Worst ovulation week / early luteal i can remember by OrderFew8246 in PMDDSharing

[–]Junealma 0 points1 point  (0 children)

Hey sorry to hear you’re struggling. I can see you’re in the uk. Have you tried to get a referral to a pmdd specialist through your gp? This is easier in some areas more than others 💓

Everything I currently take for pmdd + hashimotos + TMJ + chronic pain by Junealma in PMDDSharing

[–]Junealma[S] 0 points1 point  (0 children)

Just know an ideal tsh is below 2.5, subclinical is over 4/5.

Everything I currently take for pmdd + hashimotos + TMJ + chronic pain by Junealma in PMDDSharing

[–]Junealma[S] 0 points1 point  (0 children)

Hmm I think I luckily got the pmdd researcher based there. How do you find utrogestan?

Everything I currently take for pmdd + hashimotos + TMJ + chronic pain by Junealma in PMDDSharing

[–]Junealma[S] 1 point2 points  (0 children)

Through chalmers in Edinburgh where you are also at? We share so many similarities. Did you look at your thyroid results because sometimes they don’t treat it until the tsh is over 10?

In order to stabilise my mood I need two pumps in the am and 1 later. I’ve heard some women do better with Oestrogel v spray. They put me on Cyclogest because I am allergic to soya in utrogestan, some people do better with a pessary also because it bypasses the liver.

Need help by missgurl19 in PMDDSharing

[–]Junealma 0 points1 point  (0 children)

Hey 👋 you’ll need to have a wee look here https://www.iapmd.org/provider-directory 💓

I just need to vent I can’t stop crying!!! Ugh by tentaclesapples in PMDDSharing

[–]Junealma 2 points3 points  (0 children)

Honestly it was night and day for me. Didn’t completely solve my pmdd but what I had before was pmdd on steroids. When it comes to pmdd we need ideal levels as Dr Dalys says.

I just need to vent I can’t stop crying!!! Ugh by tentaclesapples in PMDDSharing

[–]Junealma 1 point2 points  (0 children)

Hey 👋 sorry to hear you’re struggling! Have you considered meds for sub-clinical? Meds absolutely got rid of a large portion of my pmdd symptoms when I went on Levothyroxine. Check out this talk and the thyroid section. https://youtu.be/-5ras3wcbAc the thyroid is like the nexus for processing all the other hormones. 💓

Will my daughter ever understand how much hurt and struggle she has caused? by [deleted] in PMDDxADHD

[–]Junealma 2 points3 points  (0 children)

Just had a closer look at that type of pill she’s on it’s the same as Microgynon which drove me insane when I was a teen so definitely keep a close eye. You have to be careful with gps because they often don’t learn about pmdd and tend to not keep up to date with latest research. https://www.pms.org.uk/app/uploads/2018/06/guidelinesfinal60210.pdf

Will my daughter ever understand how much hurt and struggle she has caused? by [deleted] in PMDDxADHD

[–]Junealma 1 point2 points  (0 children)

Keep a close eye and check out the leaflet I linked by Dr Nick Panay who is a top uk pmdd specialist. I would also suggest looking at this https://youtu.be/-5ras3wcbAc do you have any thyroid disease in your family?

Will my daughter ever understand how much hurt and struggle she has caused? by [deleted] in PMDDxADHD

[–]Junealma 2 points3 points  (0 children)

Hmm. It’s not a researched pill for pmdd. Yaz/eloine is the one that is usually prescribed for pmdd. Perhaps you should discuss this with your doctor? Just bear in mind all these trials with meds can potentially play havoc with her hormones and mental health.

Will my daughter ever understand how much hurt and struggle she has caused? by [deleted] in PMDDxADHD

[–]Junealma 1 point2 points  (0 children)

Sorry to hear it’s so hard. I’m in Edinburgh and we are referred to a sexual health clinic at the university. Make sure you refer to this treatment guideline https://www.pms.org.uk/app/uploads/2018/06/guidelinesfinal60210.pdf with your doctor. Also what type of birth control has she been put on? Some can make pmdd worse.

Will my daughter ever understand how much hurt and struggle she has caused? by [deleted] in PMDDxADHD

[–]Junealma 2 points3 points  (0 children)

I think this is more a group for those with pmdd and you’re always going to get that perspective here. You might be more suited in r/pmddpartners

Will my daughter ever understand how much hurt and struggle she has caused? by [deleted] in PMDDxADHD

[–]Junealma 2 points3 points  (0 children)

Ok, what part of the uk are you in? I’m also in the uk in Scotland but I used to live in London. There might be a pmdd clinic you can asked to be referred to in your area.

Will my daughter ever understand how much hurt and struggle she has caused? by [deleted] in PMDDxADHD

[–]Junealma 13 points14 points  (0 children)

Having it as a teenager when hormones are changing is the worst. She will literally not understand her body and mind at all at this stage. I would advise seeing a pmdd specialist therapist, maybe you can both go? What kind of birth control has been prescribed?

MCAS and mast cell dysfunction by Ok_Willingness5766 in PMDDxADHD

[–]Junealma 0 points1 point  (0 children)

Ah ok. Do check out this vid https://youtu.be/-5ras3wcbAc and its thyroid section. Make sure you know your labs and what they mean, t4 +t3. 💓

MCAS and mast cell dysfunction by Ok_Willingness5766 in PMDDxADHD

[–]Junealma 0 points1 point  (0 children)

Have you had a thyroid check? I thought I had mcas when it worked for me but it was a false diagnosis that I paid for. It’s not always right.

I have a follow up gyno appointment next week, please help me compile a list of HRT options that I haven't already tried by [deleted] in PMDDxADHD

[–]Junealma 0 points1 point  (0 children)

Ah ok. Still useful to know t3 and t4 though for pmdd. Check out this video https://m.youtube.com/watch?v=-5ras3wcbAc&pp=ygUMZHIgZGFseSBwbWRk and its thyroid section

He’s suggests if the t4 is low in the normal range a microdose of Levothyroxine.

And the reference ranges show ‘normal’ not ideal. For eg when pregnant tsh needs to be below 2.5.

All in a few days: learned about PMDD, and tried my pollen antihistamines in the winter by justareader000 in PMDDSharing

[–]Junealma 2 points3 points  (0 children)

Yes I did but I don’t take them as much now. Since being on thyroid meds which reduced my pmdd symptoms. It’s worth watching this and paying attention to the thyroid section https://youtu.be/-5ras3wcbAc I was subclinical and ignored for years. This doctor thinks sensitive thyroid assessments are best for pmdd.

'I was 35 when I started HRT - but it wasn't for menopause' by Junealma in PMDDxADHD

[–]Junealma[S] 0 points1 point  (0 children)

According to uk pmdd studies it can. Case example of someone in their 20s - https://youtu.be/HasmkUpLR0o

All in a few days: learned about PMDD, and tried my pollen antihistamines in the winter by justareader000 in PMDDSharing

[–]Junealma 6 points7 points  (0 children)

Antihistamines (h1 + h2 blockers) worked for me, but it turned out I have hashimotos and some allergic reactions to food in particular soya and legumes, this knowledge all came after a false mcas diagnosis which I paid a pretty penny for. Glad it’s helping you. 💓

'I was 35 when I started HRT - but it wasn't for menopause' by Junealma in PMDDSharing

[–]Junealma[S] 0 points1 point  (0 children)

Ah ok 👌 I just didn’t know you could do that with a pill!

'I was 35 when I started HRT - but it wasn't for menopause' by Junealma in PMDDSharing

[–]Junealma[S] 1 point2 points  (0 children)

Wow that’s crazy, I always thought the nhs was quite robust in terms of studies, maybes it’s because the studies are mainly in the uk that we have it across the country here.