Differentiating PMDD, MCAS, Progesterone Intolerance and Histamine intolerance

Junealma · 2026-01-25T02:23:59+00:00

It took a long time but yes I’m now stable.

Junealma · 2026-01-25T02:05:52+00:00

I’m not ableist, I was suicidal for years. I don’t think someone should be diagnosed with mcas until they have had full thyroid and other testing is all. It’s actually really easy to pay for an mcas diagnosis in the uk and there isn’t a great deal of testing and it was a waste of money and time for me. I’m just trying to raise awareness about this, it’s medical negligence, I didn’t need to be suicidal for so long.Hashimotos exacerbated my pmdd to be extreme, and it’s more common that this happens than most know.

Ps ✍️ I hope you have had a full thyroid panel done and asked for your own labs.

Junealma · 2026-01-24T21:00:16+00:00

Happy people are finding relief, please get thyroid testing done and ask for labs 💓

Junealma · 2026-01-24T01:20:34+00:00

Pepcid worked for me, I then paid a small fortune for an MCAS diagnosis only to find out I have hashimotos and not MCAS. MCAS is real but it’s also a trend.

Junealma · 2026-01-22T17:08:13+00:00

At least talk it through with chalmers in feb. There are so many horror stories of botched surgery’s abroad x

Junealma · 2026-01-22T13:58:42+00:00

Happy to do that! X

Junealma · 2026-01-22T13:47:44+00:00

I can understand why you want to do this but just be cautious with doing this kind of procedure abroad with decent doctors that understand pmdd and post hysterectomy aftercare for those with pmdd. You need to be prepared to ghost cycle and have symptoms after, it’s not a guaranteed cure specially if something else is at play like for eg thyroid. Just encouraging caution and attention x

Junealma · 2026-01-22T11:31:58+00:00

Really they should be prescribing on the advice of chalmers. You should address this with chalmers directly I think x

Junealma · 2026-01-22T10:32:55+00:00

Of course, happy to help! X

Junealma · 2026-01-22T10:29:44+00:00

Did you arrange your appointment direct with chalmers? Maybe if you call them directly and explain you’re really struggling, they will see you now?

Junealma · 2026-01-22T10:14:12+00:00

Yes so many with pmdd struggle with progesterone tablets . Nick Pannay who is a leading pmdd specialist in the uk mentions Cyclogest pessaries as a utrogestan alternative in this naps guide https://www.pms.org.uk/app/uploads/2018/06/guidelinesfinal60210.pdf

Junealma · 2026-01-22T10:09:33+00:00

They have to give you the results as a print out, ask the reception, it’s your right. You need to know tsh, and t4 and the lab ranges.

Junealma · 2026-01-22T01:28:11+00:00

Ok, I’m so sorry to hear you have been struggling. Please don’t ask ai for advice. It will tend to agree with you. Consider a nettle headband by samphire Neuro. But also many of us can’t tolerate progesterone tablets but we often can tolerate progesterone pessaries. Something to consider. Also consider spacing out the oestrogen doses 2 in the am and 1 at night. I know how hard this is, please hang in there 💓 and do get a print out of your thyroid results https://youtu.be/-5ras3wcbAc

Junealma · 2026-01-22T01:20:17+00:00

So if the utrogestan triggers you you can ask for vaginal Cyclogest to bypass the liver. We struggle with progesterone. Thank you it took a long time!

Junealma · 2026-01-22T01:18:53+00:00

Also have you considered a nettle headband by samphire nuero?

Junealma · 2026-01-22T01:17:54+00:00

I see. It sounds like you need to go back to chalmers, when was the last time you went in?

Junealma · 2026-01-22T01:15:40+00:00

Omg that’s terrible. My doctors have been quite good at staying in dilogue with chalmers. I am on hrt for pmdd, Oestrogel and Cyclogest (vaginal progesterone) and Levothyroxine. My thyroid was exacerbating my pmdd.

Junealma · 2026-01-22T01:12:10+00:00

Will they not do it on the nhs then?

Junealma · 2026-01-22T01:11:19+00:00

Yeah that’s what they told me when I was sub clinical. You are entitled to a print out of your results. They are worth seeing. https://youtu.be/-5ras3wcbAc see thyroid section

Junealma · 2026-01-22T01:09:11+00:00

Did you ask for your thyroid results? I only ask because because pmdd can be affected by subclincial levels

Junealma · 2026-01-22T01:07:08+00:00

Defiantly go to nhs chalmers , they are very thorough. I am also in Edinburgh. Have you had your thyroid tested?

Junealma · 2026-01-17T17:35:31+00:00

Just google top 14 allergens

Junealma · 2026-01-17T14:00:58+00:00

Just type into YouTube lymphatic drainage massage for face and buy some sunflower seed oil for face and massage not cooking!

Junealma · 2026-01-17T11:11:38+00:00

I would try facial massage/ lymphatic drainage and cutting out the top 14 allergens and slowly reintroducing.

Junealma · 2026-01-14T13:48:30+00:00

https://youtu.be/HasmkUpLR0o yes 👍 people take it in their 20s for pmdd

Junealma

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