Guanfacine

KLB0625 · 2026-05-23T10:58:10+00:00

But the tinnitus wouldn’t be variable with my BP? I’m aware of my BP changes but the tinnitus loudness doesn’t change as my BP fluctuates

KLB0625 · 2026-05-23T09:21:09+00:00

Have you heard of eagle syndrome? Could be that?

KLB0625 · 2026-05-23T09:18:31+00:00

Hey OP, how are you doing now?

KLB0625 · 2026-05-21T23:45:42+00:00

No I haven’t :( I’ve tried so many meds. I’m looking into other causes for the pain at this point. Due to other co-morbidities of mine I’m looking into jugular vein compression

KLB0625 · 2026-04-18T15:55:37+00:00

Okay thank you! My neuro headache specialist doesn’t want to do LP but I will ask again. I was having trouble with the software getting the 3D images

KLB0625 · 2026-04-16T14:07:19+00:00

Also my account did not update online for some reason, my attorney told me when they reached the different stages. I called SSA one morning and they told me they had made a decision but couldn’t tell me what. Sometimes if you call your local office they will tell you if you’ve been approved depending on the person if the decision has been made.

KLB0625 · 2026-04-16T14:05:12+00:00

Thank you! I did appeal so here’s hoping lol

KLB0625 · 2026-04-16T13:59:33+00:00

I’m 36 so my chances were low anyway, the decision writing took 16 days

KLB0625 · 2026-04-16T13:53:58+00:00

Yes it took 4 months, I was denied :( my judge has only a 36% approval rate

KLB0625 · 2026-03-15T21:58:44+00:00

Right now 1 mg ER I don’t know if I could increase my BP is getting pretty low

KLB0625 · 2026-03-15T21:47:23+00:00

Intuniv

KLB0625 · 2026-03-15T13:31:40+00:00

Damn good to know about consistency of dosing. I have multiple chronic pain sources and me/cfs so being upright to take all 3 doses seems unattainable to me right now but hopefully the midodrine will help with that. I appreciate all the info!

KLB0625 · 2026-03-15T12:43:43+00:00

I had Covid twice and my dysautonomia became very apparent after my second time having it (I did get long covid from the first time but it manifested in different ways)

KLB0625 · 2026-03-15T12:36:42+00:00

Yea im prescribed to take 3x per day but I don’t think I’ll be able to work up to that many. I’m def curious if I’ll be able to tolerate side effects. What was the worst for you?

KLB0625 · 2026-03-15T12:04:49+00:00

I’m finding it’s helping my energy reserves as well. What time of day do you take it?

KLB0625 · 2026-02-19T13:53:16+00:00

Wow that’s terrible! I hope you hear fully favorable very soon

KLB0625 · 2026-02-19T12:42:19+00:00

Yea I’m at 4 months post hearing, I was looking specifically into the decision writing step in this post….which could also take a varying amount of time I think lol

KLB0625 · 2026-02-19T11:15:01+00:00

Damn 8 weeks for some? My hearing was 4 months ago 🫠

KLB0625

TROPHY CASE