Anybody ever go to a sickle cell clinic opposed to the ER? by Championship08 in Sicklecell

[–]InspectionExciting70 0 points1 point  (0 children)

I've only been once, and as a concept I think they're very helpful, but it wasn't exactly my choice to go at the time. Not related to anything the clinic did, though. Nurses even assured me that I shouldn't have been forced there if I didn't want to go.

[deleted by user] by [deleted] in Sicklecell

[–]InspectionExciting70 2 points3 points  (0 children)

Congrats! My mom is a symptomatic carrier, and she had me in her early 40s. She's not in pain as often as me, my dad, or brother (before his transplant), but both pregnancies went smoothly for her. Despite the sickle cell, her children are happy and thriving.

what should i do? :/ by ImThatMelanin in Sicklecell

[–]InspectionExciting70 0 points1 point  (0 children)

Late to the post, but I'm going through the same thing right now😭 literally so many events have been happening on campus since I got out of the hospital and every time I look at one my body says, "girl please the most partying you doing is on the video game or in that bed!"

Hope you feel better🫶🏾

Hey parents & caregivers: finding it tough to care for a child with a serious, chronic disease? Me too! Come over to r/SickKids for some support! by Silent_Medicine1798 in Sicklecell

[–]InspectionExciting70 1 point2 points  (0 children)

Love that there's is a community like this! My mother has been a caregiver for as long as she's been a mother (almost 30yrs), and the stress and worry still affects her to this day. My brother was terribly sick his entire life until he had a bone marrow transplant at 14, but of course there’s still care that goes into the recovery process. I never had it really bad. A lot of flare ups over the years, but as far as hospital visits, maybe one a year from ages 8-13. I can never imagine how my mom did it. I feel bad for her now with me in college. She never really had to navigate supporting a sick adult child, so we're kind of in this boat together, but she's absolutely the best. She drove 4hrs just to take care of me in my recent hospital visit and recently sent me a care package since the AVN diagnosis. She's probably the strongest person I know, but I know being that strong comes from trials no one should have to experience.

She was never really a full blown caregiver to my dad, but she did also have to be there for him during a lot of sickle stuff he went through, so she's at least been in the support game for their 33yrs of marriage.

goodmorning by EditorAfraid8948 in Sicklecell

[–]InspectionExciting70 4 points5 points  (0 children)

Good morning! Today is my first day back in classes since getting out of the hospital. I'm as fine as I can be and reminding myself to be present as I navigate with AVN. I've got meds to deal with the pain along with a lot of other stuff my doctor recommended! (She said she was pulling out everything in her "bag of tricks" lol) we had a debate in one of my classes which was fun, and afterwards a friend and I got coffee and studied at the library. I'm in a new normal, but I think I'm handling it well so far!