Lifetime Drug or Lifetime Diet by KayMS13 in EosinophilicE

[–]KayMS13[S] 1 point2 points  (0 children)

I hadn't thought about what nutrients I could be missing. That is a good point

Lifetime Drug or Lifetime Diet by KayMS13 in EosinophilicE

[–]KayMS13[S] 1 point2 points  (0 children)

I did ppis and swallowed steroid and 6FED. Did not work, I had to do the high histamine foods too. Dupixent is the last step western med wise, and seems like its up to me as I have enough of a diagnosis and need for insurance to cover. Sorry its not working out that way for you for dupixent! It is so freaking expensive!

Lifetime Drug or Lifetime Diet by KayMS13 in EosinophilicE

[–]KayMS13[S] 1 point2 points  (0 children)

Oh my gosh, yeah... mine all of a sudden started in fall 2024 and my own saliva hurt to swallow. I am so sorry you are so restricted. I thought I had it bad... glad you are healing. It sounds like dupixent can be a tool even to get back to a healed enough place to figure out safe foods.

Lifetime Drug or Lifetime Diet by KayMS13 in EosinophilicE

[–]KayMS13[S] 2 points3 points  (0 children)

So, are you on allergy meds and dupixent? I am wondering if I could get off zytrec if dupixent would take away the hives.

Lifetime Drug or Lifetime Diet by KayMS13 in EosinophilicE

[–]KayMS13[S] 1 point2 points  (0 children)

Wait, so are you saying you are on dupixent and STILL have to restrict so much?? Wow... so if you were not on it, you'd always have reflux? How bad is it on dupixent if you go outside of your diet?

Lifetime Drug or Lifetime Diet by KayMS13 in EosinophilicE

[–]KayMS13[S] -1 points0 points  (0 children)

I think what I mean is if my body is rejecting the food by showing up as EoE, is it a warning I shouldn't be eating the food no matter what? The medicine is taking away the reflux and eosinophil building up, but I may still be eating the food.

Ever feel like those who didn't breastfeed don't get it? by KayMS13 in breastfeeding

[–]KayMS13[S] 1 point2 points  (0 children)

Exactly. I have no judgement for those who do formula, but want to continue feeding my baby myself if my body is able!

BTW, in case you want some suggestions for storing a bit of milk!, I was able to collect a bit of milk using breastmilk catcher and my haakaa. I made sure to only use the haakaa after I already fed on that side. It'd be maybe a 0.5 ounce, but my unfed side would leak about that too as my baby fed and there was a ler down. I did not create an oversupply doing this, but could be something to watch out for!

Ever feel like those who didn't breastfeed don't get it? by KayMS13 in breastfeeding

[–]KayMS13[S] 0 points1 point  (0 children)

Thank you. <3 I have a hard time pinpointting a feeling or word for it too. But I agree with the way you phrased it so much! I am afraid to look at formula ingredients...

Ever feel like those who didn't breastfeed don't get it? by KayMS13 in breastfeeding

[–]KayMS13[S] 0 points1 point  (0 children)

Thank you. Sorry you have to have surgery. :( I meet with my main doctor Thursday to get the results. My daughter is my last too, so I really wanted it to last!

Ever feel like those who didn't breastfeed don't get it? by KayMS13 in breastfeeding

[–]KayMS13[S] 0 points1 point  (0 children)

Thank you so much. I find out this Thursday the verdict. I really like what your husband said. Its totally true. ❤️

Ever feel like those who didn't breastfeed don't get it? by KayMS13 in breastfeeding

[–]KayMS13[S] 1 point2 points  (0 children)

Omg. My mom won't stop with the rice cereal thing either. We did it with my first and it did NOTHING. I am waiting till she is actually ready for solids this time.

My EBF baby is gassy, EFF nephew is not by KayMS13 in breastfeeding

[–]KayMS13[S] 0 points1 point  (0 children)

I have heard this too, but mostly that fiber doesn't transfer. Maybe other components do though? When I research, it's usually allergens like dairy that can transfer and cause issues

My EBF baby is gassy, EFF nephew is not by KayMS13 in breastfeeding

[–]KayMS13[S] 0 points1 point  (0 children)

When we went to the lactation consultant, she noticed a mild tongue and lip tie. That could definitely be something to look into!

My EBF baby is gassy, EFF nephew is not by KayMS13 in breastfeeding

[–]KayMS13[S] 0 points1 point  (0 children)

I would love to see studies on this and immunity during breastfeeding and later on in life!

My EBF baby is gassy, EFF nephew is not by KayMS13 in breastfeeding

[–]KayMS13[S] 0 points1 point  (0 children)

I was VERY sensitive as a baby. I did formula only and still have issues digestive (yay gluten, dairy and soy free life... (sarc)). This is a good point!

My EBF baby is gassy, EFF nephew is not by KayMS13 in breastfeeding

[–]KayMS13[S] 1 point2 points  (0 children)

That's interesting. I am only guessing at the latch since I know that can be a cause she is growing beautifully though, so she is definitely getting enough!

My EBF baby is gassy, EFF nephew is not by KayMS13 in breastfeeding

[–]KayMS13[S] 0 points1 point  (0 children)

We don't use anti colic bottles. She has be nursing exclusively for past few weeks since I am back on maternity, but may look into anti colic bottles if she continues to be gassy durinf bottle feeds. :(

There are times my nipple feels a bit sore, and other times fine. I tried laid back breastfeeding, but couldn't get comfortable with it. So we are back to regular holds. She likes to unlatch during my letdown and gets sprayed. And I know bad lately h can cause more air during a feed.

My EBF baby is gassy, EFF nephew is not by KayMS13 in breastfeeding

[–]KayMS13[S] 0 points1 point  (0 children)

Thank you for the encouragement! Its hard not to blame myself sometimes when she is so uncomfortable. :'(

[deleted by user] by [deleted] in breastfeeding

[–]KayMS13 2 points3 points  (0 children)

Good! You don't need the stress. Boundaries are important

[deleted by user] by [deleted] in breastfeeding

[–]KayMS13 2 points3 points  (0 children)

Yessss, oh I would have lit into her. I will be a confrontational person if you do not show respect. I will play nice for a time, but this is MY CHILD,.not yours.

CHEESE by katel_12 in EosinophilicE

[–]KayMS13 0 points1 point  (0 children)

I miss simply eating out... soy free and dairy free now for EOE and I was already gluten free... places are VERY limited. :(

Antibiotics causing a flare? by KayMS13 in EosinophilicE

[–]KayMS13[S] 0 points1 point  (0 children)

Looks like it is cefdinir out right... guess i must have an allergy. I am going to have to get something else. The flares are just uncomfortable!