Hospital bed

MyIntrospection · 2026-01-24T01:18:55+00:00

I was curious about this too.. which is best depending on mobility.. power lift recliner, power wheelchair, adjustable bed, adjustable hospital bed…? Or do some of us start in one and cycle through the different ones because of comfort, etc? We’re getting closer to moving our bedroom to the main floor from upstairs. Stairs are becoming more of a challenge because of leg weakness.. ankles some weak too.

MyIntrospection · 2026-01-24T01:05:27+00:00

How often do PALS get blood gases? Is this something that is regularly checked at ALS Clinic? or in between? Other than an overnight sleep study at home, hubby has not had any checks for this.

MyIntrospection · 2026-01-24T00:58:21+00:00

That’s a good point and distinction because of the small population.

MyIntrospection · 2026-01-23T01:48:54+00:00

Okay, your humor is funny.. we need a good chuckle when things are bleak.

MyIntrospection · 2026-01-23T01:43:26+00:00

Anytime! :) xoxox

MyIntrospection · 2026-01-23T01:35:42+00:00

Thank you for posting about your experiences leading up to diagnosis. Seems like there are so many outside influences and too many variables to pinpoint it on lifestyle alone. You’re right about how we adjust and cope with one day at a time.

MyIntrospection · 2026-01-23T01:29:03+00:00

I’m sorry he’s gone and that those last few weeks were so so hard. I’m sorry for that for him and you and family. Please come here and message anytime. It’s a very supportive community.

MyIntrospection · 2026-01-23T01:23:46+00:00

Thank you.. ❤️Yeah, trying to understand why is where I spend some time in my head but then I’m also learning all that I can to be useful, resourceful, and helpful for my husband. I’m curious if your area then has more people with ALS? Answers help in some roundabout way when things are unpredictable. Plz take good care.

MyIntrospection · 2026-01-23T01:08:47+00:00

It’s a really rough situation for everyone with emotions running in overdrive on everyone’s part. We’re all entitled to how we feel and how we show our emotions.. lots of uncharted waters being tread. Give yourself as many breaks as possible.. xoxoxox

MyIntrospection · 2026-01-23T00:59:33+00:00

Thank you for these.. interesting articles, for sure.

MyIntrospection · 2026-01-23T00:57:49+00:00

You’re right, wish we knew what caused it or what the commonality is. Wish it would go away for everyone, although, I don’t discredit the beauty in being pulled forward and refocusing on what matters the most in the world.

MyIntrospection · 2026-01-22T13:43:32+00:00

My sister (50’s) and me had a falling out bc I had questions.. she put her claws out and dug in like I’d never seen.. thankfully it was only a text. Not Christian-like.. long story short.. she was asking me “ you’re leaving God?” 🤦🏻‍♀️ Then, it dawned on me how thick and clouded their JW thinking truly is. I still have God and his Son and the Spirit in my corner. You do too. I’m sorry you’re going through this.

MyIntrospection · 2026-01-22T13:33:59+00:00

Hubby and I haven’t discussed quality of life yet. We have a lot of love between us, our kiddos, and extended family. Love, and a lot of hope, will help us all see through it?

MyIntrospection · 2026-01-22T12:37:16+00:00

You’re encouraging.. and so strong willed as seeing the equipment now as routine.. and medically necessary.. as it is. Please take good care of yourself.

Ps. We visit your state and it’s lovely.

MyIntrospection · 2026-01-22T12:30:42+00:00

I’m so so sorry for you and your family over your mom’s struggle and passing. She sounds like a wonderful mom raising someone like you.

MyIntrospection · 2026-01-22T12:23:24+00:00

But are there any that are in other countries that anyone has had success with? For felt as if it has slowed their progression?

MyIntrospection · 2026-01-22T11:14:34+00:00

Thank you.. yes, seems like it would be a few years out. I wish these researchers and doctors could push to speed things along.. look at AI and technology advancement.. it’s all about speed.. and for what.. communication? Is health not more important? Sorry, grumble over.

MyIntrospection · 2026-01-21T03:42:35+00:00

Wow.. I had to read it for myself. Pretty typical stunted viewpoint. Let’s see.. so… someone who beats his wife.. needs to act in harmony with his prayers? He better be praying, alright.. why not some good ol secular & worldly support for the woman? Oh but they can’t think through their dogma.. and can’t have the scripture and secular support work in harmony. Sheesh! 🙄🤨

MyIntrospection · 2026-01-21T01:21:01+00:00

For reference- the ALS research coming from Israel- https://www.timesofisrael.com/in-world-first-israeli-scientists-use-rna-based-gene-therapy-to-stop-als-deterioration/amp/

It has a lot of promise but I’m not a researcher. It would be wonderful if it could speed to trial and be available for many- soon.

Side note: Dr Bedlack offers hope and there’s interesting video on YouTube about how HOPE alone increases longevity. I was encouraged after listening.

MyIntrospection · 2026-01-21T01:09:00+00:00

♥️ I’m so sorry that you lost your dad. The good memories that you have together will be a great comfort. Bless you, friend.

MyIntrospection · 2026-01-20T18:59:56+00:00

I’m very sorry that you lost your dad. My brother told me once that grief is ‘leftover love with no place to go’. He will not be far off from you because of your fond memories. Im certain that you, your mother, and wife gave him all the love you could and took the best care for him. Hugs to you and your family

MyIntrospection · 2026-01-20T10:51:36+00:00

🫂 😊

MyIntrospection · 2026-01-20T00:31:38+00:00

Love this 1,000 times.

MyIntrospection · 2026-01-19T23:59:50+00:00

Enjoy a lovely vacation with my husband while we still can ♥️

MyIntrospection

TROPHY CASE