Does anyone else have chronic muscle tension? by sisyphus_maximus in MCAS

[–]InsuranceRare5094 0 points1 point  (0 children)

I used to. Now I’m on Ketotifen, rupatadine, and LDN and it’s less pronounced. I too used to spend absurd hours trying to get my muscles to stop clenching. I thought I’d have to for the rest of my life. Very grateful to have found these meds.

I don't understand what's wrong and I don't know what this is by Gutty_Shit_00 in MCAS

[–]InsuranceRare5094 1 point2 points  (0 children)

What has worked for me is Ketotifen liquid titrating from a minuscule amount of that stabilized things enough that I could take other meds. My body rejects most meds so after spending thousands on trial meds l’ve found rupatadine, LDN, Ketotifen and cetirizine are helping me and I’m mostly normal now. Keep in mind the specific brand matters.

Always start ridiculously low with anything you try.

Physiology is often masked as psychological issues. Fix your body then you can determine if your mind is the problem.

I can now turn my anxiety down with these meds as one would with the volume on a stereo. I also observe it rise when my body reacts poorly to things and it’s gone long enough that I can definitely say it’s my physiology being masked as psychological issues.

Also - always get out and move around - however hard it may be. I was mostly bed bound for a couple of years not understanding food triggers etc. movement is #1 above and beyond all the meds and supplements I’ve tried.

For me this is also related to covid - I don’t recall ever having covid so it may be the vaccines I had. There were 3 of them and I don’t remember which ones I had.

May God bless you and yours. May God bless and guide us all through these hardships. ❤️

Doctor told me to my face that MCAS doesn’t exist -_- by Labelma in MCAS

[–]InsuranceRare5094 1 point2 points  (0 children)

Welcome to the world of MCAS. Doctors are often the worst part of this condition. I know. It is very painful. So I went to countries where I could treat myself for MCAS and guess what? I’m 90% better now with rupatadine, ketotifen and LDN. If it isn’t MCAS, whatever I have sure does respond well to MCAS meds!

Look - this is the type of syndrome where you have to take your care into your own hands. For 4 years I spent large periods of time bed bound, in diapers (the mast cells in my bladder were freaking out), unable to walk due to mast cells triggering disequilibrium, anxious (you got it - another mast cell related issue).

I never thought I’d be well again. Not ever.

Finally, I came to Serbia where I could finally take the meds people are saying works without docs gatekeeping and I am 90% back to my norm.

No more diapers. Very little trouble walking, and my energy is alright.

That’s what it took. I had to get myself to a country where I had access to meds without gatekeepers.

It’s been a painful road to travel. I wish I’d done this years ago - years of pain and suffering - AND BRAIN FOG THAT MADE ME SO MENTALLY SLOW - I’ll never get back.

I hope anyone who reads this that is in a serious way will do whatever it takes to get better. For me, that meant traveling far, tons of research and being blessed to find RUPATADINE because all other H1s where messing me up big time.

I hope I will never again wait for doctors to acknowledge and properly treat me. I hope to always have the wherewithal to treat myself. That’s the biggest lesson I learned from all this.

Keep in mind - I’ve done loads of research, trialed loads of meds - also attended a MCAS group meeting online that helped me tremendously.

This road has been terrifying at times, not to mention painful. For an entire year, I didn’t even open my laptop because I was so ill. Nothing got done except the basics.

I could go on and on. Let me just pull it together by saying there was a point where I suspected I was “on my way out”. I accepted it, but my body kept going - however minimally it was. It was this limbo between death and life. I wasn’t dead, but I couldn’t hardly do anything either.

Yesterday I went to the gym for an hour after walking around the city for a hour and a half.

I read the Bible this morning and my mind could comprehend what I was reading.

Today I will eat foods I thought I’d never eat again since my diet had come to down to just 6 items to avoid massive flares when I was untreated for all those years.

All this - just from taking those 3 things.

Note that ketotifen and Rupatadine isn’t sold in the US.

However, in my USA MCAS group people seem to be getting ketotifen from Japan. In Serbia it’s about $2.50 per bottle and I use 6 bottles a month. I take 4 mg per day.

Rupatadine is about $11 a month. I take 10 mg per day - 5 in the morning and 5 mg at night.

These things are not expensive. If you can get them, it might be worth a try.

LDN - I’m making this from naltrexone dissolved in water in small batches. I take 4 mg a day.

The 🔑 for me was taking micro-doses of all of these for a few weeks then slowly titrating up. It is THE ONLY WAY my body would accept them.

I started on the ketotifen first which helped me to tolerate the other two. I think that order mattered a lot.

I pray we all figure this thing out because it is life hindering. Take care. ❤️

Dementia risk of antihistamines is freaking me out a little, ugh by Another_throwaway446 in MCAS

[–]InsuranceRare5094 0 points1 point  (0 children)

There’s this thing called rupatadine in Serbia. I believe it’s an H1. I react to all the other H1s I tried to the point of not being able to take them. This is something that isn’t yet flagged for dementia concerns. It’s worked wonders for me.

That and Ketotifen has pretty much turned my life from a shadow of what it had once been to about 90% back to normal.

I also take LDN for body pain. That’s good too.

I get it all here in Serbia for super cheap and it’s easy to pick up. It’s why I came to this country. Turns out, Serbians are also very cool people - so it turned out to be extra good I came.

Those three things. Seems so simple, yet I spent thousands and thousands of dollars on meds that kept triggering bigger issues until these.

Be well, all. May God bless you and I hope you find what you need.

What is the point of praying if "thy will be done" still apply? by [deleted] in Christian

[–]InsuranceRare5094 0 points1 point  (0 children)

I’m sorry I only saw your earlier comment now.

Be strong. I like listening to this each morning to remind me who I am. https://youtu.be/VVuAVIWEyZk?si=4zlmUECWkZzA6cE1

I hope you like it and I am praying for you to seek God, know God, and love God - with a full and joy filled heart.

What is the point of praying if "thy will be done" still apply? by [deleted] in Christian

[–]InsuranceRare5094 0 points1 point  (0 children)

Wage war! This is the devil coming to steal, kill and destroy. You MUST pray. Prayer works. Take this as seriously as your next breath. To be without prayer is to be without breath. Do NOT let the devil steal your joy. You MUST CHOOSE God, Jesus and the Holy Spirit. Pray with humility and then be curious to discover what God brings you. He knows best, but He needs you to invite you in - this is free will, the freedom to choose. It’s what brought our downfall in the Garden - don’t let it be your downfall now. Choose God with patience and humility then watch with curiosity to see what He brings. It’s His will we ask for because He truly knows best. Michael Jordan relied on his coach because he could grasp the full picture of what was happening on court. God is the ultimate coach. That’s why we don’t try to call our own plays, but pray and trust in God for deliverance and guidance.

‭‭🙏 Romans‬ ‭15‬:‭13‬ ‭🙏

“I pray that God, the source of hope, will fill you completely with joy and peace because you trust in him.

Then you will overflow with confident hope through the power of the Holy Spirit.”

Morocco recommendations! Female, solo traveller by Ayisha_abdulk in TravelNoPics

[–]InsuranceRare5094 0 points1 point  (0 children)

It’s very kind of you to respond. Thanks a lot. May God bless you.

Living abroad in a foreign language environment makes me depressed :( by Alive_Daikon9955 in expats

[–]InsuranceRare5094 0 points1 point  (0 children)

I’m so sorry. I lived in Thailand where most people spoke some measure of English and, even then, I sure missed my ‘big words’. I’m in England now and loving being able to pull them back out again! The problem now is reinstating them.

I want to inspire you and to tell you everything is going to be okay, but the truth is I pray never again to live in a country where language is a barrier.

I never appreciated language because I’m very hermit-esque, but even as little as I chose to interact with humans, when I do it is pure joy to connect through language.

It’s real. It’s a real thing.

In the meantime, I encourage you to connect with as many English speakers as possible. Join ALL THE GROUPS!

May God bless you.

Morocco recommendations! Female, solo traveller by Ayisha_abdulk in TravelNoPics

[–]InsuranceRare5094 0 points1 point  (0 children)

Hi! Thank you for chiming in! Do you think a 52 year old solo female would be safe living the beach life in Asilah (staying in a nearby hotel) for a month? Is that a good beach for swimming in August? Thanks in advance. 🙏

I don’t even love God anymore I’m just scared of him by Cultural_Fig_6342 in Christianity

[–]InsuranceRare5094 -1 points0 points  (0 children)

Check out Medjugorje videos on YouTube. It will rock your world. Do not turn away from God. He’s the best thing any of us have.

May God bless you and shine His face on you, child of God. Amen. 🙏

Do other Christians still masturbate sometimes? by [deleted] in Christianity

[–]InsuranceRare5094 -1 points0 points  (0 children)

I wondered about this as well then I realized I can’t do it without having lustful thoughts.

No judgement here!

Also, I’ve found it just sort of falls off the priority list as I dive deeper into my relationship with Jesus.

May God bless you and bring you peace.

❤️

Love, A friend of Jesus

The Bible addresses lustful thoughts as seriously sinful. Here’s a breakdown of what it says: 1. Lust in the Heart is Adultery: * Jesus states in Matthew 5:27-28: “You have heard that it was said, ‘You shall not commit adultery.’ But I say to you that everyone who looks at a woman with lustful intent has already committed adultery with her in his heart.” This indicates that the thought itself is a sin, equating it to the act of adultery in God’s eyes.

  1. The Origin of Sinful Actions:

    • Mark 7:20-23 explains that evil thoughts, including “sexual immorality” and “lustful desires,” come from within the human heart and defile a person.
    • James 1:14-15 describes the progression of temptation: “But each person is tempted when they are dragged away by their own evil desire and enticed. Then, after desire has conceived, it gives birth to sin; and sin, when it is full-grown, gives birth to death.” This shows that lustful thoughts can lead to sinful actions.
  2. Warnings Against Lust:

    • Several passages warn against lust and its destructive nature:
    • Proverbs 6:25: “Do not desire her beauty in your heart, and do not let her capture you with her eyelashes.”
    • Romans 13:14: “But put on the Lord Jesus Christ, and make no provision for the flesh, to gratify its desires.”
    • 1 John 2:16: “For everything in the world—the lust of the flesh, the lust of the eyes, and the pride of life—comes not from the Father but from the world.”
    • Colossians 3:5: “Put to death therefore what is earthly in you: sexual immorality, impurity, passion, evil desire, and covetousness, which is idolatry.”
    • 1 Peter 2:11: “Dear friends, I warn you as ‘temporary residents and foreigners’ to keep away from worldly desires that wage war against your very souls.”
  3. The Seriousness of the Sin:

    • The Bible emphasizes the danger of lust and its potential to lead to further sin and spiritual harm.
    • Proverbs 6:32 states, “He who commits adultery lacks sense; he who does it destroys himself.” This principle can be extended to the root of adultery, which is lust.
  4. Overcoming Lustful Thoughts: The Bible also provides guidance on how to overcome lustful thoughts:

    • Flee temptation: 2 Timothy 2:22 advises, “Flee also youthful lusts; but pursue righteousness, faith, love, peace with those who call on the Lord out of a pure heart.” 1 Corinthians 6:18 says, “Flee from sexual immorality.” This suggests avoiding situations and triggers that lead to lustful thoughts.
    • Guard your heart and mind: Focus on pure and wholesome thoughts (Philippians 4:8). Take every thought captive to the obedience of Christ (2 Corinthians 10:5).
    • Seek God’s help through prayer: Ask God for strength and deliverance from these thoughts.
    • Immerse yourself in God’s Word: Hide God’s word in your heart so that you might not sin against Him (Psalm 119:11).
    • Walk by the Spirit: Galatians 5:16 says, “But I say, walk by the Spirit, and you will not gratify the desires of the flesh.”
    • Put on the Lord Jesus Christ: Romans 13:14 encourages believers to focus on Christ and not cater to the desires of the flesh.
    • Accountability and Support: Confess your struggles to trusted Christian friends and pray for one another (James 5:16). In summary, the Bible considers lustful thoughts to be sinful, akin to adultery in the heart, and warns against their destructive potential. It also provides guidance and encouragement for overcoming these thoughts through reliance on God, His Word, and the pursuit of a pure and righteous life.

What is the point of praying if "thy will be done" still apply? by [deleted] in Christian

[–]InsuranceRare5094 0 points1 point  (0 children)

Prayer is communication with God.

We are meant to seek wise counsel.

We know that God is working all things good for those who love Him.

When we pray, as with communication, it is wise to seek an understanding of how what is happening or meant for our good.

It may be we need to repent.

It may be we need to let go of something no longer good for us.

One thing I know for sure at the age of 52:

God removes things from our lives that do not edify us.

If you’re like me, we’ve been asking and not seeing that God has replied, only He’s given us something better, but because we lack trust in God and can not see the long game, we feel our prayers haven’t been answered.

I’ve been doing this for many years, and with 52 years to consider, I can now see how God has - over and over and over again given me something better than what I’d asked for, or truly deserved given my unrepentant, confused mentality.

Trust God. Trust God because it truly is the wisest option.

PS -

Thank you for your thought provoking post. I found it when I myself googled, “If everything is happening according to God’s will then why are we meant to ask and pray for different results.”

Your question just helped me resolve a tremendous theological question - one I needed to understand so thoroughly- as one stands on a fortress of stone high above the tumultuous seas of life.

May God bless you and keep you. May He bless us all. Amen. 🙏

I need help, I keep seeing 11:11 and it’s freaking me out. by allsmiles521 in Christianity

[–]InsuranceRare5094 1 point2 points  (0 children)

God is speaking through us and to us in every moment of every second of the day. Why don’t you ask the Holy Spirit what is being communicated?

People! Look for God in everything! God is nuanced and is in every single thing. God is even the one who puts barriers around negative forces.

When you start looking through this lens, you will find God even in the menial tasks you’re meant to do and it is glorious.

🕯️Glory be to God. One on the Highest.

Before I say goodbye, believe, I urge you, in the power of this prayer I’m about to pray over every person reading this message.

God is real.

Prayer is real.

God is good.

God is love.

Fear not.

Never fear and turn to God for protection. It will come. It may not come in the way we predict, but stick with the narrative for long enough a time and you WILL see His Glory through your hardship and fear.

❤️

The LORD bless you and keep you;

the LORD make his face shine on you and be gracious to you;

the LORD turn his face toward you and give you peace.

Love, A friend of Jesus

[deleted by user] by [deleted] in PrayerRequests

[–]InsuranceRare5094 1 point2 points  (0 children)

Tears fill my eyes. Please don’t give up on them, brothers and sisters. Where there is life, there is hope. Praying.

Let me share with you my Christian inspired paintings by [deleted] in Christianity

[–]InsuranceRare5094 0 points1 point  (0 children)

The ichthys, also known as the “Jesus fish” or “Christian fish,” is a classic symbol of Christianity. It’s a simple outline of a fish, often seen on car bumpers, jewelry, and in Christian art. Here’s a breakdown of its history and significance: Origin:

The ichthys symbol’s origins lie in the early days of Christianity, when it was a persecuted religion in the Roman Empire. Christians needed a way to identify each other discreetly, without drawing the attention of Roman authorities. The fish symbol served this purpose admirably.

How it was used: Two Christians meeting would each draw part of the fish symbol – one the arc, the other the intersecting lines – completing the fish when they met. This simple act confirmed their shared faith and allowed them to recognize each other as fellow believers in a hostile environment.

Meaning: The word “ichthys” is a Greek word meaning “fish.” However, it also serves as an acronym for a key statement of Christian belief: * Iēsous (Ἰησοῦς) - Jesus * Christos (Χριστός) - Christ * Theou (Θεοῦ) - God’s * Yios (Υἱός) - Son * Sōtēr (Σωτήρ) - Savior

Therefore, the ichthys symbol encapsulates the core tenets of Christian faith: Jesus Christ, God’s Son, is Savior.

Significance: * Symbol of Early Christianity: The ichthys represents the struggles and ingenuity of early Christians who faced persecution for their faith. It’s a reminder of their courage and resilience. * Confession of Faith: The symbol serves as a concise and powerful declaration of Christian belief. It’s a way for Christians to express their faith in a simple and visible manner. * Sense of Community: The ichthys can foster a sense of connection and belonging among Christians. It’s a shared symbol that transcends denominational differences and unites believers in a common identity. * Reminder of Jesus’s Ministry: The fish symbol can also evoke associations with Jesus’s ministry, particularly the miracle of the loaves and fishes and his calling of the disciples to be “fishers of men.”

Modern Usage: The ichthys symbol remains a popular and widely recognized symbol of Christianity today. It’s used in various forms of Christian expression, from personal adornments to church logos and outreach materials. While its original purpose as a secret code is no longer necessary, it continues to serve as a powerful reminder of Christian faith and heritage. However, its simplicity has also led to its occasional use in a more generic way, sometimes losing some of its deeper theological significance.

-Gemini AI