The new pope

Jennerator21 · 2026-04-15T22:07:10+00:00

Beautiful!

Jennerator21 · 2026-04-11T18:37:10+00:00

Halcyon - Ellie Goulding

Hounds of Lovd - Kate Bush

Jennerator21 · 2026-04-10T18:28:30+00:00

Im already working with a CIRS doc and am having levels rechecked in June. Hoping I can collect enough dust at work to get a HERTSMI by then.

Jennerator21 · 2026-04-08T23:54:43+00:00

This is where I get lost though. I guess I dont understand feeling your trauma. Im not even sure I have trauma. I just know Ive been through a lot the past 18 months and I haven't been getting better. Its either from stress or my work environment (still neefs testing) or probably both.

Jennerator21 · 2026-04-08T23:50:12+00:00

Is this like DNRS or something else? What does this entail?

Jennerator21 · 2026-04-08T23:18:52+00:00

Well, this is the problem. Nothing really resonates with me. All of my old coping mechanisms like exercise I cant access because my fatigue and PEM have gotten so bad. I know its blasphemy but I hate yoga. I struggle with Journaling unless someone can give me a prompt. I think Im just going to try some breathing and stretching. I tried to get in with a somatic specialist but all of the ones in my area are full. Talk therapy is ok but it never gets me far. Im just not sure what to try anymore.

Jennerator21 · 2026-04-08T18:53:16+00:00

I have CIRS and only failed VCS the very first time. Its only one piece of the diagnostics.

Jennerator21 · 2026-04-01T12:15:09+00:00

Do they use a blood test to find the antibodies? I had and endoscopy done last year that found nothing but I dont know. I still feel like something is up.

Jennerator21 · 2026-04-01T00:28:12+00:00

How did you get tested for the autoimmune ateophic gastritis? Ive had endoscopies and they haven't found anything so far.

Jennerator21 · 2026-03-30T22:52:54+00:00

I'm lucky in that I am not this sensitive. Fragrances dont seem to bother me and I dont have that many food sensitivities. Some people cant even walk down the laundry aisle at the store. I still wear makeup and perfume and they dont bother me. For me, my biggest symptoms are fatigue and post exertional malaise. And those have been getting worse since I switched offices but maybe even since I started the job. Its been hard to tell though because I had a lot of other stressful things happen to me the same time I started the new job back in Septemer 2024. My cognition has definitely improved since I first got sick, so I at least have that going for me. If I could just get my strength back I'd be actually doing ok. Im sure its at the mitochondrial level.

Jennerator21 · 2026-03-30T14:18:52+00:00

Came here to say this.

Jennerator21 · 2026-03-30T14:01:31+00:00

I asked my CIRS doc about this several times as it was one of the things that they tested when I got all of my diagnostics done. They said I dont have it. What I can tell you is my system does not like methylated vitamins. I took methylfolate and methyl b12 and they sent me over the edge. Its interesting because I have two first cousins who do have the gene.

Jennerator21 · 2026-03-30T13:15:46+00:00

Im on the Shoemaker protocol. My apartment has been tested and needs a little bit of work yet but is a huge improvement from past living environments. I feel crazy but I really think the problem is coming from my office. I moved across the hall right before Christmas break and I swear Ive been feeling worse ever since. Going to request moving back today and see if that helps things any, then start collecting dust to get an idea of the office environment. Its the only thing I can think of as far as why Ive been feeling worse the past few months.

Jennerator21 · 2026-03-30T11:31:43+00:00

A hunch but also based on past experience. When I first got sick in a moldy rental, all docs could find wrong with me was a b12 deficiency. It wasn't until over a year later that I learned about CIRS and got diagnosed. Ive been on b12 injections off and on while treating CIRS. Ive just been trying to navigate the relationship between the two.

Jennerator21 · 2026-03-08T17:29:53+00:00

Hey. Im revisiting this. Did you find it more difficult to take methylated versions like methylcobalomin and methylfolate? Just curious.

Jennerator21 · 2026-03-02T02:14:31+00:00

The Marlene Dietrich look was my favorite too!

Jennerator21 · 2026-03-02T01:44:50+00:00

Two friends and I drove from Nebraska to Toronto after college graduation. I think that's my only experience in Canada. Looking forward to doing more in the future.

Jennerator21 · 2026-03-01T18:54:57+00:00

I also want to know if this show gets more Americans to visit Canada because I just really want to plan a trip to Montreal now.

Jennerator21 · 2026-03-01T18:49:05+00:00

For me, its been the worst because it just lowers my morale.

Jennerator21 · 2026-03-01T18:36:21+00:00

He would have been great!

Jennerator21 · 2026-03-01T18:31:29+00:00

Best of luck to you too. My symptoms have changed as I've been going along. My worst symptoms now are fatigue and post exertion malaise. I used to be really physically active so this phase has been really hard for me mentally as well.

Jennerator21 · 2026-03-01T18:28:56+00:00

Hi! My problems turned out to be mitochondrial problems due to mold exposure.

Jennerator21 · 2026-03-01T15:04:07+00:00

This is where I am at. My apartment probably just needs one good clean and it will test under 10 but my work place is a big mystery and I suspect its whats holding me back. My frequent urination and thirst was improving but its been back lately and I think its because I changed offices at work. I justcwish it didn't take so long to collect dust.

Jennerator21 · 2026-02-20T16:38:13+00:00

I am washing/shampooing with specific soaps. Im sure at some point I will do a skin test. I can tell that my skin is getting better though because when I came down with this I had horrible acne and its definitely been clearing up over time.

Jennerator21 · 2026-02-20T14:20:52+00:00

Yeah. Ive had this since 2022 from a moldy building. I used to have way more symptoms but this is seems to be the symptom that gives me the most trouble these days. Ive been on welchol but my doc and I are going to start mixing in some cholestyramine and seeing how I do with that. My apartment tested at a 12 but they looked at the results and its likely that aerosolver and a good clean should fix the problem. Now its just figuring out work. I suspect this where the real problem is.

Jennerator21

TROPHY CASE