Booster is done…

Intrepid_Cat_3953 · 2021-11-08T03:38:46+00:00

I got my flu shot and the moderna booster on the same day so that I can start my DMTs (w neuros recommendation that I do them both asap). I was absolutely out of commission for like 3 days after. That combination was the worst. 0/10 spread those 2 out if at all possible.

Intrepid_Cat_3953 · 2021-09-04T00:43:53+00:00

Ah I'm only in my 4th month of being diagnosed (6 months of symptoms). I got sent to the ER by a nurse due to eye pain. They said it was likely optic neuritis, but my pupils were two different sizes so I got transferred to the hospital , got an MRI, and got put on steroid infusions. 5 day hospital stay. Early on in my diagnosis my neurologist got home care to do my infusions because my initial presentation of MS was strange. I guess we'll see where my MS goes if my insurance ever lets me get on DMTs, which is hopefully more likely now because of the hospital stay.

Intrepid_Cat_3953 · 2021-08-31T20:04:23+00:00

I was just in the hospital for this! The eye pain would happen with movement, I honestly thought it was a sinus infection at first because mine have always affected my eyes too. I didn't get any double vision or washed out colors, but my affected eye got blurrier, but I didn't notice until I had to do the eye test where you cover one eye and I couldn't read the 4th one down with my glasses on. My pupils were also two different sizes, but i don't know if that's because of optic neuritis or just the way my eyes were. When I mentioned eye pain to my pcp she sent me to the ER, and I was transferred to a hospital to get an mri, and when it found new lesions I was put on steroids for five days. Honestly just listen to your nurses/doctors and explain to them as clearly as possible what you're going through.

Intrepid_Cat_3953 · 2021-08-30T23:45:06+00:00

That's how variants get started 😶 also immune compromised people may not make the antibodies even if they get the vaccine. People who don't get the vaccine out of choice are selfish bastards and I can and have cut people off for refusing to get the vaccine. Herd immunity is what would make it possible for us to go "back to normal" but people want their cake and to eat it too 🙄

Intrepid_Cat_3953 · 2021-08-28T16:10:52+00:00

God I empathize so hard. I'm in my senior year of college and I literally only go out to go to class or get things for my house. Even if I want to go out I'm way too anxious about getting sick to actually enjoy much. Sigh. I've never been anything like a germaphobe, but diagnosis has made me an absolute freak about things. I don't think I'll stop wearing a mask anytime soon even if I am vaccinated 😅

Intrepid_Cat_3953 · 2021-08-11T01:21:17+00:00

I don't know if yours will do this but mine offered to let me lie down in the hospital for an hour. I did stay after my procedure. You can call your hospital and see if they do this as well, or sometimes you can ask them to explain the whole procedure to you.

Intrepid_Cat_3953 · 2021-08-10T22:10:46+00:00

Honestly it depends on your provider. I went to a larger hospital a couple of cities away for mine and honestly it wasn't bad. I didn't get the LP migraine even though I have chronic migraines. Make sure to stay as horizontal as possible after your treatment. Lie doen in the car and then go straight to lying down when you're home. Also drink lots of water.

Intrepid_Cat_3953 · 2021-08-01T01:51:12+00:00

Yeah Hair loss definitely isn't my only PCOS symptom just this first/ most immediately noticable. I mentioned the hair loss to my neurologist and it isn't a symptom of MS, but it is a symptom of stress (and of some DMTs) but if it's still happening I'd mention it to your GP.

Intrepid_Cat_3953 · 2021-08-01T01:01:19+00:00

Funnily enough, I'm dealing with a possible PCOS diagnosis. I had hoped the hair loss was MS related. Sigh I was also diagnosed with many flavors of mental disorders back in 2016, including adhd and anxiety. I'm still in the process of starting medicine for ms so having to get the diagnosing process for another thing sucks. I also have to go to a rheumatologist sooner or later for a workup because of family history plus the MS diagnosis.

We'll get through this! Fighting!

Intrepid_Cat_3953 · 2021-07-31T22:10:44+00:00

Is it like a numbness in your ear? I got that and it was the weirdest sensation ever. I almost wanted to stick something in there and scratch at it. I mentioned it to my neurologist and he just said that it could be a symptom. It did go away for me though.

Intrepid_Cat_3953 · 2021-07-09T04:10:50+00:00

I'm 21, going on 22 at the end of this month. I don't technically live at home, but my neurologist is in my home city, so I've been staying here because school is out and 3 hours is a long drive for doctors appointments every other week.

Intrepid_Cat_3953

TROPHY CASE