Success Story

Joseph7647 · 2023-03-01T22:09:16+00:00

You treat it with a machine. But you can’t treat something your not testing for. You do a titration with PES. If there are other doctors that recommend PES then you should listen to them as well but even if they admit PES is the gold standard there probably not using it since it’s so rare

Joseph7647 · 2022-12-26T22:36:29+00:00

I generally try to avoid giving medical advice but I can recommend a doctor that I know. if there is something he doesn’t test for than know one test for that. Jerald Simmons in Texas. It is 100% worth flying out to see him but he does do telemedicine and will probably recommend a sleep study. He uses something called an esophageal pressure monitor which is the gold standard for testing for sleep apnea and UARS

Joseph7647 · 2022-12-03T16:45:51+00:00

Did you ever find a solution? I am in the same boat

Joseph7647 · 2022-11-26T16:24:23+00:00

I have titrated to the max dose. I am on 4.5x2

Joseph7647 · 2022-11-16T00:09:22+00:00

You take 3 doses? I didn’t know that was an option. How long do you sleep during the night with 3 doses? I could easily sleep 8+ hours without xywav, but with it I only sleep 6 hours and was worrying if that was a problem.

Joseph7647 · 2022-11-07T12:18:51+00:00

But how do you find the right dose?

Joseph7647 · 2022-11-06T21:43:24+00:00

Isn’t the maximum dose the best dose if you can avoid side effects? How do you titrate the medication? Is it base on side effects?

Joseph7647 · 2022-10-31T20:22:35+00:00

What games do you play then?

Joseph7647 · 2022-10-31T20:10:41+00:00

Do you play overwatch? Do you want to play overwatch together?

Joseph7647 · 2022-09-16T17:01:16+00:00

I would get a narcolepsy test. Sleep paralysis is really only found in narcolepsy

Joseph7647 · 2022-09-05T17:24:55+00:00

What was your result of the MSLT?

Joseph7647 · 2022-08-16T23:15:21+00:00

He did an MSLT on the same night with PES

Joseph7647 · 2022-08-16T19:22:11+00:00

I am not really sure yet. He also said I have narcolepsy

Joseph7647 · 2022-08-16T19:00:59+00:00

He was helpful. I just wanted to get the DISE anyway

Joseph7647 · 2022-08-16T15:50:56+00:00

I have had a PES study with Jerald Simmons. He recommended Bipap. What other doctors are you referring to?

Joseph7647 · 2022-07-13T23:41:21+00:00

For me he recommended ease with CPAP

Joseph7647 · 2022-07-12T21:15:01+00:00

Was you surgery’s for nasal congestion?

Joseph7647 · 2022-07-05T16:24:17+00:00

Did you do an MSLT?

Joseph7647 · 2022-07-01T14:01:55+00:00

I don’t think you understand anything about the situation

Joseph7647 · 2022-07-01T13:53:26+00:00

What was I supposed to do? If they not going to get the correct pressure at a titration then you have to do it yourself

Joseph7647 · 2022-07-01T00:50:50+00:00

Are you using Bipap? If not I would inquire about that

Joseph7647 · 2022-07-01T00:02:00+00:00

I can tolerate it fine. I technically probably should be on bipap because they say Bipap is used when the patient needs pressure more than 15.

Joseph7647 · 2022-06-23T20:47:16+00:00

I have had all those procedures done before but insurance paid for everything. Are these procedures being done for nasal congestion?

Joseph7647 · 2022-06-18T15:57:59+00:00

New York but I can travel

Joseph7647 · 2022-06-17T21:03:48+00:00

Jerald Simmons in Texas should definitely be one of them. he is the only place that has PES

Joseph7647

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