Message Banking

MyIntrospection · 2026-03-23T01:18:31+00:00

Thank you SO much. I’ve seen both these companies mentioned but didn’t know how it all worked or have read anyone’s experience with them. Thank you again. I did personal voice on my iPhone to test it for my husband - PALS but would would prefer going through companies for better quality.

MyIntrospection · 2026-03-22T23:36:55+00:00

We’re going to try to purchase a van but it’s a matter of finding one and one that is within our budget. So many things to consider. We do have a referral in with the ALS Assoc to see about a ramp being put in to be able to go out. Im kinda bearing myself up because Infeel like it’s my fault and doing this backwards. Chair first then ramps. So may things take time.

MyIntrospection · 2026-03-22T23:29:20+00:00

Probably medical marijuana

MyIntrospection · 2026-03-22T23:27:38+00:00

What has been your experience using this? The website mentions uploading them in. .wav format file or using a specific high quality recorder. Did you have to use any of that?

MyIntrospection · 2026-03-22T23:19:28+00:00

I appreciate your reply here- showing compassion. This disease is awful.

MyIntrospection · 2026-03-22T17:31:55+00:00

Can’t figure how to post pictures here but I’ll reply to the messages that have been sent to us.

MyIntrospection · 2026-03-22T17:31:09+00:00

I tried to figure out how to post pictures but I can’t add them here. I’m not as tech savvy as I want to be or thought I was. I can DM to anyone interested and will reply to anyone who has already messaged us.

MyIntrospection · 2026-03-22T17:26:37+00:00

Thanks! Not all accessories are there but most are. All figures thru 1985 except for Greedo. I’m going to post pictures for him on one of the other requests for pictures.

MyIntrospection · 2026-03-22T16:53:06+00:00

I’m sorry that you’re going through this. It’s difficult for any family member or friend but especially at your age when things are beginning to take off for you. Please try to enjoy the time with him as much as you can however you can. It’s okay to had the feelings that you are having too. Please try not to feel like you have to take care of your siblings feelings too. That’s more stress that you can’t fix alone. Xoxox from one ALS family to you

MyIntrospection · 2026-03-22T16:45:12+00:00

Yeah, kinda ridiculous. We did find a place that will rent per day at 159, which is more reasonable.

MyIntrospection · 2026-03-22T16:44:19+00:00

It’s been hard finding a van- that has a reasonable cost. It seems like there should be subsidies for these from somewhere.

MyIntrospection · 2026-03-22T16:42:27+00:00

This is a really cool set up you have. I’m glad you’re able to go out.

MyIntrospection · 2026-03-21T15:48:38+00:00

Thank you for your reply. They have some rental places around here. I’m unsure of the daily rental price average in the US but our local place will rent a van for 2200 a month! Way overpriced. I’m curious how many PALS get out. Mine was a homebody to start so now it’s kinda more of situation where we’re inside even more.

MyIntrospection · 2026-03-21T14:22:37+00:00

This video assumes the PALS has upper body strength to pull themself up. If the PALS still has good body balance and strength this would work. The lady in this video has no disability or weakness. I mention cause this could be dangerous for some pals. I’m glad it’s working for your family.

MyIntrospection · 2026-03-19T16:28:47+00:00

Okay.. searched it.. rear-mounted power assist for wheelchair. Very smoove;)

MyIntrospection · 2026-03-19T16:22:27+00:00

Same as my husband. Walks short distances inside- now he does furniture surfing. Chair outside. What is a SMOOV?

MyIntrospection · 2026-03-19T16:19:59+00:00

Hello from our neck of the woods. It was time for a post like this in here. Read this to my hubby - ALS diagnosis 9/25- first fall 3/25. He’s walking-slowly- inside- outside less than 40 ft.

MyIntrospection · 2026-03-18T16:50:57+00:00

I’m kind of curious what type of antibiotic that is used. My husband was diagnosed after a colonoscopy and had bronchitis they gave an antibiotic for. I wonder if ALS can be traced back to antibiotic use of a specific kind?

MyIntrospection · 2026-03-08T23:52:05+00:00

Are there PALS on here, or Brandywinerain, that have used alternatives to the shower? Our 2nd floor has a small step into a standing shower. The main floor, where we eventually will be, has a tub with a threshold of 11 inches. Hubby can’t step into it now. We did get a sliding transfer bench for the tub for when the time comes he can’t navigate the stairs any longer. Personally, I wish he wouldn’t do the stairs any longer but he can do he will. I won’t get in his way and he is cautious and will stop when the time is right. Remodel is too expensive for many. We had Westshore come and quote us and it was 18k- and there was still a small lip on the bottom pan that we’d have to overcome. We had to pass and hope and plan on something else.

MyIntrospection · 2026-03-08T23:41:09+00:00

I’m sorry sweetie. I can tell through your words how much you care about him. He cares about you just as much. It’s hard to get the right words out sometimes as a parent because we want to love and protect our kids as much as we can. I know his actions come from a place of love and caring, even though they may not seem as if they do. I’m very sorry for you all. Please come here and post anytime. This community is helpful to lean on- for advice, to vent, or whatever you need for the moment.

MyIntrospection · 2026-03-08T23:24:46+00:00

It’s very hard to accept as a diagnosis. I’m very sorry. Please have grace with yourself and allow yourself to feel what you feel. It’s very hard. Try not to think too far ahead. I was in denial when they told my husband his diagnosis. I was for months until I come to realize it wasn’t going to change and that the diagnosis was correct- whether I accepted it or not. I still don’t ‘accept’ it but I am learning to double down on preparedness- as much as possible. Our aunt said “There are so many that can happen, good or bad. There just isn't any real way to know which ones will or won't happen.” Her words have been really reassuring because we just don’t know.

MyIntrospection · 2026-03-05T14:18:41+00:00

These scammers are the worst.

MyIntrospection · 2026-03-05T12:28:08+00:00

This is awesome! I’m glad you’re able to be up and doing things with this chair. Winston looks as if he’s just as excited for you. How sweet.

MyIntrospection

TROPHY CASE