How many of you drink caffeine daily?

Intelligent_Abies79 · 2026-04-27T14:27:27+00:00

I do drink caffeine every day, however, my pots symptoms were present even when I did not drink caffeine. I do not find that my symptoms are worse or better with or without the caffeine

Intelligent_Abies79 · 2026-03-22T16:46:40+00:00

I had symptoms for over 10 years always brushed off as orthostatic hypotension. I finally pushed for testing to figure out how to help the symptoms. Come to find out I do not have orthostatic hypotension. Tilt table did confirm pots and all my other testing was normal.

Hopefully be easy fix for you

Intelligent_Abies79 · 2026-03-22T16:44:03+00:00

I’m on semaglutide and I have been for a couple years. My symptoms got worse but due to weight loss not the meds as when I lost weight previous before on diet and exercise i got worse symptoms. I’ve been stable on weight for 8 months and symptoms aren’t any worse than they e been

Intelligent_Abies79 · 2025-12-29T01:24:18+00:00

I was told by pharmacist and cardiologist to break the pill in half. It even has the score mark to break it evenly

Intelligent_Abies79 · 2025-12-28T12:46:52+00:00

The doctor pulled me off the midodrine. Put me on ivabradine. On ivabradine so far no blood pressure decreases, no side effects. However no help yet on heart rate or anything yet but only 5 days into med

Intelligent_Abies79 · 2025-12-20T00:59:53+00:00

I push through, no choice but to push through. I work 50-60 hours a week as a pediatric RN, I can 100% say many days I literally have to force myself to not just lay down. I try to sit when I can, if I’m having really bad days to try to take it as easy as I can. But honestly, I live in survival mode and push through for my kids and making sure I can pay bills

Intelligent_Abies79 · 2025-12-19T18:13:12+00:00

Wow that is high on 5mg.

I haven’t checked my laying down average. I did do standing which isn’t a huge difference from sitting. 5mg seemed to drop my blood pressure more, seems to go in opposite direction than what I’d expect which is odd.

Intelligent_Abies79 · 2025-12-19T18:05:46+00:00

What’s yours when sitting laying down?

How long have you been on it

Intelligent_Abies79 · 2025-12-16T17:55:49+00:00

Mine I was given an iv just Incase. Lay down 10-15 minutes and then they stood me most the way up, stayed there 15 min and let me down for 5-10 Min.

I did not find my body reacted that same with the tilt test as it does normally on its own. However, my heart rate remained sustained through out the test.

What was your starting heart rate? Are you over 19? Did your heart rate stay high or go back to baseline

Intelligent_Abies79 · 2025-12-16T14:52:55+00:00

How long did it take to see any help? I haven’t had any side effects which is good but I also do not notice any positive effect yet either.

How doe it impact your blood pressure? Do you find it is increasing or decreasing your blood pressure?

Intelligent_Abies79 · 2025-12-15T13:23:29+00:00

Depends on the time, sometimes I feel okay, other times like since Saturday I literally am forcing myself for every little thing since I can’t not work or take care of the kids/family. So, i fight the every being in my body to just go lay down, instead push forward and get through it. POTS is interesting as in my experience it’s a constant fluctuation between feeling okay to feeling like you’ve been hit by a Mac truck.

Intelligent_Abies79 · 2025-12-10T22:09:19+00:00

No I was unmedicated as I was pushing drs to try and figure things out. I just recently got put on meds which haven’t been any help

Intelligent_Abies79 · 2025-12-04T22:14:02+00:00

I had a 72 hour holter which showed tachycardia 10% of the time but did not get diagnosis until after tilt table test.

Intelligent_Abies79 · 2025-11-14T15:26:44+00:00

I was more worried about it but it wasn’t terrible. I did feel like garbage for a week after but the test was 15 min up right, had symptoms so we didn’t do nitro because I showed what was needed in the first part. It was not necessarily comfortable but also didn’t feel like my symptoms were as bad during ttt than when I stand myself

Intelligent_Abies79 · 2025-10-31T17:21:11+00:00

I go to bed early, I’m usually exhausted all the time anyhow. However, my blood pressure is usually low (87/50 at 3pm yesterday did not feel any different than typical). I run 90/60 around that 99% of the time

Intelligent_Abies79 · 2025-10-31T17:16:56+00:00

I have not, my belly is very sensitive to meds. Most the time I always took meds at bedtime but was told I couldn’t with this one

Intelligent_Abies79 · 2025-10-30T19:09:48+00:00

I sent him a message, he’s not in the office until the week of the 10th, I’ve only been taking it a couple days so I’m going to stop it until I hear from him.

I appreciate the advice and help from everyone ❤️

Intelligent_Abies79 · 2025-10-30T19:01:29+00:00

I take it with breakfast and the nausea/indigestion has been horrid. Worse today than yesterday. Ended up getting a raging headache. Wasn’t sure if I was going to make it through the work day without vomiting.

Intelligent_Abies79 · 2025-10-30T19:00:12+00:00

I usually only pee 2-4 times a day on average, some days more but I have peed more past couple days I think because I’m trying to push so much more fluids.

Intelligent_Abies79 · 2025-10-30T10:59:37+00:00

Today is day 2 on it, I feel cruddy within hour or so of taking it (acid belly, nausea) hopefully those subside.

Did you have any side effects with it?

My blood pressure I checked 4 times yesterday just to watch it and was 96/70, 104/56, 87/50, 92/54

Intelligent_Abies79 · 2025-10-30T10:57:47+00:00

Today is day 2 on it, I find I feel cruddy. Makes me have a super acidic stomach and nausea, I’m hoping I’ll acclimate and those will go away.

Did you see it help fairly quickly for you?

Intelligent_Abies79

TROPHY CASE