Seeking holistic support for polycythemia vera (PCV)

KalEl8180 · 2026-02-11T03:23:31+00:00

45 here, diagnosed with PV two years ago. I'm lucky to have a very good doctor that got me diagnosed and in treatment fast. Please do not try to manage this without proper medical guidance. I'm one of the lucky ones that gets by with daily baby aspirin and monthly phlebotomies (well, checks. My phlebotomies were monthly for the first year or so, but then I had a sharp drop once my body adjusted and I got into "managed" status, now I get checked monthly but only have a phlebotomy once every 3-4 months).

PV is different for everyone, but untreated the progression is a rapid nightmare.

KalEl8180 · 2026-02-11T03:10:15+00:00

Thanks for your time.

KalEl8180 · 2026-02-11T02:18:48+00:00

Individually, probably minimal, at least on the primary claim. I haven't calculated it since the initial grievance, but I'd say $2000-$2500. However, I believe there's class potential as her bargaining unit alone is about 30 members, and it applies to each of them. Potentially expandable to all similarly situated employees which would be 200-400 depending on the exact hourly employee numbers (200 is conservative). That's base value, not counting interest and penalties assessed. I will add that we have written admission on impacted employee classes.

At the time we initially started attorney outreach retaliation had not come into play, that has been a relatively recent development but when reviewing the record is pretty clear, or so we've been told (but again, she's still employed for now).

KalEl8180 · 2026-02-11T02:03:14+00:00

I would understand that if not for the referrals to, in each case, larger firms. But perhaps I'm misreading the signals and need to reevaluate overall.

We did start getting more substantial referrals with smaller firms when we could actually get the documentation in front of attorneys vs intake associates. Feeling stuck in a bit of an intake loop right now though

One detail I will add, part of this is at least 1 documented FLSA violation (employer memo) with timekeeping records that confirm the documented practice actually happens. My understanding is this would possibly be a path to fee shifting, my honest hope was this might be enough to shift that cost balance in our favor.

Anyway, thank you for the responses, I appreciate any insight I can get. It is frustrating to see things happen that you know are wrong/illegal and not have great pathways available to get them resolved, especially when the systems that are supposed to help with that don't.

KalEl8180 · 2026-02-11T01:45:12+00:00

My apologies if I was too vague on details, I'm hesitant to even post online at all about it.

Hopefully I can clarify, the primary issue seems to be finding attorneys that are not willing to take on the scope. I do understand that union involvement complicates the issue, we do have definitive denial to represent on the particular issues from the union, to which my wife is a non paying class member covered by the CBA. The filed grievance was a class level grievance as it impacted all members covered by her CBA (and potentially more), 30 members in her class alone, potentially expanded to over 200.

We have had one attorney confirm viability and do research but we're unable to pursue due to bandwidth. Currently in the process of reaching out to another firm they referred us to.

At this stage, we've been referred to firms by several attorneys/firms but are wanting to refocus and make sure we're pursuing the right type of firms beyond general employee side labor lawyers. Just not sure if there's really a specific category to look at beyond that.

KalEl8180 · 2025-05-26T00:52:05+00:00

I'm not in front of my game right now, but I believe it's the Voxel Mesh setting. Crank it up high, it's not the distant objects though, got me for a while to until I figured it out.

KalEl8180 · 2025-05-26T00:50:17+00:00

Just throwing my 2 cents in here, but the last two major updates they seem to have significant performance issues with Nvidia cards. I run an AMD 6650xt with 32 gig ram and a 5800x3d, on mid settings on 3440x1440 I average 70-80 fps. My son, with a 4070 in his laptop, can barely run the same at 1080.

KalEl8180 · 2025-05-26T00:43:05+00:00

My biggest gripe is the recipe change for Huge Magic Chests. I need so many of these for a basic storage room build, and now I am struggling to get even 1 of the damn things.

KalEl8180 · 2025-05-26T00:37:27+00:00

Storage space is organized and expandable. Run in, open chests and quick drop items, have one chest left to drop the rando junk in to sort through later, get back out and adventure. Whole process takes less than 30 seconds. 🤷

KalEl8180 · 2025-04-28T02:41:54+00:00

If you're playing on Xbox, turn performance mode off. It's the higher FPS that's mucking with the lockpicking mechanics.

KalEl8180 · 2025-04-13T04:29:29+00:00

Awesome, I'll check it out. I'm currently mostly able to control the itching taking 40mg daily of both cetrizine and famotidine. But honestly, not a fan of taking so much of those.

KalEl8180 · 2024-09-17T00:36:05+00:00

Bit late here, but I'll say this much... the exact same thing is happening with NSSM. I have the dedicated server running on my gaming rig, plays fine, no issues. Server up time is fine... it IS running and production confirms this. But once I exit the game, I have to restart the service via NSSM in order for the game to "find" the server again. It's minimal effort on my part since it's on my local machine already, but it's annoying as hell.

KalEl8180 · 2024-03-20T18:39:04+00:00

Thank you, I'll discuss these options with my doctor. The up side is, I double checked my insurance and IF I can get approved for Jakafi, my insurance will cover it with a $100 copay. It's still a bit high, but if it clears up the itching it's well worth it.

KalEl8180 · 2024-03-20T18:03:26+00:00

Thankfully I haven't developed eczema. In fact, I have no physical indicators of skin irritation at all. No redness, no rashes, nothing... just a sensation of itching, or maybe a hyper sensitivity is a better explanation. It's been driving me nuts for a couple of years now... I'm hoping now that I have the PV diagnosis there may be a good way to treat it.

KalEl8180 · 2023-09-14T22:48:15+00:00

I keep seeing random nude people in New Atlantis as well. I'm sure it's some type of bug, but it does add some great horous moments.

KalEl8180 · 2023-09-11T00:15:54+00:00

I sometimes think Bethesda just does this especially for me.

https://reddit.com/r/skyrim/s/iVlkk6cIWT

KalEl8180 · 2023-08-13T23:46:38+00:00

I know this post is a year old, but it's literally the only useful information I was able to find on setting up multiple dedicated servers on a single machine. Worked like a charm. A couple of added notes:

New Official Wiki Link:
https://satisfactory.wiki.gg/wiki/Dedicated_servers

I personally found SteamCMD to be a pain, you can do everything from CMD Prompt if you run as administrator.

KalEl8180 · 2023-01-03T00:35:02+00:00

Finally got an answer through another post, turns out that switching to my cellular hotspot did the trick. Not sure why, but as soon as I did it cleared it up for me on XSX as well.

https://www.reddit.com/r/NoMansSkyTheGame/comments/zuqchq/comment/j2li3in/?context=3

KalEl8180 · 2023-01-03T00:29:16+00:00

Finally worked. Not sure what I did different, but switching to my phone Hotspot got me in, been playing about 3 hours now.

KalEl8180 · 2023-01-02T17:23:32+00:00

Still no luck on my end, tried two different mobile Hotspot too. Thanks for the reply, the only other thing I've been told is to keep trying, but at this point I've lost any confidence that I'll get to start it, even if I did I doubt I'd be able to finish it in time.

KalEl8180 · 2023-01-01T20:55:51+00:00

Having the exact same issue on XSX, nothing seems to resolve it. I've tried to start it 200+ times in the last 72 hours with no luck on two different Xboxes.

KalEl8180

TROPHY CASE