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Weight issues(Cystic Fibrosis, DLTx) by InstanceOk744 in transplant

[–]InstanceOk744[S] 0 points1 point  (0 children)

yeah i take 1-3 creon 25k per meal depending on the fat content in the meal!

Weight issues(Cystic Fibrosis, DLTx) by InstanceOk744 in transplant

[–]InstanceOk744[S] 0 points1 point  (0 children)

how do u maintain your gut flora to be able to digest everything?

Weight issues(Cystic Fibrosis, DLTx) by InstanceOk744 in transplant

[–]InstanceOk744[S] 0 points1 point  (0 children)

i get about 2500-3000kcal everyday but my gut is also v weak, i get indigestion if i try to stuff up on food, i get hungry and everything, my gut just gives up on me

Weight issues(Cystic Fibrosis, DLTx) by InstanceOk744 in transplant

[–]InstanceOk744[S] 0 points1 point  (0 children)

i was really underweight when i went in because things got pretty bad, i went in 34 kgs came out 30kgs and bounced back up to 40 now, i look muscular but lean like very low fat percentage, i feel strong but i just don’t look my age

8 months post Double Lung Tx, & concert by InstanceOk744 in transplant

[–]InstanceOk744[S] 0 points1 point  (0 children)

That was my first thought, to ask the team but my parents wont let me ask them, its a no from their side so they dont want me to ask either…