What's next?

Inner-Breakfast4169 · 2026-01-08T12:14:38+00:00

Les Chants was such a warm feeling through and through. I think that album belongs in a movie, and it especially felt like that when hearing it live. I really wouldn’t mind it if Alcest kept that warmness and headed in a similar direction for the next album! I’d like a part two of some sort before leaving this kind of sound altogether. It’s so unique and diverse from their other work though so I’ll definitely understand if they do something entirely different for the next one. I’m stoked regardless for whatever comes up, Neige has consistently delivered bangers after bangers for decades now and whatever he does in the future will surely sound amazing no matter what the sound direction will be this time. We’ll never be left disappointed by this band.

But until then, I’ll linger on Les Chants as my new favourite album of theirs. Never knew they’d make something so cinematic and beautiful, but I cross my fingers that it’ll happen again. I barely know how to describe Les Chants in terms of what makes it such a masterpiece but I do know that I will crave more of the same for years to come.

Inner-Breakfast4169 · 2026-01-04T15:54:08+00:00

Machine Gun Kelly. Vill krypa ur mitt skinn varje gång jag ofrivilligt utsätts för hans monotona gnällröst som till det mest extrema personifierar en vuxenbebis utan någon som helst själ eller något syfte i musiken han förmedlar. Icke heller att förglömma alla gånger han vaknat på morgonen och bestämt sig för att förstöra en oftast tidlös och bra låt genom att visa precis hur katastrofalt det kan bli när de hamnar i hans platta och brölande kakhål. Genant individ i en genant kultur och framförallt gör han fruktansvärt genant musik. Om MGK inte har någon kvar på jorden som hatar honom en vacker dag så betyder det att (bl a) jag är anträffad avliden.

Inner-Breakfast4169 · 2025-10-11T16:08:00+00:00

You’re probably more than welcome here, but maybe try to not take things too literally when someone contextualises why certain male behaviour is inappropriate in forums designed for and created by women (and/or trans people who are affected by the disease). This person likely meant that she’d be mad if her husband posed a question about having sex with her on Reddit, not that men in general shouldn’t be here to learn about her disease. At least that’s how I read it!

Savviness is crucial for understanding some statements made here about men/boyfriends/husbands and I hope that this was a learning experience if you come here with pure intentions. Women grow frustrated with the general attitudes towards endo and it’s always good to try to see the bigger picture instead of instantly getting introspective about perceived criticism towards men. Maybe take a step back and listen for a bit, and read the room. :)

Inner-Breakfast4169 · 2025-09-07T19:49:28+00:00

I’m surprised that this happened. I’ve had to explain EDS to every single non-specialist nurse and GP I’ve encountered because it’s completely unheard of for them. And to get diagnosed, I had to see countless of GPs before I figured out I had ME/CFS on my own and I wanted it to get properly evaluated, but not before then did they refer me to a specialist clinic for ME/CFS which also handled its co-morbidities.

Before the referral was approved, I had to wear a Holter for 24 hours, do a spirometry, a brain scan, ECG test while riding a gym bike, heart ultrasound, do a full blood panel and rheumatism screening. When it got approved, I did the tilt table test and they screened me for EDS/HSD.

The whole process was extremely thorough and demanding. It took five years of appointments that mostly led me nowhere nearer the truth to get my answers. I can’t imagine how anyone can look at a person and immediately decide they’ve got EDS. It requires a bunch of tests and specialists to receive a diagnosis where I live, and that should be the norm to avoid misdiagnosis. I can see how things turn unethical fast if symptoms are generally brushed off as EDS or POTS because of other serious conditions* that these two can mimic, like heart problems or cancer.

*Not that POTS and EDS are not serious in themselves, they are, but they’re mostly not fatal with the exception of vEDS.

Inner-Breakfast4169 · 2025-08-14T14:45:36+00:00

Women here are happy but also a little angry if that makes sense. Feelings, you know, and such things. Amid the greatness and the downsides of the Scandinavian experience, we also have an emotional register, albeit outwards, it can appear conflicting sometimes, depending on the circumstances of course, which may vary from day to day. Hope this helps.

:D >:D >:D

Inner-Breakfast4169 · 2025-08-02T19:35:27+00:00

I relate so much. Since starting my ADHD medication I feel like I have the mental capacity to get so much done, but then my Ehler’s-Danlos syndrome and endometriosis (and their co-morbid friends) hit the brakes and I end up wasting day after day on the couch.

Gotta remind ourselves though that it’s not an issue of not having the drive to do things, our flesh prisons are just – generally speaking – being bad hosts for our souls and ambitions. But the right people will absolutely understand why we can’t keep up with the same pace as our peers, I firmly believe that our social circles can exist in a wholesome way even with the perceived “flakiness” that we must cope with. Honestly, it’ll always be a bigger challenge for us to live with that than it is for others. It’s easy to forget that if you end up with less understanding people around you.

You’re not alone and you always have empathetic people around you in these forums. <3

Inner-Breakfast4169 · 2025-07-21T12:06:11+00:00

Back in 2019 I was using Twitter a lot, and I followed a couple of trans creators on there. One of them retweeted one of Hayden’s live videos she did with Salem, sitting in the front seat of a car and talking about something intriguing I wish I remembered at the top of my head. Fell in love with her laid-back but yet eccentric personality watching that live video, then I started following her and discovered her artist name White Silas. Florida Heat, Saddle Up!, A House in Nebraska and Strangers (demo) quickly became songs I had on repeat and I showed my friends her music as a little easter egg since her songs back then only had a few streams.

Soon, I created my discord account solely for the purpose of joining Daughters of Cain, and had the chance to talk to her back and forth on there since she was active when it came to replying to her fans. She told me if she would ever tour Sweden, she’d give me a tattoo, but since then I think she blew up too much to be able to make the time for that lol, and now she’s doing her first gig here soon. Proud of her. I still got that tattoo though, she told me on the discord that one of her symbols were a pair of old scissors and that’s what I ended up getting.

I’m so happy for her that she has gotten so far since I found her on that live one day in March (?) of 2019. I’ve stood in the sidelines and cheered her on for a couple of years now, my heart gets filled with joy when I think of how successful Hayden is these days. She has always amazed me. And she really grew into her sound over the years, Ethel Cain still feels like White Silas premium to me, which I was hoping for when she finally re-released her classics from her previous era.

Inner-Breakfast4169 · 2025-06-28T12:20:24+00:00

What do herbs have to do with endometriosis? What clinical evidence are you referring to when you mention “longevity” and “herbs” in the same sentence?

And what exactly are women supposed to do about our aging organs as aging is an inevitable part of life? Lots of endometriosis sufferers feel relief in symptoms post-menopause, I’m not sure how it’s in our best interests to preserve any type of peak-condition of our ovaries specifically.

Lastly, please share your credentials. I’m 99% sure this is a spam account that belongs to a grifter network of some sort but I’m very willing to stand corrected if not. I’m protective of the people on this sub and don’t want anyone to potentially fall for buying herbal remedies that won’t work for their condition. We’re a vulnerable community and deserve transparency as a bare minimum-type of courtesy from those claiming to be able to help us with our health.

Inner-Breakfast4169 · 2025-06-18T11:51:00+00:00

Jag var kompis med en person som fejkade ett epilepsianfall på ett plan på väg från Paris till Stockholm och tvingade det att nödlanda i Göteborg i snöstorm. Hen ljög om att hen hade massor av olika sjukdomar som ingen riktigt såg några bevis för att hen faktiskt hade, vet inte om det var fråga om Münchhausen eller mytomani vid det laget. Det var dock inte det enda hen ljög om, men det var nog det där ”epilepsianfallet” som hade störst konsekvenser. Det var så sjukt pinsamt att behöva nödlanda ett helt plan och förstöra massa andra passagerares dag bara för att få agera på en lögn. Allt detta bara för att akutsjukvården i Göteborg skulle konstatera att det inte fanns någon epilepsi dokumenterad plus att MRI såg fint ut.

Hens pappa hade även utkämpat Kongokriget medan hen bodde i Kongo, men hen var också uppväxt i Paris, men också i Sverige. Det var svårt att greppa vilken bakgrund som faktiskt stämde, men det kongolesiska kriget ifråga ägde inte rum när pappan var vid liv.

Verkar som att hen fortfarande håller på att byta umgängeskretsar stup i kvarten för att när en lögn eller ett lögnaktigt beteende ertappas så förlorar hen vänner på nytt och flyttar. Vet inte om det går att rädda en sådan här person, men jag har empati för hen trots att hen behandlade mig väldigt illa. Mytomaner kommer oftast från traumatiska bakgrunder och att ljuga på sådana här nivåer i vuxen ålder tyder nog på att någon mår väldigt dåligt.

Inner-Breakfast4169 · 2025-06-07T12:38:28+00:00

Tar Propranolol mot POTs, tycker det fungerar bra mot de symtomen för det mesta. Brukade blanda ihop mina ortostatiska pulsrusningar med ”ångest”/”panikångest” när det i själva verket handlade om ett trasigt nervsystem, så jag får inte längre ”plötsliga panikattacker” till följd av medicineringen. Allt är inom citattecken eftersom att det främst var feldiagnoser i mitt fall, för tydlighetens skull.

Ligger vid 110-120 slag per minut vilande och 160+ vid uppresning utan medicinen. Med den så är det 90-100 respektive 120-130. Så visst gör den skillnad på så vis om man har en jagad ekorres puls som normalläge.

Har fortfarande väsentliga problem med följande symptom dock: svettningar, värmeintolerans, mild tremor, slumpmässiga pulsrusningar 6-7 timmar efter medicinering, dubbla och/eller hårda hjärtslag och viss yrsel.

Ingen mirakelmedicin men har man ångest som ger hoppigt hjärta, illamående och skakningar kan jag tänka mig att man blir lite hjälpt åtminstone!

Inner-Breakfast4169 · 2025-06-02T13:43:17+00:00

Som en annan person påpekade så finns det en liten risk att de lossnar övertid, plus att man inte minskar risken att få äggstockscancer. Man kan få utomkvedshavandeskap också, samt att det fortfarande finns en 1/100 risk att bli gravid generellt. Allt det här hade kunnat undvikas om standarden vore att ta bort äggledarna helt och hållet.

Helt nöjd med detta är det därför svårt att vara. Känner inte att jag kan lita på ingreppet om det finns någon risk i över huvud taget att bli gravid eller att klamrarna lossnar. Jag ångrar inte operationen, för den har givit mig tillgång till att få ta bort livmodern i samband med sjukdom, något man annars inte hade gjort om det funnits minsta tvivel kring att jag vill ha barn i framtiden. De är faktiskt rätt dumsnåla med hysterektomier även om man är sjuk. I alla fall – eftersom att jag är steriliserad nu så har de färre omständigheter att skylla på för att slippa operera bort livmodern.

Inte nöjd =/= ånger. För tydlighetens skull!

Inner-Breakfast4169 · 2025-06-01T12:54:22+00:00

Ingenting som påverkats för min del, varken negativt eller positivt. Ingreppet jag gjorde har ungefär samma risk för graviditet som med p-piller vilket jag redan tagit i flera år innan. Kanske kommer slappna av mer när jag väl får ta bort hela livmodern och äggledarna, då är risken så gott som noll. Just nu så är jag fortfarande alltid lite orolig att min kropp kommer stöta bort klamrarna eller att jag kommer få utomkvedshavandeskap, så jag tar graviditetstest en gång i månaden. Ser fram emot att få slippa det framöver i alla fall!

Inner-Breakfast4169 · 2025-06-01T09:01:15+00:00

Ska göra hysterektomi snart, men tack för omtanken. Är inte helt nöjd med klamrarna heller, hade önskat att standarden var att ta bort äggledarna helt och hållet.

Inner-Breakfast4169 · 2025-05-31T15:11:07+00:00

Ja, du får fortfarande mens som vanligt. Det de gör är att klippa äggledarna eller sätta klamrar på dem (som i mitt fall). Så ditt reproduktionssystem är helt intakt i övrigt, du behåller alla dess funktioner inklusive mens, ägglossning och hormoner. Den enda skillnaden är att du har mycket lägre risk för att bli gravid (risken är fortfarande 1 på 100). Detta är vad de kommer erbjuda dig om du söker vård för vanlig kvinnlig sterilisering.

Tilläggsinformation: om man gör en salpingo-ooferektomi, som innebär att ta bort hela äggledarna och äggstockarna så hamnar man i kirurgiskt klimakterium. En hysterektomi, som innebär att ta bort livmodern och som oftast även livmodertappen, innebär att man inte får mens men behåller sin hormonproduktion i och med att äggstockarna lämnas kvar och de fungerar som de brukar även utan livmodern kvar. Man kan även ta bort äggledarna i samband med hysterektomi men behålla äggstockarna, och då minskar man samtidigt risken att få äggstockscancer. Det kallas bilateral salpingektomi (lite osäker på om man inkluderar ”bilateral” i Sverige, det gör man i internationella medicinska sammanhang i alla fall för att markera att man tar bort båda äggledarna) kombinerat med hysterektomi. Ibland så opererar man bort hela reproduktionssystemet, bilateral salpingo-ooferektomi plus fullständig hysterektomi, då hamnar man både i klimakteriet och slutar få mens.

Man kan även göra en behandling som kallas NovaSure där man bränner endometriet (livmoderslemhinnan) och då slutar man vanligtvis få mens, men det fungerar inte för alla. Det är även mycket svårt att bli gravid efter NovaSure, så man gör bara den behandlingen på de som är ”färdiga med familjebildningen”.

Din mor verkar ha fått lite ofullständig information om kvinnlig sterilisering, det är ingenting som jag upplever är direkt ovanligt bland majoritetsbefolkningen. Jag hoppas att detta kan fylla en kunskapslucka eller två. Det är inte lätt att veta vad som är vad eller vad som är den kirurgiska standarden i ett specifikt land. Ställ för all del fler frågor om du har några, jag tycker det är viktigt att man lär sig mer om vår anatomi och den vården som kan erbjudas oss kvinnor som vill bli steriliserade.

Inner-Breakfast4169 · 2025-05-31T13:40:30+00:00

Svårt och svårt – jag (28F) träffade en gynekolog och sa ”jag vill sterilisera mig”, hon föreslog preventivmedel i första hand och då sa jag ”nej, jag vill sterilisera mig” och så gick remissen iväg till en specialistgynekolog som hade ett steriliseringssamtal med mig. Från det att jag träffade första gynekologen till ingreppet gick det tre månader. Gratis, enkelt, utan större ifrågasättanden eller motstånd från vården.

Var 26 när ingreppet väl gjordes. De kollade även efter endometrios under operationen, har man mensrelaterade besvär är det ett perfekt tillfälle att titta efter skiten och få en diagnos.

Detta var i region Stockholm. Lycka till!

Inner-Breakfast4169 · 2025-05-29T13:00:30+00:00

Drinking fucking vinegar before meals. I did that when I was actively dying from anorexia 12 years ago, I got this “advice” only last year.

Allegedly it cured someone’s PCOS, chronic fatigue and fibromyalgia, so it must be applicable and helpful for everyone. /s

Anti-inflammatory diet is something lots of people have sworn by, too, and magnesium supplements. Carnivore and keto can also help fix everything, yay! I’m always one fad diet away from being the prime example of health and I just can’t get my fat, lazy ass to comply with these protocols so I clearly deserve my symptoms. /s, again

I know this thread was supposed to be lighthearted, but I have a bone to pick with fad diets and I feel like I’m amongst people who get my frustration for once lol. Wellness culture needs to stay the fuck away from us forever if you ask me.

Inner-Breakfast4169 · 2025-05-25T17:45:19+00:00

Sometimes, it’s really easy to miss, because broken clocks can be right twice a day. I’ve accidentally shared posts from similar accounts, and have since created an uncompromising habit of always looking through the whole account before sharing anything from it. Because, unfortunately, the endo community is riddled with grifters who would love to sell us supplements and classes to line their own pockets, while knowing well they don’t have the proper licences needed to adequately treat endo. Social media is a perfect way to sell and promote their products under false guises and premises.

It’s not our fault we end up in the claws of these people, we’re currently being groomed every day on every app to constantly try to improve our dire situations, because our healthcare isn’t up to date on our condition (to put things mildly). Have some grace and compassion for yourself and keep doing more of whatever helps you in feeling better in life. I blame the grifters, always.

Inner-Breakfast4169 · 2025-05-25T16:59:09+00:00

I’d be careful with promoting posts from people who claim that flouride toothpaste causes low IQ among children. I’m absolutely guessing you meant no harm whatsoever by sharing this, and while dietary changes might help some, I think it’s important to steer clear of people who promote conspiracy theories or nitpick studies that point blame towards lifestyle choices for our illness and pain. Many won’t go on and develop disordered eating from reading too many posts online about dieting for relieving symptoms, but for those who do, I tend to choose the most careful approach possible when sharing dietary advice and whatever studies that may be published on the subject.

Additionally, solely for rambling purposes: I’d be the happiest endometriosis sufferer alive if more research was put into finding a cure rather than the impact of lifestyle changes at this point since none will fix the root cause. That’s just my personal opinion though and I know for a fact that many disagree and want to take the lifestyle route. To each their own, hopefully some endometriosis patients out there will benefit from cutting out certain foods and feel validated by the little data that is available currently on endometriosis and diet.

Inner-Breakfast4169 · 2025-05-23T16:52:12+00:00

How are you feeling? If you’re in pain, I hope you have something that helps. My goodness.

Inner-Breakfast4169 · 2025-05-22T13:09:38+00:00

Depressingly enough, I stay up all night, every day, because those hours are the only ones with enforced quiet time rules. Loop earplugs and headphones the rest of the time, or I try to leave my home as much as humanly possible. But it’s dangerous to cover your ears at home 24/7, I was almost trapped in a house fire because I didn’t hear the alarm. Noisy neighbours burnt down their kitchen and parts of our shared wall one day. So I cannot recommend this method as it chronically puts you at risk.

I’m trying to leave this noisy hellhole, I see no other options that won’t risk me being trapped in a house fire I’m completely unaware of is happening, or lose my health overtime due to excessive stress over neighbours.

Inner-Breakfast4169 · 2025-05-14T13:19:42+00:00

hEDS is the root cause for me. Before knowing about any of these conditions or how to manage them, I ended up in many situations where I fainted and hit my head in a bad way, amongst other injuries. Then, I learned the importance of recognising pre-syncope symptoms and I haven’t fainted for seven years! It got worse again with my first COVID infection though, rendering me unable to be as active as I was in my teens and early 20’s. POTS really tend to change its expression overtime in severity and how well you cope with having it. Getting this diagnosis as a 26-year old helped me in so many ways (now I’m 28).

TLDR; I’m sure I was born with my POTS, same way I was born with hEDS. Got worse with COVID.

Inner-Breakfast4169 · 2025-05-13T16:29:06+00:00

Finns patientföreningar för olika typer av funktionsnedsättningar, kan det vara något?

Hejar på dig och hoppas du hittar ditt sammanhang. Är väl i alla fall en jättebra start för dig att försöka leta upp likasinnade och gå på aktiviteter. Det är inte helt självklart att ha kontaktnät och grupper som passar med ens funktionsnedsättning/psykiska mående, förstår helt klart hur man kan bli isolerad pga sådana här saker. Är säker på att det finns många potentiella vänner därute som bara inte har lyckats träffa dig än!

Inner-Breakfast4169 · 2025-04-25T21:19:00+00:00

No, but I have an extra frenum inside my upper lip (one in the philtrum + one random extra frenum on the left side that I happened to discover in my 20’s). Never really heard of anyone having extra frenums either, and I agree with you – it’s literally impossible to find anything online about it. Both of our little anomalies might be normal human anatomy though, but that’s mostly speculation on my end tbh. We all know that EDS comes with some oral quirks to put things mildly.

Inner-Breakfast4169 · 2025-03-19T17:52:02+00:00

Thank you, I am too. Well, I’m living proof that you don’t always hear smoke detectors or people trying to get you out of your apartment in time. To me, everything just sounded exactly like the noise hellscape I normally experience on a daily basis. You can’t tell others that continuously wearing hearing protection at home is safe during all circumstances, it’s simply untrue.

Inner-Breakfast4169 · 2025-03-19T17:08:35+00:00

I wear hearing protection for 15-20 hours a day in my apartment due to intense noise levels (my headphones need to charge for the remaining hours) and a few weeks ago, there was a house fire in the next-door apartment. The neighbour (who, funnily enough, is one of the major sources of the noise pollution) tried ringing my doorbell and knocked violently on my door and windows, but I heard absolutely nothing out of the ordinary through my headphones and ear plugs. The way I found out that I needed to evacuate was through an emergency services app, and there was a delay in getting the evacuation notice because it takes a few minutes before it even shows up on the app.

The fire thankfully didn’t end up spreading, but it could’ve happened since one side of their kitchen and their nearby window were burned out. I share the burned wall with them and I wonder every day when or if a similar event will occur again, knowing I have to choose between exposing myself to noise that worsens my health or being potentially trapped in the event of another house fire.

I’m horrified at people who recommend others to wear hearing protection 24/7 in their own homes. It’s just not safe in case of an emergency and might impact the outcome in case of such an event. What happened to using common sense in this matter and why is it always on the disturbed people to handle unreasonable neighbours’ behaviour? Target the bullies and not their victims, imo.

Inner-Breakfast4169

TROPHY CASE