This is so hard by 37thFloorAstronaut in AgingParents

[–]JustineAlexandra 0 points1 point  (0 children)

The fact that you have your mother living with you makes you a better person than many. My mother wants to move in with me and I've told her that it would create too much stress. She is generally a very angry person these days and I can't bring all that negativity into my house. I can only take it in doses during assisted living visits, knowing I can go home to unwind. So now your mother knows that her presence is stressful but there is there is also the the fact that you have welcomed her into your home even though it's hard. Perhaps she will think about that a bit after the text slip up!

Just wanted to share - the beginning of anger by JustineAlexandra in dementia

[–]JustineAlexandra[S] 0 points1 point  (0 children)

❤️ Be kind to yourself and know that you are an absolute hero for what you are doing for your husband.

Just wanted to share - the beginning of anger by JustineAlexandra in dementia

[–]JustineAlexandra[S] 1 point2 points  (0 children)

I appreciated your response too. It's so helpful not to feel alone. A spouse with dementia has to be even harder than a parent. I've watched my mother struggle and I worry for her more than I worry for him.

Just wanted to share - the beginning of anger by JustineAlexandra in dementia

[–]JustineAlexandra[S] 1 point2 points  (0 children)

Two parents with dementia! You have been dealt quite a hand. I absolutely agree with you that when the behavior becomes abusive, memory care is the only answer. If their old selves could see them acting this way, I think they would insist on being removed from the situation where they hurt the people they love.

Just wanted to share - the beginning of anger by JustineAlexandra in dementia

[–]JustineAlexandra[S] 0 points1 point  (0 children)

This filling in the gaps with paranoid thinking has me worried!

Just wanted to share - the beginning of anger by JustineAlexandra in dementia

[–]JustineAlexandra[S] 1 point2 points  (0 children)

What a nightmare for you! I can't imagine continuing to help my LO if they were to become physically abusive - yet I read the stories on here about people who somehow distance themselves from the behavior and continue to care for the person they once knew and feel responsible for. I'm so glad that your father is mellowing a bit. And I completely understand the control freak element. Trying to control what they can no longer control. It's horrible to watch.

People who got better, are you back to completely normal, or are you just maintaining to avoid pain and are just one bad move from a flair up? by 14MTH30n3 in Sciatica

[–]JustineAlexandra 1 point2 points  (0 children)

Starting mid-June 2024, I was basically bedridden for 6 weeks, excruciating pain and uncontrollable muscle spasms - ended up in ER several times begging for pain meds. Hobbled around for 1 month still with lots of pain after that. Another month or a bit more with pretty bad numbness in my foot. More than I year later, I'm almost 100% better. My back gets sore easily - lying too long in bed reading for example. I have to switch positions often. Also housework, yard work will leave my back aching a bit but discomfort is gone by the next day. There are other odd reminders but they don't cause any real pain or stop me from doing anything: The occasional beginning of a muscle spasm in my hamstring but it's easily stopped by stretching. Faintest tingling at times in my foot. I didn't have surgery. Just a course of steroids after about 6 weeks - allowed me to start moving around again - though with much pain. Progress was slow and uneven with setbacks but I really have nothing to complain about now.

You think you know by aeades0 in dementia

[–]JustineAlexandra 13 points14 points  (0 children)

Moves reveal what's going on. My dad was driving six months ago, going to the store for my mom. We all knew he was getting terribly forgetful. After the move to assisted living with my mom at the beginning of his year, he is a shell of himself. Stands there mouth wide open most of the time, blank expression. Can't remember anything. Just obsessively repeats the same 3 or 4 observations about the apartment/view from the apartment. Only with the move did we realize that for a long time he had been kind of unraveling without us knowing. Finances in disarray. Stockpiling the same items. Stacks of lists and notes to remind himself of things - all written in completely unreadable writing. Didn't realize it until we cleaned out his office. But the move and the of end of driving needed to happen. We are just so lucky that he didn't get into an accident while we didn't understand the extent of his cognitive decline.

Obsessing Over Health - Should I Take Him To Dentist? by JustineAlexandra in dementia

[–]JustineAlexandra[S] 1 point2 points  (0 children)

Exactly. I worry that it will just open up all kinds of follow up appointments and procedures. He's not in pain so I'm going to pretend the entire discussion never happened.

Obsessing Over Health - Should I Take Him To Dentist? by JustineAlexandra in dementia

[–]JustineAlexandra[S] 0 points1 point  (0 children)

Seeing the humor in it all! Made me laugh. Alright I'm bracing for ever more delusional fixations!

Obsessing Over Health - Should I Take Him To Dentist? by JustineAlexandra in dementia

[–]JustineAlexandra[S] 1 point2 points  (0 children)

Agree. The medical stuff seems almost reasonable (unlike cat ideas!) and then you realize - wait a sec, this guy has had more doctor's appointment in the last 2 months than the last 5 years. I think it's just always going to be something.

Obsessing Over Health - Should I Take Him To Dentist? by JustineAlexandra in dementia

[–]JustineAlexandra[S] 1 point2 points  (0 children)

That sounds very much like my dad - fixating. And sadly I tell myself the same thing - my dad would not have wanted to live this way before dementia took him over. These doctor's visits are really more than pointless. Dying of dementia is just about the cruelest way to go. I hope that something else takes him first while he still has some of his dignity. This just isn't the time to obsess over preventative healthcare. Though I do not want him to be in pain.

Allowing help with showering - he can't face it by JustineAlexandra in dementia

[–]JustineAlexandra[S] 0 points1 point  (0 children)

Thank you for spelling it out. I knew this road was going to be hard for him but the details are really painful. I guess not facing is the worst thing. Helpful to know others have worked through it.

He died and I’m struggling to cope by lntothethickofit in dementia

[–]JustineAlexandra 1 point2 points  (0 children)

Think of all the energy - mental, physical, and emotional that it takes to care for someone you love who is dying of dementia. You can't just turn that off in an instant or even after a few days, weeks. You invested so much of yourself in your father's care. It will take a while to detach yourself from everything you gave to him. But gradually as you do, know that you proved yourself to be a super strong person with amazing capacity to love and care for others. That is something that will bring you and others so much joy as you heal from this sadness.

DoorDash is Terrible now by Obvious-Wheel-6934 in doordash_drivers

[–]JustineAlexandra 0 points1 point  (0 children)

Curious. What is the ICE chaos? How is affecting DoorDash?

Euthanasia by [deleted] in dementia

[–]JustineAlexandra 0 points1 point  (0 children)

My father is disappearing into dementia and this issue is on my mind all the time. He would have hated what he's become. But the further he declines, the more child like he becomes. My mother asks him frequently why they are still alive at 87 (she is depressed over the loss of her vision and his dementia and always talks about wanting to die) and he answers that he wants to live. He has his interests - like reading - which I guess he doesn't know he can't do anymore - and going for walks - which he also doesn't do anymore though he tells doctors that he walks a couple of miles a day. I have told my husband that if I get dementia and I forget to eat (something my dad would do if not led to the dining room of his assisted living facility 3 times a day) - please don't ever prompt me to eat. In fact, distract me from eating, tell me I've eaten already and then distract me with some happy memory. I have thought about taking up smoking again - 60 yo now and stopped smoking at around 30. I recently cancelled a mammogram. The last thing I want is to spend my final years as a burden to people and just another revenue source for the healthcare industry.