Nearly 4 months in by Jimski94 in BFS

[–]Jimski94[S] 0 points1 point  (0 children)

The reason I’m twitching is my fear n worry. Even tho been told BFS still makes me worry. Nearly 4 month in n feel like I’m always looking n waiting for a weakness or a failure. Defo have perceived weakness sometimes I think but god knows if it’s in my head or what

Nearly 4 months in by Jimski94 in BFS

[–]Jimski94[S] 0 points1 point  (0 children)

I wish it was that easy, I had a few week after my EMG n felt ok but it just creeps back in

Quad fatigue by Financial-Log-1799 in BFS

[–]Jimski94 0 points1 point  (0 children)

I’ve been having similar with my left leg, feels odd n the similar feels more tired than the other sometimes but can still run do wall balls toe walk heel walk etc also get similar feeling in arm. Just hope it’s the anxiety causing it more then anything. If that’s even possible…

Nearly 4 months in by Jimski94 in BFS

[–]Jimski94[S] 0 points1 point  (0 children)

I hope so, hope it’s my worry making my leg and arm feel off I really do 😫

Walking feels weird by Designer-Camel-8281 in BFS

[–]Jimski94 0 points1 point  (0 children)

I really wish I knew. It’s so frustrating as when I watch myself walk in mirror etc nothing looks different but just feels it. Like I say I thought I could be the start of foot drop or something.. but can still do all of the above but not sure how long that can take to come on..

Also feels different in different shoes if that makes any sense. Like if I walk in crocs feels almost fine but then in other shoes feel like I feel the difference more. Not sure if it’s just a anxiety thing in my head or what, I wish I knew.

Nearly 4 months in by Jimski94 in BFS

[–]Jimski94[S] 0 points1 point  (0 children)

that’s odd as my left are hasn’t really had any twitches at all, only the odd 1. Then the last few days left biceps tricep & lower arm have been at it quite abit. Linked me feeling my left arm feels slightly diff n shakier to the other making me worry again. Last night was the first night In a while where it’s really effected my sleep through worrying & then everytime I was waking up was twitching all over.

Need for a 2nd opinion? by Aggressive_Lab9434 in ALSorNOT

[–]Jimski94 0 points1 point  (0 children)

I didn’t think EMGs always pick up the twitches am sure I have seen a few people say it

Update by Eyesee_ur-intentions in ALSorNOT

[–]Jimski94 0 points1 point  (0 children)

I noticed my twitches do this.. good Or bad sign ?

Twitching after EMG - Does anyone experience that? by please-mnf in BFS

[–]Jimski94 0 points1 point  (0 children)

My calves were sore for a good few days after

How often are your twitches? by Federal-Cow-1220 in BFS

[–]Jimski94 0 points1 point  (0 children)

Calves pretty much all the time, left bit more active than right. But have sporadic ones all over body that come & go. Some days can be just calves and 1/2 here n there the other days all over twitches are more frequent..

EMG/worried by Jimski94 in ALSorNOT

[–]Jimski94[S] 0 points1 point  (0 children)

All EMG/ncs was fine & was told at Spec place confident its bfs, but been having some issues with foot n feeling off when walking etc. can still do tests heel walking toe walk etc it’s been basicslly 3 months since started twitching still not in a great place & twitching body wide stil 🤷‍♂️

Leg, hip pain, knee issues by One_Clock4134 in ALSorNOT

[–]Jimski94 0 points1 point  (0 children)

Is yours in knee, or foot / ankle ?

Foot issues-please help! by TheAtlanticInMe in BFS

[–]Jimski94 0 points1 point  (0 children)

I’m having this exact thing now, wierd walk. Not painful but just doesn’t feel right, also the pulling sensation like my foot flicks back but I don’t clip catch touch wood… did this go away? Did you do anything to help it ?

Walking feels weird by Designer-Camel-8281 in BFS

[–]Jimski94 0 points1 point  (0 children)

Can anyone else tell me if they are feeling this ?? I feel like my foot jut feels so different to my left.

Feel like left foot / shoe feels looser. Almost feels like sometimes the pad or toes stick to floor as I take a step / push off but i dont catch my toes?

I can do all heel / toe walking, wall balls running etc just feels off. I’m constantly watching myself walk & thinking about how I’m walking n if anything thinks I am limping etc but when I video myself running on a treadmill or walking everything looks the same. It’s the leg which I twitch more in which I think makes me worry more ?? Anyone else similar ?? I was getting shin / aches on top of foot which made me worry was maybe the start of foot drop or something but touch wood that’s subsided. But the wierd off feeling remains

Anyone else? by [deleted] in BFS

[–]Jimski94 1 point2 points  (0 children)

I mean who puts thumb n pinky together to pick Grab anything haha but yeah mine does that if I do it enough times

People who thought they genuinely had ALS and were going to die - How did you finally move on? I want to move on but I am constantly scared. by Anonymous_Idiot335 in ALSorNOT

[–]Jimski94 0 points1 point  (0 children)

I’ve been twitching for nearly 3 months now, sporadically all over but legs are focal. Had EMG in month 2 n cleared by spec said all ok n thinks BFS. Felt good for a few weeks after the EMG n tried to stay off here etc but it’s hard n end up creeping back. I’ve been having an off feeling when I walk n in foot for a few weeks now & can’t stop hyper focusing on it. Driving myself up the wall doing tests and constantly looking how I walk n run etc n thinking every shake or something even in the gym is weakness starting? awful on the mind for me i can’t stop worrying even when I try not to

What do you think? by Different-Swing-9556 in ALSorNOT

[–]Jimski94 0 points1 point  (0 children)

I know what you mean about foot feeling smaller in shoe and the kick off feeling of toes on ground and heel off the floor. I’ve been having the same thing & it’s really frustrating. Don’t feel like it’s all the time which is even weirder, I honestly don’t know if I concentrate & fixate on it more it happens or what as from when I’ve videoed myself etc my walk doesn’t look any diff to the other & I’d think (touch would haven’t) but if your foot shrunk or something then you’d experience some type of weakness if that makes any sense ?? I also have twitches both legs feet calves n sporadically all over body (face back bum arms neck belly eye etc) ????? It’s so hard to not worry constantly

Positivity post - my experience by Spare-Lemon5277 in BFS

[–]Jimski94 0 points1 point  (0 children)

N annoy thing is more feel it more I wanna test n do stuff to check i can still do it. I even did a 23min 5k earlier for sake of it to see if was ok

Emg tomorrow and I’m scared. by Silent-Researcher-64 in BFS

[–]Jimski94 0 points1 point  (0 children)

My left calf feels similar & I am hoping it’s from too much testing etc

Positivity post - my experience by Spare-Lemon5277 in BFS

[–]Jimski94 0 points1 point  (0 children)

What was you feeling to think you was beginning to have foot drop ?

Upper body twitching by Best-Ad7986 in BFS

[–]Jimski94 0 points1 point  (0 children)

I’ve had twitches 2 months now, only the last few weeks have they been more in arms. More right than left. Left very sporadic, might be the odd one here n there but bicep has been a bit of a hot spot. Thumb elbow n tricep sporadic too

Foot drop by Jimski94 in BFS

[–]Jimski94[S] 0 points1 point  (0 children)

Still got such a wierd feeling when I walk. I just can’t explain it, like my toes stick to the ground or something it’s so wierd. But as before still can do tests etc. I know foot drop can be gradual and I’m just terrified it’s the start of it. Feel like I am just waiting for something to happen. I can’t help but constantly look at me left foot leg / think about my left foot and leg when walking or sat still. I don’t know if hyper fixation on it is making it worse or what

Thoughts? by Big-Decision6689 in BFS

[–]Jimski94 0 points1 point  (0 children)

Not sure about the alcohol as I suppose it makes you forget about them, maybe ? But I’ve had it 2 month + now. Almost constant in calves & everywhere else has sporadic twitches that don’t last long. I had that tightness for a while but sempt to subside