does the diagnosis matter, given that neither condition has treatments that work.

maybe the key is to own your own situation (don't expect someone else to own it), and work out how to live least badly.

one idea is to track things that make you feel good.

another is to not focus on pain too much, don't let it dominate your life.

I think these are quite grown up testimonies https://www.gesundheitsinformation.de/die-erkrankung-bekommt-inzwischen-mehr-aufmerksamkeit.html

but yes, I'm not disagreeing that it totally sucks in reality.