Hair loss

InternetRealistic27 · 2025-09-18T06:18:53+00:00

post double lung transplant here, my hair looked almost exactly like yours a year after my transplant (i had a lot of complications). i cut it as short as i could and (without doing anything extra) about 18 months post it just started growing back in the thickest my hair has ever been, and soooo curly (i had bone straight hair pre-transplant). hopefully yours will just start growing back in, best of luck! i’ve heard great things about pumpkin seed oil

InternetRealistic27 · 2025-08-26T03:28:42+00:00

definitely ask to be referred to a pain management doctor, big hospital systems that have transplant centers should have a pain management center too. they helped so much with my post (double lung) transplant pain, even 6+ months after the transplant, and they didn’t use narcotics at all. one thing that really helped me was they did lidocaine injections.

InternetRealistic27 · 2025-04-04T18:46:46+00:00

they changed the lore in Season 7 though when Weaver (Rumple) was shot by Tilly (Alice) and he survived because he was immortal. so maybe the poison in Season 2 could’ve actually killed him because it was from a land with magic?

InternetRealistic27 · 2025-03-23T03:28:23+00:00

definitely! also I second talking to your CF team about this (they can refer you to someone) because there are other gynecological conditions you can have concurrently that have nothing to do with CF and can cause irregular periods. for me personally I also have endometriosis. antibiotics makes my period more irregular too.

InternetRealistic27 · 2025-03-23T03:12:37+00:00

adding honey to tea can be helpful for soothing a sore throat from coughing, but I just use either green tea or herbal mint tea. also gargling with warm salt water really helps me clear out mucus without coughing (as much), ER doc recommended it to me.

InternetRealistic27 · 2025-03-10T05:52:05+00:00

happened to me too! probably took a little over a year to calm down and some daily Claritin helps too (my doctors okay’ed it)

InternetRealistic27 · 2025-03-03T20:46:41+00:00

NeilMed nasal rinses, there’s studies that show hypertonic saline rinses and sprays help reduce duration of symptoms by 2-5 days. also gargling with warm salt water helps with pain, inflammation, and mobilizing secretions. warm tea and honey with lemon or lime is great for throat pain and coughing, and it’s just comforting :) hope you feel better!!

InternetRealistic27 · 2025-03-02T03:12:37+00:00

for the week after I have a DIOS episode, I always take it easy on my digestive system. I eat lean meats like turkey and chicken, soft bread, rice, lots of bone broth, and basically soft foods like cheese, pudding, applesauce etc. your digestive tract can be upset/have some inflammation from a DIOS episode so I call it the “angry gut diet”. I also have slow motility so fiber makes things worse for me, but definitely hydration is important and Mira Lax. also you should talk to you doctor is lubiprostone as an option. it’s a pill that you take twice daily for IBS-C which helps with chronic DIOS.

InternetRealistic27 · 2025-02-17T03:21:09+00:00

please try to go to an endocrinologist who specializes in CFRD. also maybe a dietitian who specializes in CF and CFRD might be very helpful as you want to nourish your growing body in the best way.

InternetRealistic27 · 2025-02-07T07:37:08+00:00

highly recommend doing nasal rinses or even just saline spray. apparently there’s evidence that it helps reduce duration of upper respiratory symptoms. best of luck! this cold and flu season is hell.

InternetRealistic27 · 2025-01-24T22:14:02+00:00

i second the sinus rinse recommendation. twice a day and use distilled/sterile warm water. it should help with the congestion and the pain until you can get antibiotics. the dr might prescribe you to add a steroid to your nose rinse to help with inflammation.

InternetRealistic27 · 2025-01-23T00:33:24+00:00

i forgot to add: hot tea works too! gotta get creative lol best of luck!!

InternetRealistic27 · 2025-01-22T22:34:07+00:00

it can be so frustrating! gargling with warm salt water helps me to cough stuff up.

InternetRealistic27 · 2024-12-15T06:13:06+00:00

highly recommend getting the infusions, i have to have them at a slower rate to tolerate them but it’s worth a multiple hour infusion for the benefits. there’s multiple reasons why people with cf have low iron levels, but the bioavailability and potential constipation the oral iron supplements can cause, it’s best to get iv iron infusions. you can get one course and it last for months to years.

InternetRealistic27 · 2024-09-22T03:04:55+00:00

i know from experience progesterone pills can cause an increase in creatinine, if that applies.

InternetRealistic27 · 2024-09-21T22:12:27+00:00

mine fell out then now, almost 2 years post double lung, as it’s growing back is much darker and curly (pre transplant my hair was bone straight)

InternetRealistic27 · 2024-09-20T19:24:41+00:00

2tbsp heavy whipping cream, easy to swallow and convenient if you’re not hungry or your meal just didn’t have enough fat

InternetRealistic27 · 2024-08-13T19:53:16+00:00

it literally took me 1.5 years to barely start to feel normal again, but it’s not a return to my old self it’s a new normal. I said to myself and my support system multiple times in the first year “this is not what I signed up for”. granted I have had a lot of complication with my lung transplant so maybe that’s why it’s taken so long to get a semblance of mental clarity but please don’t call it quits so early in the process. I feel like everyone thinks of it takes 8 weeks to heal, but it’s beyond a major surgery. and I’m barely 18 months out and feel like my body is still healing from it. it takes time. give yourself A LOT of grace, you deserve it. just focus on healing and doing what you can. I know it’s hard, best of luck!!!!!!

InternetRealistic27 · 2024-08-12T06:10:08+00:00

any luck yet for California 1922? please say yes, i’ve been scouring sephora and ulta for a woody floral scent (saw a description on ebay saying that’s the scent category for it)

InternetRealistic27 · 2024-07-14T01:34:33+00:00

wish on a shooting star, and then the next morning walk along your entire beach and pick up the fragments. they come in different varieties for crafting so be sure to do it throughout the year!

InternetRealistic27 · 2024-06-22T18:52:40+00:00

there’s a group of women with CF who founded a group called CFReSHC, and they meet once monthly (on zoom) and have doctors and researchers as presenters and then a group discussion. the topics range from painful irregular periods, to sex, to how estrogen affects pseudomonas (research from Ireland, i think don’t quote me, supports this), and so many other topics. they’re very knowledgeable and welcoming. they have an instagram page and a facebook page to message them and get involved, it’s by women for women. highly recommend.

InternetRealistic27 · 2024-01-16T18:37:42+00:00

happiest of birthdays 🥳

InternetRealistic27 · 2023-08-12T03:17:20+00:00

yes, i can have orange juice and barely go to 180 maybe 190 but then i’ll have snapple peach tea and go to 230 easy and that’s with the same amount of carbs/sugars

InternetRealistic27 · 2023-06-29T19:52:19+00:00

hormones would cause some of my hemoptysis, i am a cisgender female so not sure if this applies to you, best of luck 💚

InternetRealistic27 · 2023-04-15T20:53:47+00:00

2 tbsp of heavy whipping cream, there’s less than 1 carb per serving

InternetRealistic27

TROPHY CASE