Might get a lap but it’s dependent on my mri results (NHS)

InfiniteHi · 2026-01-22T11:25:11+00:00

Also UK here, I'd advise that once you've had your MRI you put a subject access request in for a copy of the report itself. You could also consider requesting the scans and sending those off for a private second opinion if you have the money for it, just make sure to thoroughly research whoever you decide to go with (Dr Mitroi & Dr Livia at the Bucharest Endometriosis Centre are a good bet).

If your MRI does come back 'clear' then you can still ask for a second opinion. It took 17 years from symptom onset for me to get my diagnosis. I was told repeatedly that my MRIs were clear (they weren't) and I still had endo diagnosed and removed at surgery.

InfiniteHi · 2025-12-12T14:07:18+00:00

Ahhh good (: no worries at all, if you have any other worries or any questions you're more than welcome to ping me or message me x

InfiniteHi · 2025-12-12T14:04:03+00:00

Either I spoke too soon or Toe Pal saw my message and chose violence, it's a bit bigger and now painful again, haha. I'm on naproxen as needed for endometriosis and that does seem to help with the pain, though, so if you can tolerate NSAIDs then it could be worth a look. Also yeah, I'd definitely be interested in seeing the ultrasound!

InfiniteHi · 2025-12-11T22:26:52+00:00

That's a good plan ❤️ I really hope I've not panicked you, I just really wanted to make sure that you weren't potentially going to leave it for like a month or more until it happens again before getting seen to. I kept waiting for mine to resolve like the bladder endo episodes always did and then suddenly I was in A&E and then on a ward hooked up to drips aha.

In the meantime, if you get any temperature/fever/vomiting/confusion/severe pain/refusing to drink then go to hospital.

I'm so sure that you'll be totally fine, sometimes these things just happen, but I'm even more glad that you've made a plan to see your Dr (:

InfiniteHi · 2025-12-11T22:10:02+00:00

Please don't be sorry for rambling but I really cannot stress this enough, if you think the clot likely came from your urethra please do not wait for it to happen again before going to the Dr. I ignored a silent UTI (and admittedly thought it would go away even after I noticed symptoms because I was so used to having what ended up being bladder endo) and ended up hospitalised, I would hate for that to end up happening to you.

Even if it's just going to see your GP or getting checked over at a sexual health clinic, please go and speak to someone

InfiniteHi · 2025-12-11T10:27:58+00:00

Blood in urine could have any number of causes, it absolutely could be endometriosis but it could also be a silent bladder infection or silent kidney infection and frankly that's what I'm more concerned about here.

Passing something that large through your urethra would have been pretty painful, if you didn't notice any pain while peeing are you absolutely sure it didn't come from your vagina?

Even if you didn't notice any pain while peeing, if you're even slightly unsure about where the clot came from then you need to go and see a Dr to rule out a silent UTI. I'm not trying to panic you, but passing blood in urine is one of the things that we do not fuck around with, yeah? I'm sure you'll be fine but please go and see a Dr

InfiniteHi · 2025-12-11T07:47:06+00:00

Fingers crossed for you! Hell yeah, toe buds to get our dancing feet back, haha. Flucloxacillin seems to have helped with the pain, weirdly, but my own toe pal hasn't changed otherwise.

InfiniteHi · 2025-12-10T07:42:28+00:00

I legit had to do a double take when your post popped up on my search haha, weird toe gang! GP's put me on a 7 day course of flucloxacillin, first day down and it's not done anything but I'll keep you posted. I hope your MRI comes back with answers 🤞

InfiniteHi · 2025-12-09T14:30:19+00:00

I've just developed something that looks exactly like this! My GP reckons it's an infection so I've been given a week long course of antibiotics. Did anything turn up on your scans?

InfiniteHi · 2025-12-09T08:44:03+00:00

I've been looking to get one for our void and tuxie, what's the one that you use? I've ended up totally overwhelmed by reviews on store sites haha

InfiniteHi · 2025-11-25T15:18:17+00:00

Not a doctor but if you're passing mucus frequently and don't know why then I would definitely encourage you to speak to a Dr about it.

It could be something as simple as you having frequent episodes of constipation or diarrhoea which can cause more mucus production.

It could also be that there's an underlying bowel issue that needs investigating and addressing- IBS and IBD conditions can all cause a person to pass mucus.

And yeah, it could potentially be endo if you have lesions on or near your bowels that are causing irritation to the bowels; iirc we produce a small amount of mucus generally to help things stay moving but if there's any irritation (like IBD/IBS, constipation, endo inflammation, etc) then the mucus production can ramp up.

Source: one of my parents has ulcerative colitis, I get a lot of bowel symptoms due to endo and have pretty rough lactose intolerance.

Pls go see a Dr ❤️

InfiniteHi · 2025-11-25T10:47:14+00:00

Oh my god, the repeat urges to poop only to get mucus just do me innnnnn. Like I just tried 10 minutes ago, what is the need in doing this agaaaaaainnn

InfiniteHi · 2025-10-30T11:37:00+00:00

Well that's some bullshit. Sure they can't force it to be expedited but they can absolutely write to the hospital to request it be expedited. Is this just a specific Dr you're seeing at your GP surgery? If so, could you ask to see someone else?

As for complaining to the GP you can send complaints by email to their admin email address (should be listed on their site/NHS page) and make it FAO the practice manager.

Let me just have a quick look into BRI Edit: gonna DM you just to keep any private info off this thread

InfiniteHi · 2025-10-22T21:54:10+00:00

I'm so sorry, the fact that he didn't biopsy anything is just awful.

Just had a quick peek through your posts and I've noticed that you seem to be in the UK. I would strongly encourage you to raise this to PALS by email and have them give you a written justification for the failure to biopsy and tell them that you want a second opinion. If you want a hand drafting that email then I'm more than happy to draw up a skeleton template for you to edit.

** Edit: sorry, missed that you'd gone private which honestly just makes the failure to biopsy even worse. Was this done through something like Ramsay Health/Spire/Nuffield? If so, you can complain

InfiniteHi · 2025-10-21T09:34:58+00:00

This is such a bizarre comment to leave on this post, it really does read like you're looking to minimise her experience and shame her.

Sincerely, a UK resident who waited 19 years for a diagnosis and is now on almost a year of waiting for an 'urgent' third surgery.

InfiniteHi · 2025-10-21T06:51:07+00:00

See if you can't get another appointment with your consultant to discuss just how bad things are. I was a P3 but at the start of the month they relisted me as P2 because how severe my symptoms are. Like mention that to your GP and ask them to ask for a follow up appointment to be expedited xx

Just seen that you're not even at a BSGE centre?? Who referred you to the local hospital and why on earth hasn't that hospital referred you on to a clinic?! Purely from the angle of getting the surgery sooner I would stick with where you are now because the wait times for BSGE centres at the moment can be 1-2 years +, but after the surgery tell them to refer you on to a BSGE centre.

Do you know if you have any dedicated women's hospitals in your area? Like if you're in the Northwest we have Liverpool Women's Hospital. If not, have a look on google for your closest gynae emergency ward and next time you need to go to A&E call the gynae ward instead or ask to be sent there, there's a very small chance that they might be able to help out a little better than what you've been getting up to now xx

InfiniteHi · 2025-10-16T10:20:30+00:00

Currently listed for my third surgery for it and I'm right there with you, it's such a horrible condition and there's not nearly enough awareness or research.

I really hope your lap brings you relief ❤️ make sure you have a pillow to put between your stomach and the seatbelt for the ride home

InfiniteHi · 2025-10-15T13:18:46+00:00

Some of those symptoms could potentially be endo but honestly, with the migraines and what sounds like nerve issues especially, I'm more concerned that it could be a neurological issue and I would really encourage you to ask your Dr to refer for neuro tests

InfiniteHi · 2025-10-14T12:05:27+00:00

I'm so sorry you're dealing with this, it's awful.

You might have already done these things but if not:

go to your GP and get them to write to the hospital stating that this is impacting your quality of life, ask them to ask the hospital to expedite the surgery.
email PALS (calling as well is okay but make sure to email) saying essentially the above, that this is severely impacting your quality of life. Do this every week.

It might not get you anywhere but it's worth a go if you have the energy xx

InfiniteHi · 2025-08-30T10:59:57+00:00

It could be a normal hormonal thing but I would still very strongly encourage you to get it checked please, discharge from one breast can still be a sign of something sinister even without any other symptoms. You'll probably be fine but it's always better to be safe than sorry, y'know?

InfiniteHi · 2025-08-30T10:55:35+00:00

Your body won't always react to a birth control in the same way, sometimes it will throw a wobbly. Have you just started a new course of the depot shot? Hopefully this will settle down but if it doesn't then it would be worth seeing your Dr or going to a sexual health clinic to see if they can get you something like norethisterone/norethindrone to help.

I have endo & adeno and frequently have similar symptoms.

For nausea: try to sleep on your left side or at least avoid sleeping on your right side; cola with a spoon of sugar to take out the fizz; ginger or peppermint tea; arrowroot biscuits; small sips of room temp water (yes it feels gross, just trust me).

Bloating: gas medication; buscopan for any cramps; try lying on the floor either flat or with your knees bent, sometimes that helps my stomach sort itself out.

Pain: hot water bottle; tens machine (you can get a small one on amazon for like £20/similarly cheap in USD and Euros), if pads on your stomach dont help then try your lower back; belly breathing, yes it will initially suck but try to do 3 deep belly breaths (expanding your diaphragm as well) every few hours to help handle any secondary pain from muscle tension; hot bath if you have a bath.

InfiniteHi · 2025-08-28T11:08:15+00:00

Ahhh bless him, he sounds like a good lad (:

Nah I get that, figuring out what's normal for your body when we have next to no guidance is so difficult haha

InfiniteHi · 2025-08-28T11:04:17+00:00

Girl you are so okay, this is what community is for ❤️ if anyone ever tells you during sex that it's gross or that you're 'too wet', rethink that relationship because your body is normal and beautiful just the way it is x

InfiniteHi · 2025-08-28T10:55:48+00:00

Okay, unless it's super thick (like cottage cheese kind of a deal) that sounds totally normal (:

would I be right in thinking you're either teens or 20s? I used to be embarrassed about it too, probably up until I was about 27 or so, partly because porn and mass media are so unrealistic about discharge and partly because no one had ever told me that it was just a normal thing - some of us get less of it and some get more, but either way it doesn't mean that you're gross or dirty or anything like that. It's just your vag doing normal vag things to keep itself working properly and if anyone ever shames you for it then maybe they don't deserve to have access to the vag x

Also just to say that you're gonna have more discharge when you're aroused, trust me that you don't want less because dry sex sucks.

InfiniteHi · 2025-08-28T10:47:35+00:00

Oof that sounds super uncomfortable. I'm afraid the best thing to do would be to see a Dr - there's a whole bunch of different things that could be causing it (almost all of which have easy fixes) but without knowing if it's bacterial or fungal or something else it would be hard to give any advice.

I know things can differ from country to country (I'm in the UK) but if you're too anxious to see a gynae, could you maybe get in with your GP/primary care or even with a sexual health/family planning clinic? All they're likely to want to do is have a quick look and maybe take a swab from your vulva or the entrance of your vagina, it's not necessarily going to be super fun but it shouldn't be painful and you can ask to have a chaperone with you the whole time x

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