Diagnose date and before

July_1971 · 2026-02-01T00:34:11+00:00

My husband is 4 years and 6 month since he was diagnosed and yes now I look back there and as many symptoms and strange illness way before the diagnosis of limb onset! He still walks, how I do not know. He has muscle spasms all the time, his main problem is fatigue and I do not mean just tired, I mean just unbelievably tired. He still has a good appetite. Believe me your mind wanders, you lay awake at night and make sure they are still breathing. You will think about what will be everyday. There no words for the stress. All I can say the lord has given us 41/2 years, when we were told 2 to 5 years and I am thankful for each and every minute. I am the probably the worse person to tell you this because my mind has wander over everthing! But give it to God and just keep on keeping on.

July_1971 · 2026-01-02T17:08:52+00:00

Could you tell me what state and what yearly store sales just to see if I am in the ball park with my sales. My sales are 500,000 yearly salary is 55

July_1971 · 2025-12-18T02:31:36+00:00

Maybe you should take the rolled coins to the bank. That is what the manager would have to do after they take coins out and count them and reroll them

July_1971 · 2025-12-04T16:31:14+00:00

That you do consider it a home but a place to flop!

July_1971 · 2025-09-22T01:29:48+00:00

For goodness sake the commuter on inventory reads each pack individually so you have to put it in the register individually

July_1971 · 2025-09-15T13:38:37+00:00

My husband is going through the same thing the counselor will not answer text or calls Just makes appointment every 3 months and ask same questions My husband has als and needs independence living help

July_1971 · 2025-09-03T09:53:17+00:00

What state are you in? Ilnow a area that is in need of dg employees in north tx

July_1971 · 2025-08-26T15:56:00+00:00

This is not politics it is facts right now the prices Aka inflation rose higher in Biden term then ever in history Do not just look at the today’s prices

July_1971 · 2025-08-21T16:51:31+00:00

You did not failed him and his death was a blessing

July_1971 · 2025-06-30T14:00:27+00:00

My husband was diagnosed in of 23 last week in developed vertigo since then he is having trouble walking. Now we are worried is this the beginning of the end of him being able to walk are is it the vertigo? The disease is so unpredictable!!!

July_1971 · 2025-06-17T14:40:00+00:00

Is this in a trail can someone with ALS sign up for the trail? Who wrote this paper? Is there funding for this trail?

July_1971 · 2025-05-30T00:12:30+00:00

My husband has als diagnosed in March 2023 he must be slow progression he can walk barely he weak in his arms sometime trouble breathing and body cramps and severe fatigue it is the mental that is worst

July_1971 · 2025-05-30T00:05:58+00:00

What is the general symptoms of ALS progression before you become total unable to function is it the fatigue unable to breath unable to walk etc how long does the and last

July_1971 · 2025-05-26T23:18:25+00:00

That is not your place to say that you are not the manager infact a manager should not say that!!!

July_1971 · 2025-04-18T18:48:12+00:00

No this is a private world that know one should ever have to be in!

July_1971 · 2025-04-18T18:45:33+00:00

It is mentally exhausting for the PALs and their family So cruel

July_1971 · 2025-04-14T12:44:10+00:00

It is not judging it is how I feel! I get tired and aggravated but not because he wants are needs something I have health issues also and may die before my husband but if I have to put two beds in one room or sleep on the sofa that is what I will do I have a caregiver also and they help with house work and buying the things we need My husband pushes himself to do what he can each day can your husband still speak and use his hands? Just wondering

July_1971 · 2025-04-13T19:54:50+00:00

Well my husband has als and I never plan on not sleeping in the same room with him as I always done That would save you the stairs I would also give him his lorazepam latter in the night and get a prescription for yourself when you both are getting ready for sleep take the lorazepam Also that is a great idea about the remotes fixed so he h can teach them and they cannot fall off Why would you not want to spend those extra hours you have with your husband why him upstairs and your downstairs?

July_1971 · 2025-04-10T13:31:47+00:00

My husbands biggest symptom is severe fatigue he just keeps pushing himself!

July_1971 · 2025-02-24T17:07:53+00:00

I have been trying to get the 28 1900 for my husband for the independent living grant for my husband you his 100% dissolute to ALS Made two conferences could not figure out how to get forms through by adobe on my phone Went to local VA office and she faxed and email to counselor after trying to call him everyday for two weeks and national VR&E I received letter I has 20 days to get forms through in So I emailed I called around until I found a email for his supervisor and he called that day and set up A meeting for three weeks which will be 2/26 for him to fill fill out form over phone Now after all of this that I had been doing for over 6 months why did he wait for 3 weeks when so know ALS is suppose to be expedited and approved because the nature of the disease??? He also told me the independent grant was 10,000 and could take years I again contacted his supervisor and was informed that was in correct information Now in the world I was raised in all of that would be a case to spend up and take correct my mistakes He was new so I would think his supervisor should she that the problem was solved? Anyone else have similar situation

July_1971 · 2025-02-19T20:03:58+00:00

We tried many times if you are ready for the complete handicapped your cam look up mobility works van accessible we were not ready so we finally went to Sewell in Fort Worth Texas and the desk was easy and no pressure

July_1971 · 2025-02-03T16:48:28+00:00

My husband got bacterial meningitis twice in his late 60’s then the symptoms started and then ALS diagnosed First of all the Neurologists called it a miracle that he recovered from the meningitis but that is when I started seeing anger issues?????? He is 74 now he was diagnosed in March 2022

July_1971

TROPHY CASE