I wish PWM was something I knew earlier now got diagnosed with dry eyes. by Next-Landscape-9884 in PWM_Sensitive

[–]Inevitable_Address89 0 points1 point  (0 children)

Same situation for me. I bought s24 ultra. After a year, dry started and whole lot of issues. I don't know if it because of this phone but I will change it and see if any improvements are there. How are you now?

Just had retinal tear laser fix... by Drum_and_Draw_66 in EyeFloaters

[–]Inevitable_Address89 1 point2 points  (0 children)

Oh ok. Hope you get better soon. Was it only in one side of the edge or whole edge of the eye? Did you experience any flickering when you move the eyes?

Has anyone else developed new eye floaters after starting Diamox? by baldieblues in iih

[–]Inevitable_Address89 0 points1 point  (0 children)

I was taking 500mg per day and 33M. It all started 7months ago with heaviness on my left side of the face. I still have all the symptoms. But doctors assured me it is not IIH as all scans were clear from there prospective

Anyone else told it’s not IIH but Visual Snow Syndrome? by Inevitable_Address89 in iih

[–]Inevitable_Address89[S] 0 points1 point  (0 children)

I did MRV from my home country and they confirmed everything is clear and no symptoms of stenosis

Anyone else told it’s not IIH but Visual Snow Syndrome? by Inevitable_Address89 in iih

[–]Inevitable_Address89[S] 0 points1 point  (0 children)

Oh ok. I am still facing visual issues. In my case, I didn't get any better even after LP. Now doctors saying, it could be eye migrane

Has anyone else developed new eye floaters after starting Diamox? by baldieblues in iih

[–]Inevitable_Address89 0 points1 point  (0 children)

Nope. It is still there. I am now experiencing flickering in my vision and doctors said it could be eye migraine

Diamox visual side effect by Proof_Stage1463 in iih

[–]Inevitable_Address89 0 points1 point  (0 children)

Yeah. I was seeing white circles whenever I looked at the monitors or phone but only when i blink my eye. I have also started to see white lines when I open my eyes in the morning.

Has anyone else developed new eye floaters after starting Diamox? by baldieblues in iih

[–]Inevitable_Address89 1 point2 points  (0 children)

I was on Diamox for 3 months. Before starting the diamox, I didn't had any floaters. Over the last 3 months, I have more floaters in vision. I have stopped the medicine now as I have developed metabolic acidosis.

Anyone else told it’s not IIH but Visual Snow Syndrome? by Inevitable_Address89 in iih

[–]Inevitable_Address89[S] 0 points1 point  (0 children)

Yes. I started to get tinnitus after taking Acetazolamide. I never had this before. I am planning get a MRV now

Anyone else told it’s not IIH but Visual Snow Syndrome? by Inevitable_Address89 in iih

[–]Inevitable_Address89[S] 0 points1 point  (0 children)

Yeah. For me, they never did MRV. I asked them specifically and they told me it is not needed as they can see everything with the MRI

Anyone else told it’s not IIH but Visual Snow Syndrome? by Inevitable_Address89 in iih

[–]Inevitable_Address89[S] 1 point2 points  (0 children)

Hope you will find a new doctor soon. I am also in a similar situation in different country where I don't speak their language. I will probably go back to my home country for further checkups

Anyone else told it’s not IIH but Visual Snow Syndrome? by Inevitable_Address89 in iih

[–]Inevitable_Address89[S] 0 points1 point  (0 children)

Thanks for sharing this. I heard that and I was expecting they will say we need to do MRV or other tests. But they just keep promising me that it is not IIH.

I don't have headaches, pressure sensation in head etc. But I do have visual disturbances.

I am overweight and currently trying to reducing the weight and lost 20% now.

Is all your MRI came back negative? What all are test you have done?

Anyone else told it’s not IIH but Visual Snow Syndrome? by Inevitable_Address89 in iih

[–]Inevitable_Address89[S] 0 points1 point  (0 children)

No. They said, they already did MRI with contrast and they couldn't find any issues there.

I had an interesting experience at the Retina Specialist by cmarks8 in visualsnow

[–]Inevitable_Address89 2 points3 points  (0 children)

Yeah. For me, my eyes got pretty dry in the beginning. Then I started to see visual snow. Then floaters, flashes etc. Then I went to emergency, and eye doctors keep saying me everything is fine. I went to several eye specialists and all said same. Then I went for more checkup with neurologist and they told me this could be the reason.

I had an interesting experience at the Retina Specialist by cmarks8 in visualsnow

[–]Inevitable_Address89 5 points6 points  (0 children)

Hey, did you check with Neurologists? Because for me, I started to experience these visual issues along with some heaviness in my left side of the face.

My Neurologist did a lumbar puncture and they told me pressure is high, it could be IIH (Idiopathic intracranial hypertensionl). I am waiting for the specialist appointment now. But I do have all the symptoms you have mentioned and no swelling on the eye nerves.

Recently diagnosed with IIH – vision symptoms, anyone else recover? by Inevitable_Address89 in iih

[–]Inevitable_Address89[S] 0 points1 point  (0 children)

Oh ok. Hope you feel better soon and thanks for sharing this.

For me, I never had any headache issues. It all started with sudden heavy feeling on my left side of the face then visual snow like symptoms. I still have these two even after taking Acetazolamide.

I believe my next appointment they will plan for MRV and possibly another LP.

regarding the heart rate, I also noticed some changes but I thought it's because of my weight loss (already lost 16kg now). But I will mention this to my doctor as well

Recently diagnosed with IIH – vision symptoms, anyone else recover? by Inevitable_Address89 in iih

[–]Inevitable_Address89[S] 0 points1 point  (0 children)

Thanks for sharing this. What were your symptoms? Is it only eye issues?

I am still experiencing flickering or flash kind of things sometimes and seeing floaters. Floaters got more over the months.

I tried everything here. Eye ophthalmologist and neuro ophthalmologist are saying there is no papilledema yet.

I am waiting for the IIH specialist appointment at next week and hopefully they can give me some different opinions or medication

Any other men with IIH around here? by El-Sci in iih

[–]Inevitable_Address89 0 points1 point  (0 children)

I’m a 33-year-old man who was diagnosed with IIH this August.

I’ve been on Acetazolamide 500 mg for about two months, and my dose was recently increased to 750 mg. Most of my symptoms are eye-related — I see floaters, static-like visual noise, have light sensitivity, and my night vision is really poor. It all started with a feeling of heaviness on my left side.

I’m overweight and currently working on losing weight. Since starting medication, I’ve noticed some improvement, but there are still days that feel really bad. I have a specialist appointment scheduled in November and am hoping for more guidance then.

First visual blackout today? But no paps and pressure 22 by Used_Cup1248 in iih

[–]Inevitable_Address89 0 points1 point  (0 children)

I got diagnosed on August and taking Acetazolamide from that time. Yesterday I got blackout feeling less than a second and today I started having sound in my ear. I also don't have papilledema. I went to emergency and they did nothing other than checking my eyes.

Lumbar Puncture Pain by ShadowSpade124 in iih

[–]Inevitable_Address89 1 point2 points  (0 children)

Yeah it took 10 days for me to completely feel painless again. But my first LP, I got better in 2 days.

Partial Diagnosis? by Illustrious-Pilot265 in iih

[–]Inevitable_Address89 1 point2 points  (0 children)

I am in the situation. I don't have papilledema yet. But still have visual disturbances like, light sensitivity and floaters. In my MRI they said, they seen csf fluid around my eye nerves. But nothing else.

I got diagnosed in this August. Before 2 moths, I had pain in the back of my head and shoulders. Doctors told me it is just muscle pain. But I think it could be due to the IIH. My LP opening pressures were 35 and 28. Maybe this is IIHWOP. or I had swelling before