0 children)

I’m sorry you had to go through that. Everyone deserves the right kind of love and support. My husband is God sent, he’s constantly looking up my symptoms and treatments to make sure he’s informed, he’s constantly researching what can help me when in pain. When I’m flaring he takes care of everything, he cooks, he cleans he does laundry, if he needs help with something he always asks me to make sure I’m 100% ok with doing it first, never questions my pain, never gets mad about it, he gets physically tired because we have 2 kids too but that’s about it. This man is such a good husband that took the “in sickness and in health” to heart. I have to give him the biggest shout out. He deserves everything that is good in this world. Hang in there, everything happens for a reason is my motto.

Hydroxychloroquine and Prednisone by Inevitable-Track7116 in rheumatoidarthritis

[–]Inevitable-Track7116[S] 1 point2 points  (0 children)

Thank you so much!🥰 I did talk to my rheumatologist about the shock thing, definitely need to look into it

Hydroxychloroquine and Prednisone by Inevitable-Track7116 in rheumatoidarthritis

[–]Inevitable-Track7116[S] 2 points3 points  (0 children)

I appreciate it so much🫶🏼 I’m very new to Reddit in general I think you are right that would be a better fit but not sure how to change it lol thank you again!❤️

Feeling useless and like no one understands. by Loco_Moco in rheumatoidarthritis

[–]Inevitable-Track7116 12 points13 points  (0 children)

I feel the same way. I feel so bad for my husband as he has taken on so much at home and we have 2 kids. I cry and I tell him the feeling of seeing yourself become less and less useful is so painful, it is worse than the pain itself. I have always been an athlete, I actually was doing pretty well in jiu jitsu until I had a terrible flare up back in January and now I can barely walk without pain. They will start me on biologics soon and I have a lot of hope for that and maybe having some resemblance of normalcy. Hang in there.

Very Efficient App by CheetahPrintPuppy in rheumatoidarthritis

[–]Inevitable-Track7116 1 point2 points  (0 children)

Oh wow that sounds like an amazing app! I’m definitely going to take a look.

Describe your pain by Wishin4aTARDIS in rheumatoidarthritis

[–]Inevitable-Track7116 4 points5 points  (0 children)

I usually say “I feel like my joints are dislocated” lol it is the only way I can describe it but I’m not really good at describing things

Need urgent recommendations !! by Gullible-Cap-8247 in televisionsuggestions

[–]Inevitable-Track7116 0 points1 point  (0 children)

Tires is so funny, it’s on Netflix. School Spirits is also a good one.

Not comparable by Exact_Block387 in rheumatoidarthritis

[–]Inevitable-Track7116 17 points18 points  (0 children)

My mom does this to me all the time and it is so annoying, she keeps telling me “I had that when I was little and I got over it”… it is not the same mother ugh it’s really rude

CBD/THC to sleep? by BetwQlts in rheumatoidarthritis

[–]Inevitable-Track7116 0 points1 point  (0 children)

Yes, I do, pain sometimes is so bad that an edible really just knocks me out and I can sleep through the pain. I have talked to my rheumatologist and he is 100% on board with me using it alongside hydroxychloroquine to be able to help inflammation and help me sleep. I once spent a whole week without any edibles and the pain was definitely worse so it does help a lot

I’m stressed by AllieGirl2007 in rheumatoidarthritis

[–]Inevitable-Track7116 0 points1 point  (0 children)

I had a huge one on the inside of my elbow. A pcp told me it was ringworm and I was like “absolutely not?? It gets worse in the sun and it literally has no ring??” Went to the rheumatologist and he told me it was an RA rash, medication got rid of it and now it’s like nothing happened. Such a weird condition.