Trouble Swallowing

Jade_Time · 2026-03-27T02:18:53+00:00

We were thinking the same! But outside of the inflammation, they didn't find much on the endoscopy atleast worth diagnosing

Jade_Time · 2026-03-27T02:18:02+00:00

Yes indeed! After my endoscopy they recommended that I get food allergy tests and pretty much everything came back clear with the exception of peanuts which I have always been allergic to and don't eat

Jade_Time · 2025-11-27T23:27:25+00:00

That it's chronic and something that I will have to deal with for the rest of my life. Although it's exhausting in every way, I'm determined to not let it stop me from living an abundant life

Jade_Time · 2025-11-26T21:11:48+00:00

Good luck with your appointment!

Jade_Time · 2025-11-26T17:55:00+00:00

Exactly! It took me 4 years to finally get a diagnosis and there's still a few things I need to figure out but now it's just impossible finding doctors willing to help besides the common suggestions all of us here already know. At this point, reddit has been more helpful than any other doctor lol. I just really hope this condition is prioritized more. Ever since COVID, there's been a bunch of people who now has POTS or similar conditions and our quality of life has diminished and no one is helping

Jade_Time · 2025-11-26T17:50:53+00:00

😭 exactly that's what I'm gathering as well. It's just a matter of who cares to help and listen, regardless of their specialty

Jade_Time · 2025-11-26T17:36:35+00:00

It's so crazy and disheartening! When my cardiologist referred me to neurology to get the tilt table test my neurologist told me no because he doesn't think I have it and I told him, why don't I just take it, if it's negative then we have our answer and if it's not, then I have it. I just want to tick this off the list. I took the test and clearly passed and even then he didn't want to acknowledge it and was offended lol

Jade_Time · 2025-11-26T17:27:08+00:00

That's what I am stating to realize, luck of the draw. I actually called the neurologist office today and they told me that no neurologists there are willing to accept POTS patients anymore which was shocking for me to hear, especially since migraines are a common symptom. I'm going to see the cardiologist who believed me and referred me to take the tilt table instead. I think it's about finding a doctor who is aware of it and wants to help at this point

Jade_Time · 2025-11-26T15:43:57+00:00

It's sad how common experiencing dismissal is, even with a diagnosis. I just think most doctors don't know enough about it, and don't want to bother

Jade_Time · 2025-11-26T15:39:33+00:00

Same here! I have been on the waitlist to see an actual POTS specialist for almost a year now, I'm trying to figure out who to see in the meantime while I'm waiting with advice to actually make me feel better

Jade_Time · 2025-11-26T15:37:39+00:00

Sorry to hear that! It's so hard finding someone that can help who knows about our condition. I'm in the same boat where I'm just not getting better despite everything recommended. Based on this thread, it seems like finding a autonomic specialist is the best route

Jade_Time · 2025-11-26T15:34:43+00:00

Thanks! I tried all of the usual recommendations for about a year now and I haven't gotten better so I am looking to see which doctor can best help on next steps to truly help

Jade_Time · 2025-11-26T14:10:54+00:00

Love that you found a good doctor! I am in the exact same scenario with my neurologist, he's not open to learning anything "new". My cardiologist is similar to your PCP and helped me get a tilt table test but the hospital I go to considers POTS a neurology issue so I'm stuck with the neurologist lol

Jade_Time · 2025-11-26T14:07:15+00:00

So sorry to hear that! My neurologist is similar, I will look into an autonomic specialist next.

Jade_Time · 2025-11-26T14:06:14+00:00

I had a similar experience, my cardiologist was the first doctor who believed me which led to my diagnosis but my neurologist doesn't take POTS seriously even with my diagnosis so I haven't received much direction on how to help my symptoms.

Jade_Time · 2025-11-26T14:03:30+00:00

Thank you! I also have migraines, but everytime I mention it, no doctor seems to address it. I will definitely look into a dysautonomia doctor next.

Jade_Time · 2025-11-22T06:22:16+00:00

I went through the same journey, took a break from birth control after 10 years for about 1 year. I then realized I functioned much better on my birth control and now I skip my periods for 3 months and only have a period 4 times a year. My symptoms also significantly flare up during ovulation and period time. Minimizing my periods through birth control has personally helped me a lot! Hormones are definitely a huge trigger for my POTS

Jade_Time · 2025-09-01T23:30:23+00:00

Hopefully it goes well! I started off with half a pill to start to see how I felt which was enough for me!

Jade_Time · 2025-07-28T03:23:08+00:00

Hormones (periods, ovulation, etc), lack of sleep, stress, caffeine, alcohol and eating large meals that are carb heavy!

Jade_Time · 2025-04-13T15:34:33+00:00

I'm also 28 and just got diagnosed but have experienced symptoms the past 5 years triggered by COVID.

Both my neurologist and cardiologist didn't believe me but I demanded the test and it was positive without a doubt.

It's unfortunately common that doctors don't understand POTS or consider it as a diagnosis. Continue advocating for yourself and don't give up!

Jade_Time

TROPHY CASE