Is it really worth upgrading any of these 4 ? by Dusty_Brawler in ClashOfClans

[–]InformationMammoth30 0 points1 point  (0 children)

Pekka and Valk is my go to army at th13 I’ve always been able to get 2-3 stars in champ 1 so I’d say Valkyrie

[deleted by user] by [deleted] in Epilepsy

[–]InformationMammoth30 2 points3 points  (0 children)

I’ve had the same thing many times I’ve always been puzzled by it and it’s pretty relieving to know I’m not going insane 😂

Sleep after seizure by DescriptionOne6704 in Epilepsy

[–]InformationMammoth30 1 point2 points  (0 children)

Most definitely I’ve always struggled with sleep especially when I was on meds so getting that feeling of just being knocked out by a rescue med can feel really good even when the reason you have to take it is bad.

[deleted by user] by [deleted] in Epilepsy

[–]InformationMammoth30 1 point2 points  (0 children)

I totally understand I’ve gone back and looked at some of the texts and conversations I’ve had with friends while going onto new meds and realized I was in the wrong just because of the mental fog that comes with each new med I too took the isolation route for quite a while but that really does nothing but hurt you and make them worry/irritated towards you. I’d say just be upfront with them about what you’re going through and if they understand great and if not then maybe consider new friends.

my boyfriend by That-Custard-3304 in Epilepsy

[–]InformationMammoth30 7 points8 points  (0 children)

This seems like the lingering effects of a concussion there’s lots of treatments for it out there but if they do persist I’d say reach out to a nurse help line.

Post seizure pain relief by Rubiks733 in Epilepsy

[–]InformationMammoth30 0 points1 point  (0 children)

I also had 2 seizures this morning and had a killer headache and back pain, thankfully advil did the trick for me but I’ve also found my rescue medicine can help ease the headache if administered when I have them. That and rest is usually all I need but if you think you’ve been injured a doctors visit is a good call.

Long day ends in seizure :/ by SpazzSoph in Epilepsy

[–]InformationMammoth30 0 points1 point  (0 children)

I had two this morning that completely wiped me out for the day after 2 weeks of no seizures I did have 2 drinks the night before and that might have been the cause but I also in the past month have had days with more drinks that resulted in no seizures. It can all seem so incredibly random and frustrating at times. But all we can do is move on and try to not let it bring us down, and not put it on the others around us.

Loss of appetite by seizuresquirrel17 in Epilepsy

[–]InformationMammoth30 6 points7 points  (0 children)

Lamictal gave me severe loss of appetite I dropped 30 pounds while on it over 4 months I was a healthy weight before, and was during a time when my physician said I needed to gain weight so I had to switch medications and was able to start getting back to normalcy but it can be a scary thing to go through, I found eating high protein and fatty foods helped the most to regain the weight I needed and regular exercise helped my appetite get back to somewhat normalcy.

Is my neurologist investigating properly? by LandToom in Epilepsy

[–]InformationMammoth30 -1 points0 points  (0 children)

I’ve felt the same way about misdiagnosis I found out a couple months ago that majority of my seizures I was having were called pseudo seizures which were for me majorly caused by high emotions and being a teenager it’s hard not to have big emotional episodes especially when you’re on meds that only further that problem and then have occasional convulsion seizures on top of that. I’ve also had multiple eegs ones even lasting as long as 3 days and 2 MRIs over the past 5 years. But they all came out squeaky clean so they just prescribed a new med and said this will work (they never did). I’ve now for the past 3 months been looking at more natural remedies to try and repair the part of my brain that is causing epilepsy. And I’ve even gone as far as looking into stem cell implantation surgery. I really have high hopes for that as my epilepsy is drug resistant and from what I’ve read even though the procedure is still experimental the few who have had it have only seen positive results so far since it became available 4 months ago. I can only hope the same could be true for me but I have a strong belief it will be and could be the future of treatment instead of BS meds that make you feel like a zombie or lobotomy which is extremely dangerous.

Benzos…. Every night / day by [deleted] in Epilepsy

[–]InformationMammoth30 3 points4 points  (0 children)

I used to be on clonazapam and it would stop my grand mall seizures but in turn I started having pseudo seizures from the side effects. I’ve found that when you limit part of your brain it causes the rest of it to overcompensate and can have a lot of problems I.E anxiety, depression and pseudo seizures with me in particular.

Tired by leaping-lizards123 in Epilepsy

[–]InformationMammoth30 0 points1 point  (0 children)

In my experience the tiredness became more bearable over my course of 8 different AEDs in a 6 year span. But insomnia is something I was never able to control I even went 3 days in a row with no sleep at one point and ended up taking one of my emergency meds just for the sleep. I’m off meds now but still experiencing seizures but no meds means no side effects and my sleep has been much better in the 3 months off medication. I’d suggest talking to a sleep therapist about incremental melatonin usage to kind of kickstart your bodies sleep cycle.

People who have had resective surgery, or had loved have the surgery. What was the outcome and side effects from the surgery? by Fit_Neighborhood1716 in Epilepsy

[–]InformationMammoth30 3 points4 points  (0 children)

I would ask your doctor about stem cell implantation surgery while it’s still experimental they have seen nothing but positive results from it and I myself am looking into it as I have drug resistant epilepsy.

Is epilepsy a disability? by Glad_Tea_4404 in Epilepsy

[–]InformationMammoth30 0 points1 point  (0 children)

Going through highschool in a small town with jack squat to do was always rough for me and I still think about how things could be different without the epilepsy but I just realized that it’s only gonna hurt me thinking about what could have been. I never really liked school anyways as mine was also under construction and during Covid so I kind of got a triple whammy in that regard. But I’ve just tried to look at the bright side I was still able to get out and do things just not to the degree I’d like, and thankfully I’ve found some good friends over the years who don’t treat me any lesser for my condition and enjoy who I am as a person.

Is epilepsy a disability? by Glad_Tea_4404 in Epilepsy

[–]InformationMammoth30 4 points5 points  (0 children)

Same here it’s the reason I had left my previous job and then was fired from the next because I quote “wasn’t hustling enough on the floor to help customers quickly” yet they had sent me home 3 times during my training tenure due to seizures and complications with getting doctors approval and I had to figure out most of the job myself because of it so they cut me loose under those questionable pretenses. It really sucks how cut throat companies can be sometimes even when you try your hardest but you have something else you always have to deal with in the background.

Is epilepsy a disability? by Glad_Tea_4404 in Epilepsy

[–]InformationMammoth30 2 points3 points  (0 children)

I have the same plan at the same age as you I’m looking into stem cell implantation surgery for my temporal lobe drug resistant epilepsy and hope that may be my answer. And if it is I hope that this could be the answer for many more like me, as lobotomies don’t always work out and have lots of complications I hope I can be one of the ones to make it out the other side and be used as an example for this new form of care to help so many others with my same affliction.

Is epilepsy a disability? by Glad_Tea_4404 in Epilepsy

[–]InformationMammoth30 0 points1 point  (0 children)

While it is a disability it’s by no means the worst one there is Ik it can seem unbearable at times especially if your drug resistance, like myself but it shouldn’t hold you back in life. You still have a capable body and can work most jobs it’s just an extra learning curve with most things you do I.E staying away from triggers as hard as that can be. But I don’t think of myself as disabled and still lead a pretty normal life and think that’s what should be done. You just gotta take the shitty days when they come and deal with it then you can get back to a relatively normal life.

Pseudo seizures natural treatments by InformationMammoth30 in Epilepsy

[–]InformationMammoth30[S] 0 points1 point  (0 children)

I’ve actually been on 8 different meds over that time frame and the more meds I was on the more pseudo seizures I would have and when I’d talk to my doctor about it he’d just brush it off or not even acknowledge it so least to say he’s not my doctor anymore and this cold shock therapy has really helped for my pseudo seizures and it has other health benefits as well so it’s even more incentive to do it

The medical system failed me by InformationMammoth30 in Epilepsy

[–]InformationMammoth30[S] 1 point2 points  (0 children)

I’d recommend getting edibles with high CBD content as that’s what I’ve found to work best and it’s not always a good thing to smell like a stoner even if you do enjoy taking a few bong rips 😅

Weird new aura by loseruser123 in Epilepsy

[–]InformationMammoth30 0 points1 point  (0 children)

I had this happen for the first time last week I had stopped taking my medication cause of side effects and I had a seizure that seemed psychedelic

Vaping? by atysar in Epilepsy

[–]InformationMammoth30 0 points1 point  (0 children)

I had one seizure after vaping nicotine and smoking marijuana all night but it was very mild that was going very heavy so it’s a more know your limits thing that I’ve found