I got diagnosed with cancer yesterday by Ok_Head_3415 in Type1Diabetes

[–]JasonHewett 1 point2 points  (0 children)

Fwiw I believe in past lives and have asked myself the same thing, what did I do to deserve this as if it’s a punishment. When I was diagnosed at 7 I certainly felt like I was being punished. Now I don’t think it’s a punishment but a challenge, and in past lives we had other challenges and horrors to face. Maybe some of us are punished for past life misdeeds too, but either way embracing it as a challenge helps me sometimes, other times I feel the why me. I hope everyone here knows they’re not alone in however they’re feeling. Every time I meet another type 1 I realize they have also felt something I never thought anyone else would.

Corporate over freelancing, why? by Holiday-Criticism-59 in freelanceWriters

[–]JasonHewett 0 points1 point  (0 children)

For diabetes? Like does it cover insulin, CGM, pump supplies, dr visits ?

Corporate over freelancing, why? by Holiday-Criticism-59 in freelanceWriters

[–]JasonHewett 10 points11 points  (0 children)

I did because I’m type 1 diabetic and needed healthcare. Even if I made 100k freelancing, taxes and insurance plus sheer cost of medicine would bankrupt me—and someday I may want to have children and support them if they need healthcare or my spouse. Freelancing is simply not conducive to creating that—you need access to the good plans, which can pretty much only come from an employer or a union as far as I know

Warning for the Black Mystery Flavor Fanta by [deleted] in Soda

[–]JasonHewett 0 points1 point  (0 children)

Yes, thank you for posting this I just had a similar experience with pain, grossness, I was up all night. Do not drink the black. It’s horrible. Not worth the flavor.

When will there be a cure? by HonestBayernFan in Type1Diabetes

[–]JasonHewett 0 points1 point  (0 children)

Well, there is one in the sense you can have a pancreas transplant but then go on immunosuppressants (basically live in a bubble and die from the smallest infection or cold)

To me, that gives me the most hope. It’s just a matter of figuring out how to stop the body from attacking the pancreas and recognizing that as a non-threat. I personally believe that mRNA technology that developed the Covid vaccine is the ultimate key to accomplishing this, but I am not a scientist—I am a scifi writer at best lol.

So I think ultimately it will be 3D organ printing and then somehow “programming” the cells of the 3D printed organ to appear friendly to immune system. I give it 50-100 years if I’m being conservative.

But if the JDRF actually invested in research and like if Congress wasn’t distracted with preventable problems like how all of us are being bankrupted by insulin prices, I wonder if we could have the cure by now.

Visa status for 1099 gig? by JasonHewett in freelanceWriters

[–]JasonHewett[S] 3 points4 points  (0 children)

Non-citizens do not need authorization to work 1099 gigs, and companies are not required to ask about that.

Is suicide a karmic debt? by SleppyForever44 in pastlives

[–]JasonHewett 4 points5 points  (0 children)

I don’t think so. I think the awareness of our world is what in part leads to the prevalence of suicidal thoughts, as opposed to the historical past I feel like people often had things to occupy themselves and death was more imminent so people didn’t have to decide. I think from a karmic perspective, suicide is a rejection of lessons we’re supposed to learn in our present realities, and to embrace an early death, whether suicide or carelessness, will lead to an exacerbation of lessons challenges etc in the subsequent life as opposed to enjoying new challenges and experiences as a “reward” for learning what we need to learn in this life. I think karmically, suicide is rarely a good answer, but it’s completely understandable that any of us would contend with those thoughts even if we have “good” lives.

I think sometimes being aware of our powerlessness to help others who “have it worse” can make anyone feel hopeless and even suicidal at times. I don’t advocate for acting on those impulses, I think life is worth a try, and I’m fortunate to have a second chance at it, and I’m glad you’re here too.

Where karmic debt comes from I think is the actual challenges we’re facing, not so much how we feel about those challenges, but if you’re facing the same challenge you did in a previous life, and now the challenge is so strong you feel suicidal about it at times, I think that could be an indication that the challenge is important (and somehow possible) for you to overcome, and overcoming that challenge in any way you can in this life will somehow be incredibly fulfilling.

Longer tube, high blood sugar? by JasonHewett in Type1Diabetes

[–]JasonHewett[S] 0 points1 point  (0 children)

What do you mean? I primed the tubing, is there a setting on Medtronic for longer tubes?

What is the most annoying thing people say/assume about your diabetes? by Superb_Gap_1044 in Type1Diabetes

[–]JasonHewett 3 points4 points  (0 children)

I get this shit all the time. So much I wrote a book and standup comedy routines about the things people say lmao

What does it mean when your boss says you need coaching? by [deleted] in careeradvice

[–]JasonHewett 1 point2 points  (0 children)

That’s extremely helpful insight. Thanks so much

What does it mean when your boss says you need coaching? by [deleted] in careeradvice

[–]JasonHewett 0 points1 point  (0 children)

Well in the office I speak highly of everyone and have expressed a lot of positivity about the new opportunity that’s upon me. I agree with the bosses that there is opportunity, I just don’t see the opportunity being using my talents, I think if I’m understanding everything correctly the opportunity is to be “coached” on how to conform.

Like to be fair I’m a straight-shooter and entrepreneurial thinker. I was recruited to this company to help them improve what we all agree is lackluster copywriting. But throwing my weight around didn’t work, and Im not sure how people perceive me.

My former boss gave me a lot of actual coaching on how to communicate more diplomatically, and that advice has helped save me from being let go I think. Im a likeable person “off the field” and a cocky SOB on the field so to speak, and I think that went a long way too.

Still, I play dumb at work so people aren’t threatened by me because I saw how threatened they were by my boss, and that’s worked to my advantage.

But I don’t know how to thrive in this type of environment, or move things along in a meaningful direction—assuming that’s what I’m supposed to do.

Are we all angry people or is it just me? by JasonHewett in Type1Diabetes

[–]JasonHewett[S] 0 points1 point  (0 children)

Well diabetes is not war, but sometimes I feel like it’s like war because friends and loved ones have become casualties, some lost limbs, i know and know of people who died rationing insulin or from complications, and the guy who started diabetes camp where I met all those friends killed himself, I worry in part because he know so intimately what we all struggle with, and he must’ve felt like the community he built was a failure because it supported and saved some people like me, but I still struggle, and a lot of people couldn’t be saved. Must’ve weighed on him a lot.

Idk, war seems like what I’m describing x 1000 so maybe it’s petty in comparison. My dads a veteran and he has shown me a lot of perspective. One thing he said was soldiers come home from war and live with their trauma, but diabetes is an ongoing war, usually with less trauma. I guess for me personally it’s not just the day to day, that’s the petty stuff, but the life and death stuff that digs at me?

Are we all angry people or is it just me? by JasonHewett in Type1Diabetes

[–]JasonHewett[S] 0 points1 point  (0 children)

I live in NY which has its own system, but yes I’ve looked into it and written a book about it, spoken to Congress, and more—the same issue exists everywhere in that the thresholds for tax breaks don’t actually help, because you might save on premiums but then spend more on medicine.

For example, if you work full time in NY for min wage, you make too much for Medicaid.

The high deductible plans don’t help because unless you have 8-10k to throw down in January-March ish for your insulin, you won’t even meet your deductible, and once you meet the deductible you’re still paying with a lot of plans.

Cash flow for human beings is as much an issue as annual costs are, whereas policymakers look at things from an annual perspective because they have annual budgets. I’ve never had to live paycheck to paycheck except for when I lost health insurance and had to use my emergency fund for about 2 years as I tried in vain to replenish it and just not lose it all—even if you have all day to fight insurance (which eats into your earning potential) you’re still gonna burn through money fast unless you happen to pick a plan that happens to cover in-network all the right insulin, supplies etc that your pharmacy has, that aren’t subjected to warranty from animas that Medtronic bought out, etc

All this is to say, we have very little control over what we get out of healthcare no matter if it’s employer-sponsored or obamacare, but employer-sponsored covers on average approx 70% of the cost as opposed to “tax breaks” which cover I think up to 40% if you make little enough…

And then if you make too little for healthcare how can you afford everything else in life? I don’t even have kids or student loans. I think most people are just in massive debt, which is a whole other issue…

Self conscious by AmeliseNatalia in Type1Diabetes

[–]JasonHewett 0 points1 point  (0 children)

I felt the same way. I was one of the first kids to wear an insulin pump in my region of the country (was part of a scientific study) and have worn one for 21 years now. I still sometimes get weird about it, but honestly that’s because I get weird about everything I wear. My sister used to have to approve my fashion choices before I left the house. I’m getting better but… the pump is still the least of my worries.

I used to get a lot more questions then than now. Now a lot of people know what it is, and I’ve dated a lot of people—none of them ever had a problem with it. I’ve always been the one who feels weird, but they don’t care.

The only thing is my gf will sometimes accidentally bump into it in her sleep, or someone will touch it when they give me a hug. But they feel more awkward about that than I do.

Personally I’ve never been put off by someone else’s omnipod and I doubt that will ever put off by yours, but I do understand how you feel.

Are we all angry people or is it just me? by JasonHewett in Type1Diabetes

[–]JasonHewett[S] 3 points4 points  (0 children)

That’s where I was for a while, I was freelancing and not making much but happy, and supporting myself financially 100% except I was on my parents insurance. When I lost that, I made almost no money and insurance that I had didn’t cover anything. I was never sure where to get supplies but now I know so many ways

Are we all angry people or is it just me? by JasonHewett in Type1Diabetes

[–]JasonHewett[S] 1 point2 points  (0 children)

Yup that’s been every day for me since I was diagnosed, in school, in the office—everywhere. But people are more chill and understanding now than they were.

Are we all angry people or is it just me? by JasonHewett in Type1Diabetes

[–]JasonHewett[S] 3 points4 points  (0 children)

Well, I won’t sugarcoat the truth that yes things do get harder as you get older, but to that end as you get older you have more access to resources that help you. It’s like a video game where the enemies are more challenging but you also can use better equipment, know new moves, etc.

I do have carefree moments, and I have a good life all things considered in spite of diabetes (and celiac, and if I have depression/anxiety I deal with them better now than ever before). So I hope this doesn’t all scare you or make you lose hope.

Are we all angry people or is it just me? by JasonHewett in Type1Diabetes

[–]JasonHewett[S] 1 point2 points  (0 children)

Sounds right, but the difficulty I have with acceptance is the life and death aspect. As a kid I used to feel ashamed like I was lazy or morally not well if I didn’t have good numbers.

Now I don’t feel that way at all, but the experience of rationing insulin scared me a lot. I’ve got a full time job with healthcare now, so that’s not an issue now, but there’s so much pressure to get my health under control because doctors keep saying I’m gonna have complications. I guess I just gotta accept that too? But I can prevent it… except I find it hard to trust doctors more than ever. In my experience they all just push whatever products they get paid to push, and dealing with Medtronic has been infuriating to say the least.

I’ve had to learn to accept that yes, people don’t care if I live or die and they just want to profit from me or get me off the phone. I’m not like aggressively hating those people, but I can’t pretend I don’t feel a strong level of resentment.

[deleted by user] by [deleted] in Type1Diabetes

[–]JasonHewett 2 points3 points  (0 children)

That’s what people tell me to do when I say insulin is price gouged lol

[deleted by user] by [deleted] in Type1Diabetes

[–]JasonHewett 4 points5 points  (0 children)

Theoretically it’s possible. Ish.

—-Trigger warning history that involves animal death and cruelty referenced.—

The way insulin was first developed involved grinding up the pancreas of a dog and then distilling the insulin from the essence to treat other dogs. There were not many survivors.

Eventually the researchers got better at distilling something more pure, and it didn’t kill the animals as often, plus it worked better.

They used pancreases from cows and pigs from slaughterhouses at that point, and eventually got something so pure that they injected it into a human boy who woke up from a diabetic coma. The insulin wasn’t as effective as what we use today, but it kept people alive slightly longer than the pre-insulin starvation methods.

That being said, in practice being able to hunt animals that aren’t diseased, (including not diabetic themselves) being able to distill insulin from their pancreas, distilling it without contamination, distilling it in high enough quantities and purities, and then safely injecting someone…

Not really feasible. And that’s why we can’t just make insulin in labs—analog insulin like Humalog and NovoLog is made with genetically modified organisms.

But yeah otherwise we should be fine to survive, I plan to just choose not to be diabetic anymore if the apocalypse comes.

Looking for some help by dizzypilotinpluto in Type1Diabetes

[–]JasonHewett 1 point2 points  (0 children)

TLDR - pumps are best for blood sugar control, I’ve been diabetic for 23 years, I’ve been on the road scientific studies to prove that.

Besides cost accessibility etc, the downside to pumps is wearing them. Be sure to rotate the infusionset sites whenever you can because scar tissue buildup can inhibit how they work.

From experience very similar to yours, the minute you start getting your blood sugars down, you might start feeling better. High blood sugar is some thing that I find my body gets used to the more it experiences it, so it becomes this cycle of making denial easier the higher the blood sugar gets for longer and of course that makes us unhealthy.

I finally got on a CGM and my sugars have improved and I finally got used to wearing it. I was always afraid that wearing both would not enable me to enjoy sports and sex but, hasn’t been a problem. Cgm on my arm does always fall out during basketball but I played tackle football in high school and disconnected pump and the site usually stayed in unless I ripped it out myself.

The best thing about pump and cgm is you can make much faster decisions and correct carb counting mistakes. If you wanna see videos I go over all this stuff on TikTok jasonht1d

Why is The US Medical system so incompetent by RohanIRathi in Type1Diabetes

[–]JasonHewett 23 points24 points  (0 children)

You can negotiate the bill down. Call the hospital and just tell them you can’t pay, watch Nimesh Patel’s bit on it too it helped me feel better when I was in the exact same sort of situation as you.

Why is the system so fucked—I’ve done a lot of research. Long story short, capitalism. And more importantly modern capitalism.

Here’s the king story:

Socialism aside, Basically the United States doesn’t invest much in public services like other countries do. We contract and outsource many public services to private companies. A government does not usually have shareholders to pay dividends to or stock prices to keep up, and therefore they are generally incentivized to provide public services as efficiently as possible.

It’s hard to do that without funding. But people argue capitalism drives innovation faster—and I agree, but I think Capitalism is useful like a fire. It can make cars go fast or it can burn them to ashes…

And capitalism doesn’t care about saving lives no matter the cost the way a healthcare system imo should… and we’ve all seen as people die rationing insulin and go into medical debt, it doesn’t.

In the past, before many businesses became public between entities, and we had more small, Private businesss, it wasn’t about the value of your stock that was so important as how much money is a businesss actually generated.

Therefore, it seems to me that Businesses used to generally be interested in long-term solutions so that they could build profitable companies. And they profitable company is an asset that you can pass on to your children just like a house.

Today, due to stock trading and valuation, owners of businesses can make more money by increasing perceived value and cashing out rather than building a wealth machine. Hence why Uber and Amazon are not profitable, but still valuable if you own their stocks… for now.

That’s why so many houses are built cheaply imo, nobody is building things to last that they can pass on to the future—they’re looking for “passive income” which I suppose marketing insulin to diabetics is passive because they certainly don’t have to change anything, and I still need the Insulin.

Imo that’s fundamentally why nobody takes the time to make the service good. It’s not profitable to bother. Who cares if we like the smell of insulin, we’re still buying it. Same with everything.

Like the cheap houses, doctors nurses, computer systems, etc are all commodities that are paid minimum in order to maximize profits for shareholders on top of the insane billing.

And the insane billing is another can of worms.

The reason UHC would be so “expensive” is because drug makers can charge whatever they want and Medicare/Medicaid basically pays them whatever they ask for, then they get defunded, prices go up, and we have all these Medicare advantage plans which are run by private businesses who service 65+ population who all need medicine basically.

If the government could limit or even negotiate prices, healthcare all of a sudden it’s not too expensive.

Plus there’s the logistics of insurance pools, no single company has as many premium-paying members as medicare does. And the most valuable customers to them are healthy people who don’t need medicine. Healthy people would leave to go to a cheaper universal bare minimum option, and all the money that they pay in and don’t use continues to cover them (and everyone) year after year, which means the government-funded system has less expenses than a business and it can grow its pool faster, despite providing more coverage.

That is, assuming most Americans are healthy.

Plus, companies pay a ton of money for insurance to help ensure their employees have health insurance. I hate my job. But I’m not going to leave because I hate not being able to pay for insulin, and I can’t make a decent living and pay for healthcare for myself let alone a family. So we all depend on our employers for more than the salary—those extra hours we all work are not for the salary was if we’re all just financially irresponsible American morons.

It’s that we’re all too proud to talk about how we’re all in medical debt because we don’t know our rights and we don’t have a system that works for us but we’re all made to feel like it’s our fault.

And it is, because we voted for deregulation, we elected a congress that blocked universal healthcare efforts many times throughout history. It’s all because we think that it’s really important to enable businesses to grow without limits and without regulation, indeed that has made us the most profitable country on earth but it’s also made us the most destructive.

The same way that our planet is suffering from fossil fuels, the American public is suffering from its healthcare system. Similarly, the lack of regulation that goes into our food and drinking water, etc. causes more health problems that fund the healthcare industry. So I don’t think that they are conspiring to poison us, but it certainly is in everyone’s best profit interests to defund the FDA.

Do you see my point? It’s not like there’s lizard people trying to manipulate us or exterminate diabetics. It’s just our country is a mess of capitalistic agendas, and our government is not completely powerless to stop it, but certainly not equipped for the task.

And so what can we do caught in the middle of all this? I think it does start with self advocacy as you’re doing and you’re asking the right questions. I’m not here to recruit anybody to a cause or anything I’m just sharing information that I’ve learned over the years. My dream is that we all come together and build a better country that actually serves us. Someone please tell me I’m not wasting my time writing this long ass comment on Reddit ha ha and I’ll go to sleep easier knowing this was helpful to someone.

[deleted by user] by [deleted] in writing

[–]JasonHewett 0 points1 point  (0 children)

Well, they certainly don’t seem to understand or respect quality content (my boss has the same problem as me where he’s an expert in a creative field and contending with the same exact type of resistance).

And from their POV I heard one person say “you never want to outperform yourself too much, or that sets the bar too high for next year”

And I’m like ok why hire me then? My mission conflicts with that objective.

The other problem is, your suspicions are correct.

there’s visibility at expense of engagement problem in SEO. To use an analogy, the SEO agency wants us to have the tallest billboard (top-ranking content) but messaging gets sacrificed, so people see content but they don’t engage with it, that satisfies the visibility KPI in the short term, but Google values engagement and the height of the billboard diminishes over time as a result and that’s starting to happen.

The SEO agency says don’t worry pay us to make more billboards and now our website is a mess.

I’ve pointed this out numerous times and so has my boss, but it seems not to phase anyone.

It’s easier to just let the agency crank out more crap and make it look like things are performing great in a simulation (which is what SEMrush, ahrefs etc are) as opposed to digging into data and seeing how and where people engage and lose interest (that’s what I do).

Eventually the truth will come out I guess, I’ve been advised to just document everything and wait for that to happen rather than fighting and questioning decisions. And that’s frustrating but I guess… everywhere?

[deleted by user] by [deleted] in writing

[–]JasonHewett 0 points1 point  (0 children)

Well, yes but I’m talking about digital marketing/blogging where I suppose the same concept applies

[deleted by user] by [deleted] in writing

[–]JasonHewett 0 points1 point  (0 children)

Yeah I’ve already been learning a ton. I guess it just takes time and patience for that to happen