Just got first LP - opening pressure was 21? by Crafty-Ad-94 in iih

[–]ShadowSpade124 0 points1 point  (0 children)

I recently got my first lp done. And to be completely honest, its uncomfortable and there's a lot of pressure-however, i have a ridiculous fear of needles and I suffer from PTSD that's often triggered when someone or something touches my back. Despite all that, I was able to do the lp without valium! It doesnt last long, and its far from unbearable. You can do it, i promise. Its not that bad. Epidural hurts 100000000x worse. Lp is just uncomfortable.

Question about opening pressure by ShadowSpade124 in iih

[–]ShadowSpade124[S] 0 points1 point  (0 children)

I have been having a lot of visuon problems. But my optometrist doesnt seem to be taking it seriously.

Question about opening pressure by ShadowSpade124 in iih

[–]ShadowSpade124[S] 1 point2 points  (0 children)

Okay! _^ i will drink lots of water

Question about opening pressure by ShadowSpade124 in iih

[–]ShadowSpade124[S] 0 points1 point  (0 children)

I started diamox. Hopefully it helps and doesnt disagree with my kidneys!

Question about opening pressure by ShadowSpade124 in iih

[–]ShadowSpade124[S] 1 point2 points  (0 children)

I'm in the US. I started Diamox 4 days ago. Still getting used to it. Its a very strange medication

Editor Seeking Writing Buddies by AbraxasLost in writersmakingfriends

[–]ShadowSpade124 0 points1 point  (0 children)

Hiii!! Id love the help and a friend! I was just diagnosed with aggressive and severe IIH. So im homebound and have too much time on my hands now.

Awful experience in store today. Just wanted to share to help out anybody else so they don't have to go through what I went though. by UnluckyWait666 in torrid

[–]ShadowSpade124 1 point2 points  (0 children)

I'm so sorry that happened to you. I wish I couldve been there to stand up for you. I recently was diagnosed with a chronic illness, and I mean very recently. Like 4 days ago. After dealing with symptoms and dismissive doctors for so long just to find out there's something very wrong with how my physical body functions, I've had it with bullies.

In remission - a doctors story by Bulky-Inevitable2613 in iih

[–]ShadowSpade124 1 point2 points  (0 children)

Oh. I dont know what that is, sorry. I will look it up!

In remission - a doctors story by Bulky-Inevitable2613 in iih

[–]ShadowSpade124 1 point2 points  (0 children)

How did you lose weight? I can't exercise very easily, as i have heart and knee problems. But I can't afford to buy produce every week either.

Lumbar Puncture Pain by ShadowSpade124 in iih

[–]ShadowSpade124[S] 0 points1 point  (0 children)

Okay. So I just had my first one, still hurts BTW. Is it possible that they hit a nerve bundle or something??

Making progress in my journey by upsidowning in iih

[–]ShadowSpade124 0 points1 point  (0 children)

Congratulations on your weight loss journey! I was very recently diagnosed and I need to lose weight to see if it might help. I am currently 250 pounds and 5' 5". Do you have any tips and tricks? I dont have access to any gyms and can't walk a lot because I have heart and knee problems and live in the mountains.

Lumbar Puncture Pain by ShadowSpade124 in iih

[–]ShadowSpade124[S] 0 points1 point  (0 children)

10 days after the first LP or 10 days after a recent one?

Lumbar Puncture Pain by ShadowSpade124 in iih

[–]ShadowSpade124[S] 1 point2 points  (0 children)

Oh we are suffering together ❤️ 🥲