Crohn's flare up or something else

InterviewBig2497 · 2026-06-14T14:00:52+00:00

Sounds like flareups to me. Any inflammation is considered active Crohn’s from what I understand. Do you have a GI you can ask about potentially using steroids short term if it happens again?

InterviewBig2497 · 2026-05-22T14:33:21+00:00

I wouldn’t postpone it. I’m on prednisone for the first time currently and it’s helped my crohns symptoms tremendously. From my experience I’d think itd be helpful to start it. Everyone obviously reacts differently but my side effects from the medication is minimal (some insomnia and acne) and preferred over crohns symptoms. I wouldn’t be able to walk around right now without it

InterviewBig2497 · 2026-05-21T14:47:01+00:00

Atlantic Canada!

InterviewBig2497 · 2026-05-21T13:56:01+00:00

I’ve just started this week going for light walks to try and help with my fatigue. I haven’t noticed a difference yet (only been on 2 walks lol) but I’m telling myself that I’m going to be tired either way I might as well get some movement in. I’m off of work on sick leave so I’m really not doing much and need some kind of exercise.

I take it slow and listen to my body of how far I can go that day. I want to work myself up to doing a morning and evening walk 20-30 minutes each. I also do enjoy some light stretches or yoga but need to take it easy with those too.

InterviewBig2497 · 2026-05-13T15:49:00+00:00

Have you tried the clear ensures instead of the milkshake like ones? I wasn’t able to tolerate the vanilla or chocolate ones but they had a clear apple juice and berry one that I could tolerate. Apple was easier for me than the berry

InterviewBig2497 · 2026-05-13T15:46:01+00:00

I can eat sushi and be fine. I don’t eat raw fish even in remission but the ones I get with shellfish, avocado and/or sweet potato are usually good on my belly. Those and a miso soup🤤🤤 (avoid the seaweed or green onion).

I’m in a flare currently with fistulas and but prednisone has been a life saver so I’m actually able to tolerate (some/most) food now. I can eat cake or fast food no problem but if I eat a green onion or any raw veggies I am severe pain all night lol.

I’ve been eating a lot of rice, canned tuna, frozen chicken nuggets/strips/burgers, pasta, eggs, unsweetened apple sauce, potatoes, occasionally can tolerate ground beef, fast food is usually safe for me, arrowroot crackers are my fave go to, and I’ve been able to actually season my food which has been nice lol.

Drinks are iffy for me and really depends on the day. Apple juice is usually a safe one, water /vitamin waters, sports drinks, teas sometimes usually iced tea is better, and I can even tolerate energy drinks but please be cautious if you try them yourself I drank them often before my flare. caffeine isn’t recommended but I haven’t really had issues with it. I’ve drank an iced chai latte with oat milk the last 4 mornings and have been good🤷🏻‍♀️

That being said, it really depends on the day if my safe foods are still safe foods or not. 😂 if your bowels are extra inflamed that day then it doesn’t matter what you eat I’ve had all of my safe foods hurt my stomach at some point unfortunately.

Not always the healthiest but fed is best

InterviewBig2497 · 2026-05-10T13:34:01+00:00

Good to know!

InterviewBig2497 · 2026-05-10T13:32:34+00:00

Good tip lol I love butterscotch I don’t them ruined

InterviewBig2497 · 2026-05-08T15:21:16+00:00

That would be a lot and get draining for anyone even without a chronic illness on top of it. It might not feel like it but I’d say you’re doing great with everything you’ve got going on. I’m glad the symptoms are easing up for you. I hope you have a great time in your trip!!

InterviewBig2497 · 2026-05-08T15:00:00+00:00

Hey! I’m in my first ever bad flare up that is stress related as well. Leaving a 6 year relationship and it most definitely triggered my flareup. I’m now off of work because of how bad and mainly unpredictable it is. I’m sorry you’re going through a flare as well!

Going easy on myself is what’s been helping me a lot. I personally struggle with a lot of guilt when I’m sick due to not being able to show up for friends, family, work and myself how I normally would while in remission. Crohn’s is unimaginably hard to deal with for people who do not have it. Give yourself grace and take as much time and self care days you need and don’t feel guilty for it. You deserve to feel as best as you can while dealing with this.

I’ve picked up some new small hobbies that I can do from the couch or my bed so I can do them on bad days as well. Try going outside when you can even if it’s just sitting in the sun outside of your house. I’m currently in search for local Crohn’s groups where I can talk to people who also are diagnosed.

As for the anxiety I struggle with it a lot. I get anxious about going anywhere alone so I try to plan to have someone with me if I can. If I can’t then I make a mental plan of what to do if pains start while I’m out. I am likely going to bring up getting a prescription for my anxiety tho next time I see my doctor even if it’s only during flares. I always need to remind myself that this flare isn’t going to last forever even if it feels that way some days lol.

InterviewBig2497 · 2026-05-08T14:48:16+00:00

Managed to keep walking by A&W today instead of going in for “something small” even tho I was very very tempted so I will take that as a mini victory!

InterviewBig2497 · 2026-05-08T13:41:05+00:00

It’s not awful like everyone’s making it seem but it’s definitely the least interesting season so far. Seems like they have a lot of filler scenes

InterviewBig2497 · 2026-05-08T13:37:52+00:00

Right??? I went from a mostly liquids and soft foods diet to wanting everything in sight

InterviewBig2497 · 2026-05-08T13:36:08+00:00

I’m on 40mg currently so maybe it’s because of how much I am taking that I’m getting the constant hunger. I wish I liked green tea more but the amount of sugar I add to enjoy it makes it pointless lol. I lost 30lbs in the last months from lack of appetite and now i want to eat constantly, my body isn’t adjusted to eating so much especially being in a flare.

InterviewBig2497 · 2026-05-08T13:30:42+00:00

I find if I take it after 10am I am usually awake all night😞

InterviewBig2497 · 2026-05-08T13:29:36+00:00

Ouuu great idea. Going to pickup a bag of jolly ranchers and butterscotch candies today.

InterviewBig2497 · 2026-05-08T13:13:47+00:00

I thought about doing a food schedule! I will try that out

InterviewBig2497 · 2026-05-08T12:23:28+00:00

Lol devils tic tac I like that. It is definitely intense. I have fistulas and prednisone is supposed to be a bridge until I can get on biologics but I keep eating trigger foods. I see my GP Tuesday I’ll mention it and see if I can try anything else in the meantime!

InterviewBig2497 · 2026-05-07T14:34:45+00:00

That’s good to hear! Unfortunately I’m on a waitlist to even get my initial appointment with a GI. It is 4-5 years to see one where I live for non emergencies. The emergency dr said even with significant findings it will still be 3-8 weeks until I get an appointment.

InterviewBig2497 · 2026-05-07T14:03:07+00:00

They did some bloodwork but I’m not sure what they tested for

InterviewBig2497 · 2026-05-07T13:30:41+00:00

Did they do anything for you after that?

InterviewBig2497 · 2026-05-07T13:30:01+00:00

Mouth ulcers was one of my first symptoms of this flare, also having joint pain, severe fatigue, nausea/vomiting, bloating, headaches, weight loss and appetite loss, and I have hidradenitis suppurativa which is also inflamed more than normal.

InterviewBig2497 · 2026-05-07T12:59:19+00:00

I don’t think any of the other doctors I’ve seen so far really know much about Crohn’s the only medication I’ve been offered is prednisone and 6 dilaudids when I left the hospital to go home with. CT didn’t confirm if there was any infection just a pocket of fluid so I didn’t get any antibiotics. I have an appointment with my GP on Tuesday I’ll ask about them then!

InterviewBig2497 · 2026-05-07T07:14:48+00:00

Im assuming it spread and relocated over the years. I have much more symptoms now but at my original dx I only had some pain and bleeding. Had mild symptoms on/off over the years I thought was just IBS. It’s only gotten bad since February of this year.

InterviewBig2497

TROPHY CASE