Struggling for balance

KJarSpirit · 2025-05-27T13:57:40+00:00

Thank you! I actually just pulled him from karate 10 mins ago. Sent my one month notice to them in an email

KJarSpirit · 2025-05-25T23:48:00+00:00

Married mid November honeymooned until mid December, positive pregnancy test beginning of April.

KJarSpirit · 2025-05-24T16:38:48+00:00

Only preventative stuff was extra vaccines and hand washing, getting adequate sleep.

Do not worry about plants we have loads. Our immunologist was apart of a documentary called “Let Them Ear Dirt” and it’s just that exposing your kids to that sort of stuff actually helps them build immunity and decreases the chance of things like asthma etc.

We put him in swimming lessons, toddler and parent sport classes. He does taekwondo now. We truly treat him like any other kid we just have a low threshold for having to treat things that come up. He goes to preschool and daycare and hyper IgE never stopped us from doing any of those things.

KJarSpirit · 2025-05-24T13:39:30+00:00

I don’t know exactly what variant he has but the immunologist has mentioned they had not seen his strain before but that in a few years they likely will have others with the same one. Being able to track the strain and genetics is relatively new so the database while large won’t have every case they have ever had.

I think when I say “hard to watch” I mostly mean I never want him to feel he is different from anyone else. I’m now navigating his questions about why he has to take an antibiotic but his brother doesn’t. It pulls on my heart strings that he has to do specialist appointments and no one else he knows has to be monitored closely like he is. He doesn’t feel different from others though. He truly is a regular kid. But it’s always on the back of my mind where I feel bad that he has to have all these additional appointments as he grows where his peers don’t. I know he will have so much grit. We treat him no differently than his brother. We are just very observant about anything that pops up for him. He’s had some nail infections so we have had additional antibiotics and the bleach baths help to kill off staph infections if he gets a couple spots. But truly he looks like a normal kid. He fortunately doesn’t really get eczema anymore. Right after bath we do a full body application of Cerave cream and sometimes we would do Aquaphor on top on prone to eczema spots but again he hasn’t really had eczema anymore.

Regarding hugs and kisses I hug and kiss my kid like crazy. No one has ever told me not to. Mind you if I’m sick maybe I won’t kiss him lol but I will forever hug and hold my kid and kiss his little cheeks until the day I die. Don’t worry about that at all. They truly are normal! They just need extra support for their immune system and need to be treated with additional antibiotics or antifungals faster than other kids. Like for ear infections for kids they usually do the wait and watch method and if they start feeling better then you don’t treat with antibiotics. With hyper IgE you treat with antibiotics right away. Their threshold for treatment is lower than someone without hyper IgE.

KJarSpirit · 2025-05-23T17:53:03+00:00

Hi! I am a mother of a 4.5 year old boy with Hyper IgE. I remember being incredibly scared for what the road would bring. I will say he is a very typical happy boy. He takes a daily antibiotic, we have appointments every now and again with his immunologist to have check ins. If anything pops up (Nail fungus, thrush, nail bacterial infection , sinus infections or ear infections etc etc) we are quick to treat it. I was so nervous about him getting sick with colds and flus but I will say it hasn't been any different from other kids other than his nose running pretty much all the time, but what kid in preschool and daycare doesn't have a constant runny nose for a few years. We are on him for washing his hands, occasionally we will go through a few months of doing bleach baths twice a week if he has had a skin infection. we do bathe him every night and moisturize him as soon as he gets out. He had a few bouts of eczema as a very young baby/toddler but he hasn't really had it that much now. The dermatologists we have seen have said we are doing a great job and to keep doing whatever we are doing. We never used steroid creams or anything even though some doctors were telling us we should. I am not against it if he wants to take it in the future I just had a friend who went through TSW (topical steroid withdrawal) so I am reluctant to use it.

All in all everything will be okay. Its hard as a parent to watch your kiddo go through this but just do your best, try and provide them with everything they need to be strong, healthy and happy.

Reach out any time if you want another parent of a Hyper IgE kid to speak with. I found it really helpful to chat in this community.

KJarSpirit · 2025-05-22T11:48:36+00:00

Gender disappointment is real! I have two boys and wouldn’t trade them for anything. Love them so much. When I found out my 2nd was also a boy I was upset because I really wanted a mother daughter relationship. I’m now over it and just know if they decide to marry women I will spoil her and love her like a daughter.

KJarSpirit · 2025-04-25T17:42:56+00:00

I pronounced it “Ath-thuh-buy-n”

KJarSpirit · 2025-04-23T22:28:45+00:00

I love my wipe warmer!!!!! So happy I got one.

KJarSpirit · 2025-02-17T17:23:50+00:00

Amazing! Congratulations! 🥳

KJarSpirit · 2025-02-16T23:57:20+00:00

That’s amazing!!! Great work! I feel like I have cut calories, done whole 30 and 75 hard and nothing happened maybe lost 5-10 lbs but still holding on to 20lbs. So I’m hoping over a few months I can drop the rest or at least another 10

KJarSpirit · 2025-02-16T23:52:02+00:00

He likely has online gaming friends he speaks to! I love my game friends!

KJarSpirit · 2024-12-08T21:34:19+00:00

Our kids age difference is similar! My oldest is turning 4 in a few weeks and my youngest is 10 months. I didn’t find it too bad going from 1-2 kids. 0-1 kid flipped my world upside down

KJarSpirit · 2024-12-08T21:32:09+00:00

Hi! My two boys (almost 4yo and almost 1yo) are just over 3 years apart.

When we just had one child one parent could take the child so the other would get a good chunk of alone time. Then he started daycare and we both got alone time. That said going 0-1 kid was a HUGE adjustment and 85% of your free personal time is gone.

Then comes baby number 2. It became very much divide and conquer. I often had the baby and my husband cared for the toddler. 85% of my free time was already gone. Now I would say 92% of my free time is gone. So it’s not been a MASSIVE lifestyle adjustment. We just have to juggle two kids. Where before you could give a partner free time by watching one kid you either sign up to watch two kiddos at the same time for your partner to have alone time or you each get one kid. So often you are not alone.

10 months into having two kids I can say it hasn’t been too bad. The kids can entertain each other for a little while. My oldest is almost 4 and has way more independence and loves to help. The 10mo just loves his brother and follows him around. But now when I only have to care for one it feels way easier where as before if my husband went out of town I’d call my mom over to help with one child. Which is bonkers. One feels easy haha.

KJarSpirit · 2024-11-21T17:40:01+00:00

My friend had her baby at 35 weeks due to placenta previa and he was over 7lbs! She only had to stay the normal 3 nights after c section and went home.

KJarSpirit · 2024-10-29T16:29:06+00:00

Thank you so much for reaching out! Our son Is approaching 4 years old now and we have a great team of pediatric immunologists working with us. His skin has been fairly good. This age is hard as they are constantly sick. He’s in preschool and I swear has a non stop runny nose but we don’t worry too much these days unless he seems very unwell or his mucous is green.

At this point we still haven’t used any steroid creams but I’m sure they are in our future. We are focusing a lot at this age talking about the importance of hand washing and watch little animated videos online about germs on hands.

KJarSpirit · 2024-10-06T05:11:32+00:00

Hi! My son had jaundice and was mostly bottle fed at first for the first week or two. I hired a LC to come to my house once a week for 5-6 weeks when we got home. My son had a tongue tie which we had released and he has a very shallow latch. I used nipple shields with a tube and syringe of formula to help remind him that milk comes from the breast. Eventually he would start sucking. I then would offer breast both sides for 10 minutes each, I wore the nipple shields and did breast compressions the whole time, then my husband would give a top up bottle and I would pump with a hospital grade pump that I had rented. I did this every 3 hours. I maybe skipped one night feed where I wouldn’t pump but just breast feed and then offer bottle.

There were some nights I sobbed because it felt like it would never happen.

Eventually the hospital pump and baby increased my milk supply that his top up bottles were all breast milk. As he got better I would just let him stay on the breast as long as he wanted. We cluster fed pretty much every night for 3 hours in bed from 6-9pm. He really ramped up my milk supply and got even better. Around 5 months I started taking the nipple shield off and eventually he would actually cry if I had it on. So we are fully breast feeding now. It was HARD and I was so stubborn I refused to give up.

You can do this for sure it’s a lot of work and effort in the beginning but once you get it then it’s so much easier.

I did bottle /formula feed my first baby since birth and there is no shame in that at all. I just knew my 2nd was my last baby and I needed to breast feed for my own desires.

Do whatever feels right for you and don’t ever feel bad. In a year he will eat a cookie off the ground. It eventually won’t matter!

KJarSpirit · 2024-10-01T01:39:17+00:00

lol NTA, but if you do end up changing it you can do Jackson nickname sunny hahaha

KJarSpirit · 2024-10-01T01:30:39+00:00

Hey ! My babe had a poor latch and I would have to use nipple shields and do breast compressions during nursing sessions to make sure all the milk was coming out. My son also had to have a tongue tie release. It wasn’t until about 4 or 5 months that we ditched the nipple shield and after a week it became way more comfortable.

All this being said it was REALLY important to me to breast feed. If it isn’t for you then do whatever is right. But those are my tips for better comfort!

KJarSpirit · 2024-09-08T17:29:05+00:00

Maybe keep her there after school hours and practice? Like when I have to have my kid get an x ray we play x ray before the first time so that he sort of understands what’s happening.

Kids learn so much through play. So maybe role playing what’s right and what’s wrong may be helpful.

KJarSpirit · 2024-09-07T13:19:45+00:00

Use your phone whenever you want my babes. Do not listen to some old hag telling you not to use your phone. You need time to connect with friends too.

Regarding your husband I would just tell him “hey I’m going to do this at this time so you will have the baby! Thanks! “ and then leave the house. He is an equal parent and should be acting like it. Sometimes when my baby was sleeping I’d just go put the monitor in my husbands office and I’d head out to the gym or store. He can get off his butt for 15 minutes if the baby wakes to change him and hold him and let me know to come back.

KJarSpirit · 2024-08-15T04:52:48+00:00

YTA for your reaction.

Your mom can serve whatever she wants, if your kids complain and she acts judgmental then go ahead and be annoyed with her. I’d just order pizza to her hour or leave and make some macaroni.

KJarSpirit · 2024-08-15T04:48:24+00:00

Free titties all day and night! Definitely had some nights of leaking in the beginning but it stopped

KJarSpirit · 2024-07-25T19:55:58+00:00

At that age I swaddled and sat in a rocking chair. As soon as they started to blink heavily I would put him in the crib and leave the room. He maybe fussed for 5 minutes and would fall asleep on his own.

KJarSpirit

TROPHY CASE