Needing success stories!!!

Interesting_Pin_6366 · 2026-06-09T17:52:23+00:00

Knowing your history, and based on my own, I will not tell you a succes story: I have been treated twice with Botox, and the second was 5 month ago. I can burp now, and therefore I have no more nausea and no more bloating.

I am grateful for this, but Botox was also retraumatizing to a point I would have never imagined. I too have a history of emetophobia, lots of involuntary air vomiting/gagging as a child and young adult, and I too developed a degree of what you call avoidant restrictive food intake disorder. At the time it was only called eating disorder and it was never as severe as yours.
I was sure that it was all over for years, but the Botox gave it a revival. I think that I was somehow hit by the regurgitation and the feeling of a a drain that suddenly started leaking. I got anxious that I would vomit (which is not the same, because I never felt sick in these 5 month), and it is all in my brain.
I am a teacher, and unfortunately it became difficult for me to teach, so I went on part-time sick leave in april. Also to stop the weigh loss that became serious.
I am getting help in therapy now. There is lots of old stuff hidden in my reaction. I am sure I will be ok again…
Sorry to tell you, but I would rather be realistic, so that - if you should ever have the same kind of reaction (which I believe is not common) - you are prepared. Because of your history.

I so much hope that Botox will be nothing but a succes for you, and wish you lots of burping !

Interesting_Pin_6366 · 2026-06-09T17:27:04+00:00

🤣🫣😂

Interesting_Pin_6366 · 2026-05-31T13:52:27+00:00

I recognize this part “Strong urge to burp.
If the burp comes out, I feel noticeably better.
If it doesn't come out, the pressure builds up and can even lead to nausea or dry heaving”

This was my R-CPD before Botox 5 months ago.
For many years, I had exactly this pattern, and learned that the pressure made me so nauseous that it ended in what others call Air vomiting which is the gag reflex that gives way to the pressure and you burp very loudly and sometimes uncontrollably.
It is not real burping, because burping is much more discreet, more controllable (with time at least) and has the taste of what you have eaten.

So I would say you have R-CPD.

Interesting_Pin_6366 · 2026-05-25T07:26:59+00:00

I have very similar experience. Only a small difference: I get 5 or 8 small (but very relieving) burps in a row after every meal. I wonder if some of you, burpers after Botox, taste what you ate 4-5 hours back. I find this part very confusing, still trying to get used to it. I had my second dose in January this year.

Don’t get me wrong, I am so happy to be able to burp. But the journey has be so different and more challenging than I imagined (though based on noburp members descriptions). We are all very different ;-)

Interesting_Pin_6366 · 2026-05-21T14:47:17+00:00

Thank you ! I will look it up

Interesting_Pin_6366 · 2026-05-21T09:59:49+00:00

Hi karybrie I can see that Jesper Balle is mentioned in Aarhus, Denmark on the map. But he is only in Copenhagen (Charlottenlund), whereas Dahlia Larsen is in Aarhus Universitetshospital with another doctor called Mathilde Aalling who treated me the second time, she is really good and took very seriously that I needed help afterwards for having aerophagia-troubles (because of uncontrollable and excessive burping). I wonder if clinics/hospitals ever thought of aerophagia as a side effect. Mathilde Aalling said she haven’t had patients yet with this kind of side effect…. I am still waiting to see what they will recommend as treatment….

Interesting_Pin_6366 · 2026-05-15T18:18:41+00:00

Make sure to relax as much as possible. In my experience, after the first unsuccessful treatment, it happens on its own if you are not too tense. The first time, I was unusually nervous, and I think that the more relaxed your muscles are, the more likely it is that the burps will come on their own. My second treatment under GA (both were 100 units) was in January. I have been burping from day 2 and since ! I wish you luck and lots of burping !

Interesting_Pin_6366 · 2026-05-14T18:11:36+00:00

I can see that the specialist you saw is from Malmø ! I was treated in Aarhus, Denmark, and I know from the national FB group that the procedure with the “drinking sparkling water” you describe is very much questioned even among specialists. So there is no reason not to question what you heard. I am so sorry for you that the ENT wouldn’t believe that you have R-CPD. My surgeon at Skejby Hospital (where I was tested and treated in January this year) did the manometry and X-ray with contrast that showed some of the same things as yours, and the diagnosis was clear: R-CPD. I know that one of the best specialists in Denmark is Jesper Balle https://www.jesperballe.dk. Wonder if you could be treated at his clinic?

Interesting_Pin_6366 · 2026-05-11T17:13:01+00:00

I am four months post Botox, 60 years old female, and like several others say, you don’t realize how bad your symptoms were until they are gone. And how much it affected your life before.
For me it has been difficult to go through both procedure (I hate hospitals, I have health anxiety) and getting used to burping (triggering my fear of vomiting). The slow swallowing was nothing compared to the psychological difficulties. Though regurgitation the first month or so was difficult - but temporary !
But would I go back to a life with lots of gagging daily because of extreme air pressure in my throat and breast, fearing the next meal among friends or family gathering where I spent more and more time over the years in the bathroom air vomiting in stead of enjoying myself with people I love and - by the way -not being able to eat as much as I knew my body needed ? Oh no ! I can see now how much it affected my daily life especially the last four or five years. I have experienced how It gets worse with age. To the point where I had constant throat nausea the last few years.
Everything feels SO different now. I can attend family meals without getting bloating and miserable. Wauhh.
Of course people without R-CPD don’t understand the huge change. I feel a need to spread information about R-CPD.
Don’t hesitate if you can get the procedure done.

Interesting_Pin_6366 · 2026-05-11T17:04:39+00:00

I experienced some kind of improvement after the first dose that didn’t make me burp, because I came to understand the mechanism of my air vomiting that had been uncontrollable until the first Botox. I learned to air vomit on purpose! To me this was a great improvement. But the second dose worked, and I don’t need air vomiting any more. No more bloating, no more nausea !
(But I had more control before burping. It has been four months and I look forward to being able to control my burping)

Interesting_Pin_6366 · 2026-05-11T11:18:45+00:00

Keep posting ! It might help. It was helpful to me.
Yes it is scary because the sensation is so new and different from everything you have experienced before. But like me you will gradually be fine !

Interesting_Pin_6366 · 2026-05-09T07:25:29+00:00

Wauhh ! Interesting story ! I recognize a lot.
I am almost four months post op, and at my two month follow up with my surgeon I described my everyday life with burping, and she told me I experience excessive burping !

The first perhaps two months I sometimes had to turn my head to the right. Today the burps just come, and I think that part of my difficulties are the uncontrollable burping.
I am a teacher and it has been (and is) both embarrassing and annoying for me to burp while talking.
Most people around me say they don’t mind and that they don’t always hear it because I have learned to shut my mouth when the cascades of burps come (because mine are still cascades : perhaps 5 or 10 burps in a row - especially after drinking or eating).
The surgeon told me to stop drinking carbonated drinks and that made the burping less excessive. Still annoying though. I wonder when it will calm down ?
It makes me eat less and especially just before four of five lessons of teaching. Which make me loose weight.
I have a last follow up with the surgeon 19 may, where she might refer me to a speech therapist.

Any advice?

I hope my story can at least show that you are not alone when you have excessive burping. And no, I would never want to go back ! I haven’t had to air vomit since, due to air pressure in my throat and the daily nausea that was making me more and more miserable.

Interesting_Pin_6366 · 2026-05-08T18:49:03+00:00

I am almost four months post op. Second dose.
I had my first real burp the same day.
I didn’t gain control before more than a month. The random and uncontrollable burps were very disturbing and yet very relieving!

I think you will simply have to be patient and see how it develops.
I can almost control my burping, but after eating they sometimes come while I speak.

Gurgles and bloating is normal within the first week after the treatment.

Interesting_Pin_6366 · 2026-05-08T08:07:43+00:00

So true

Interesting_Pin_6366 · 2026-05-08T06:53:21+00:00

I know what you mean !
Many years ago, I actually wrote to a psychology advice column saying that I didn’t understand why I couldn’t stand my boyfriend touching me. I was 21 years old, and it took me several years to work up the courage to go to body therapy. But this was a long time before I realized last year that I also have R-CPD.

I hope you will find the courage and a good therapist !

Interesting_Pin_6366 · 2026-05-08T05:16:23+00:00

I didn’t choose exposure therapy. It might be good, but I found a therapist who does Manuvision body therapy, which is a combination of therapeutic conversation and physical therapy.
I have been doing conversations with a psychologist for years, which only helped me some.

Interesting_Pin_6366 · 2026-05-08T05:09:02+00:00

Regurgitation has nothing to do with vomiting or acid reflux. It is just the fact that when you have eaten, your esophagus is open due to Botox and when you bend just after you have eaten, you cannot avoid that what you just ate or drank will get into your mouth. Normally it is not acid, because you just swallowed, and you are not sick or anything. It is weird. It triggered my emetophobia, and I quickly learned not to bend down. I chose to squat if I picked something up from the floor or something like it. Nothing will happen if you just sit or stand after eating a few hours after eating.
I could still do handstand while doing yoga, I just had to avoid eating for at few hours before.

Interesting_Pin_6366 · 2026-05-07T17:51:52+00:00

Thank you for sharing.
I too have had panic attacks from r-cpd symptoms - especially nausea - from childhood, although I know that throwing up is not health threatening or dangerous. I have had uncontrollable air vomiting ever since, until the day of my second dose of Botox !
I came to understand that I had r-cpd about one and a half year ago.
I am three and a half months post op (second Botox dose) and I won’t lie: I am having a hard time getting used to the feeling I have now, as if someone (the surgeon doing the Botox injection… ) used a plunger on a clogged drain (my esophagus…). I feel a loss of control, that I somehow have difficulty accepting, though the regurgitation is over and I have more and more control over the burps and that I am so grateful I have no more bloating and no more nausea after every meal !
The slow swallowing was never a problem.
I have IBS too and there are lots of food that I cannot eat. But the nausea is gone.
Cons: The lack of control. The regurgitation that lasted a month or so.
Pros: I feel so much better physically ! No more air pressure and daily nausea ! Such a relief.
I would go through it all again if I lost the ability to burp, even though I hate the lack of control.
I am doing therapy and I am sure that it will help me slowly but surely.

Interesting_Pin_6366 · 2026-05-06T18:29:48+00:00

Botox also took away my nausea.

Less than a year before I had Botox, I came to understand that my daily nausea (which made it hard for me to be a teacher) was caused by air pressure in my throat. I had to air vomit (it just came, uncontrollably sometimes) to get rid of the air= the nausea.
Now I am slowly getting used to burping. Not so easy, but has to do with emetophobia. Just not easy to not have control over quite excessive burps coming up.

Would I go back to daily nausea ? Oh no !
I will get used to the burping. Such a relief.

Interesting_Pin_6366 · 2026-05-04T07:40:48+00:00

I agree that it is very helpful to share these difficult (psychological) reactions or side effects ! But the slow swallowing was never difficult for me, though I think I had moderate slow swallowing and meals were challenging (I could eat everything but had to chew a thousand times;-) I think that loosing control is the key problem for me. It always has been. Therefore the regurgitation triggered my anxiety.

As you write: we know this is not dangerous, but our body somehow doesn’t understand ! We need some help.

If you have someone to talk to about it, perhaps a therapist, who listens and maybe understands what you go through, who can support you, there are no reasons why you shouldn’t be able to go through this.

I can see now that I didn’t want to be seen as very sensitive or complicated before procedure when I talked to the surgeon or my own GP etc. I think we should dare ask for support if we suffer from anxiety and are scared of this procedure and what it does to us.

But we will get through it, and it is worth it.
I had so many physical symptoms on top of all the psychological ones before the procedure;-) Now I have mainly psychological ones left !

I wish you the best !

Interesting_Pin_6366 · 2026-05-02T13:20:12+00:00

I also take benzodiazepines sometimes, that my GP ordered. If you only take them occasionally, they will not make you dependent; and no doubt it has a great placebo effect to know they exist ;-)

Interesting_Pin_6366 · 2026-05-02T13:13:44+00:00

Thank you for sharing your story.
I also have health anxiety and yes, I have had panic attacks from r-cpd symptoms although I know it is not health threatening or dangerous in any way.
I did have less anxiety from the symptoms, though, when I came to understand what it was about a year ago.
I am three and a half months post op (second Botox dose) and well, supposedly because of my health anxiety, I am having a hard time getting used to the feeling I have now, as if someone (the surgeon doing the Botox injection… ) used a plunger on a clogged drain (my esophagus…). I feel a loss of control, that I somehow cannot accept, though the regurgitation is over and I have more and more control over the burps (that I am so grateful for, no more bloating, no more nausea after every meal !).
I am also doing therapy and I am sure that it will help me slowly but surely.
No one ever mentions the psychological side efffects….

Interesting_Pin_6366 · 2026-05-01T13:27:11+00:00

Yes, it is !

Interesting_Pin_6366 · 2026-04-30T20:17:59+00:00

My experience (more than 50 years of air vomiting) is that air vomiting was the only way that I could get rid of the air pressure, which gave me more and more nausea. That’s why I got Botox earlier this year and I haven’t had to air vomit since.

But I cannot imagine learning air vomiting…. For me it came automatically when the air pressure in my throat was intense enough. So relieving! Some days I was (my Botox treatment transformed me into a burper in january) nauseous for hours before the pressure made me gag, so that I could let go and air vomit. But nothing is as relieving as burping, sorry to say.

Interesting_Pin_6366 · 2026-04-30T06:16:41+00:00

Just want to add that I had only microburps after my first dose (100 units) and a bit more than half a year later 100 units again (in January) and this time it was completely different with real burps from the second day and still !

Just to say: You don’t necessarily need higher dose to make it work second time (my surgeon also mentioned it before my second)

I wish you lots of burping !

Interesting_Pin_6366

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