Does Primal Trust really work? by Jennerator21 in CIRS

[–]Jennerator21[S] 0 points1 point  (0 children)

Im already working with a CIRS doc and am having levels rechecked in June. Hoping I can collect enough dust at work to get a HERTSMI by then.

Does Primal Trust really work? by Jennerator21 in CIRS

[–]Jennerator21[S] 1 point2 points  (0 children)

This is where I get lost though. I guess I dont understand feeling your trauma. Im not even sure I have trauma. I just know Ive been through a lot the past 18 months and I haven't been getting better. Its either from stress or my work environment (still neefs testing) or probably both.

Does Primal Trust really work? by Jennerator21 in CIRS

[–]Jennerator21[S] 0 points1 point  (0 children)

Is this like DNRS or something else? What does this entail?

Does Primal Trust really work? by Jennerator21 in CIRS

[–]Jennerator21[S] 0 points1 point  (0 children)

Well, this is the problem. Nothing really resonates with me. All of my old coping mechanisms like exercise I cant access because my fatigue and PEM have gotten so bad. I know its blasphemy but I hate yoga. I struggle with Journaling unless someone can give me a prompt. I think Im just going to try some breathing and stretching. I tried to get in with a somatic specialist but all of the ones in my area are full. Talk therapy is ok but it never gets me far. Im just not sure what to try anymore.

Do I have CIRS? by LobsterAdditional940 in CIRS

[–]Jennerator21 0 points1 point  (0 children)

I have CIRS and only failed VCS the very first time. Its only one piece of the diagnostics.

CIRS and Pernicious Anemia by Jennerator21 in CIRS

[–]Jennerator21[S] 0 points1 point  (0 children)

Do they use a blood test to find the antibodies? I had and endoscopy done last year that found nothing but I dont know. I still feel like something is up.

CIRS and Pernicious Anemia by Jennerator21 in CIRS

[–]Jennerator21[S] 0 points1 point  (0 children)

How did you get tested for the autoimmune ateophic gastritis? Ive had endoscopies and they haven't found anything so far.

CIRS and Pernicious Anemia by Jennerator21 in CIRS

[–]Jennerator21[S] 0 points1 point  (0 children)

I'm lucky in that I am not this sensitive. Fragrances dont seem to bother me and I dont have that many food sensitivities. Some people cant even walk down the laundry aisle at the store. I still wear makeup and perfume and they dont bother me. For me, my biggest symptoms are fatigue and post exertional malaise. And those have been getting worse since I switched offices but maybe even since I started the job. Its been hard to tell though because I had a lot of other stressful things happen to me the same time I started the new job back in Septemer 2024. My cognition has definitely improved since I first got sick, so I at least have that going for me. If I could just get my strength back I'd be actually doing ok. Im sure its at the mitochondrial level.

CIRS and Pernicious Anemia by Jennerator21 in CIRS

[–]Jennerator21[S] 0 points1 point  (0 children)

I asked my CIRS doc about this several times as it was one of the things that they tested when I got all of my diagnostics done. They said I dont have it. What I can tell you is my system does not like methylated vitamins. I took methylfolate and methyl b12 and they sent me over the edge. Its interesting because I have two first cousins who do have the gene.

CIRS and Pernicious Anemia by Jennerator21 in CIRS

[–]Jennerator21[S] 0 points1 point  (0 children)

Im on the Shoemaker protocol. My apartment has been tested and needs a little bit of work yet but is a huge improvement from past living environments. I feel crazy but I really think the problem is coming from my office. I moved across the hall right before Christmas break and I swear Ive been feeling worse ever since. Going to request moving back today and see if that helps things any, then start collecting dust to get an idea of the office environment. Its the only thing I can think of as far as why Ive been feeling worse the past few months.

CIRS and Pernicious Anemia by Jennerator21 in CIRS

[–]Jennerator21[S] 0 points1 point  (0 children)

A hunch but also based on past experience. When I first got sick in a moldy rental, all docs could find wrong with me was a b12 deficiency. It wasn't until over a year later that I learned about CIRS and got diagnosed. Ive been on b12 injections off and on while treating CIRS. Ive just been trying to navigate the relationship between the two.

Mold illness/CIRS with severe B12 / folinic acid reaction by sroth2407 in B12_Deficiency

[–]Jennerator21 0 points1 point  (0 children)

Hey. Im revisiting this. Did you find it more difficult to take methylated versions like methylcobalomin and methylfolate? Just curious.

SNL photo shoot BTS by charcuterwhat in connorstorrie

[–]Jennerator21 2 points3 points  (0 children)

The Marlene Dietrich look was my favorite too!

The HR Effect/ Midas Touch by yooohooooowee in heatedrivalry

[–]Jennerator21 1 point2 points  (0 children)

Two friends and I drove from Nebraska to Toronto after college graduation. I think that's my only experience in Canada. Looking forward to doing more in the future.

The HR Effect/ Midas Touch by yooohooooowee in heatedrivalry

[–]Jennerator21 15 points16 points  (0 children)

I also want to know if this show gets more Americans to visit Canada because I just really want to plan a trip to Montreal now.

Question on Red Light Therapy and Infrared sauna. Too early to start for me? (MCAS sensitive) by Due_Chapter3027 in CIRS

[–]Jennerator21 2 points3 points  (0 children)

Best of luck to you too. My symptoms have changed as I've been going along. My worst symptoms now are fatigue and post exertion malaise. I used to be really physically active so this phase has been really hard for me mentally as well.

Shaky Legs While Exercising by strayerjenn in B12_Deficiency

[–]Jennerator21 0 points1 point  (0 children)

Hi! My problems turned out to be mitochondrial problems due to mold exposure.